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Posting Questions


jldskier1234

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jldskier1234 Newbie

needin approval is a little strange isn't it? we are adults here and asking questions concerning a very serious problem to most of us. i can see reviewing 2-4 posts. most people with a disease like are not going to put offensive stuff in print, at least i wouldn't. bt sometimes waiting to hear and answer to something is hard for some of us. just a thought! me personaly it is a little frustrating.


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Jestgar Rising Star

Most people are willing to put up with the inconvenience of moderation in order to keep the board free of spam.

GlutenFreeManna Rising Star

needin approval is a little strange isn't it? we are adults here and asking questions concerning a very serious problem to most of us. i can see reviewing 2-4. most people with a disease like are not going to put offensive stuff in print, at least i wouldn't. bt sometimes waiting to hear and answer to something is hard for some of us. just a thought! me personaly it is a little frustrating.

It's not the people with celiac disease or legitimate questions that post offensive stuff. It's the random spammers that exist on the internet that will try to post ads for things like penis pumps and stuff that is a concern. I'm sure the board owners and mods have the post minimum there because some of those bots are persisitant and will keep trying more and than 3 times to get their spam posted.

Another way to look at this is that this is a great community of people and it's well worth it to stick around for a bit and post more than 2-3 questions. We are a great support group for those that don't know anyone in real life with this disease. I hope you can get past the post minimum to stick around and interact more on this board.

mushroom Proficient

Yes, you would be amazed what people try to post here, and how many times they are willing to try it :unsure:

  • 7 months later...
jsvera Newbie

This is seriously frustrating to me because I am not a computer whiz and not used to using discussion boards, etc. I don't know the difference between a forum, a blog, a thread or a post. Come on, does it have to be this complicated to share info with people who share a difficult problem?

Jestgar Rising Star

This is seriously frustrating to me because I am not a computer whiz and not used to using discussion boards, etc. I don't know the difference between a forum, a blog, a thread or a post. Come on, does it have to be this complicated to share info with people who share a difficult problem?

What would make it easier for you?

mushroom Proficient

This is seriously frustrating to me because I am not a computer whiz and not used to using discussion boards, etc. I don't know the difference between a forum, a blog, a thread or a post. Come on, does it have to be this complicated to share info with people who share a difficult problem?

As far as I have seen, you have not shared any information with us yet, just complained because your first posts are moderated, :)

To help explain the forum (also referred to as the "board", I am responding to your "post" entitled "Posting Questions" which was "posted"as a "thread" in the" Board Forum Technical Help" section of the board.

Your first post could just as easily have been posted in the "Coping with Celiac Disease" section of the board and have asked us for help with some particular problem you are having. There is nearly always a moderator close by for post approval, so there is no big delay in getting your post seen by others and getting the help you are asking for.

A blog is someone's home page where they post information for friends and family, or it may be a commercial blog where they post recipes and other information. Links to personal blogs are not permitted in posts as part of the board rules, but you may post information about your blog in your profile.

Now what's so difficult about that? :)


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    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
    • MI-Hoosier
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    • Sunshine4
      Many apologies for somehow changing your first name Scott! 
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