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Witness describes reaction from improperly labeled bread - WRAL.com


Scott Adams

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WRAL.com

Raleigh, NC — Jonathan Mull said Thursday that his wife, who suffers from Celiac disease, had the worst reaction he had ever seen after consuming products from Great Specialty bread company. "She was rolling on the floor writhing in pain and threw up ...

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    • Skg414228
      Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put that info on the forum in case someone finds it interesting later. I’ll update in April when I find out. 
    • trents
      It is certainly possible that had you not been eating essentially gluten-free at the time of the blood draw, you would have tested positive for the TTG-IGA. That one seems to not have a lot of staying power once you begin to withdraw gluten. That is the value of some of these other tests. They can still throw up "celiac" flags further out from withdrawing gluten. It is very common for people to experiment with the gluten free diet before getting formally tested. They don't know any better and it seems some doctors don't know enough to tell them not to.
    • Skg414228
      Honestly it was like a solid couple of months. I started sometime in early December and the blood draw was on the 18th of Feb. Again it was almost all the time except a few days here and there with a cheat meal or even a whole day. Overall those it was a paleo diet like 98% of that time. I didn't go gluten free on purpose I was avoiding all grains and felt some aches and pains go away so I kept doing it, but then kept telling myself I needed more fiber which is why I had those cheat meals every now and then lol. 
    • trents
      How long had you been practicing a reduced gluten diet by the time you had the blood draw?
    • Skg414228
      I forgot to mention that I wasn’t prepared to take a celiac test so when I took this test I was pretty gluten free except for some cheat meals here and there. But I was about 98% gluten free at that point except I had gluten a few times a few days before this test by coincidence. So I probably skewed the numbers a bit by accident. 
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