Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Celiac, What Is The "normal" Cycle Of Recovery

reijnen

Recommended Posts

reijnen Newbie
reijnen
Posted

2 weeks ago I was diagnosed with Celiac disease. I am a professional athlete and I ony showed symptoms for 6 weeks before being diagnosed. I was neg. on the blood test but biopsy showed moderately damaged villi. In the first week gluten free I saw a fair bit of improvement training went back up to 3 hours from only being able to do 1 hour (normal is 6hrs+). After traveling internationally and being glutened by beef jerky (didn't even think to look), I have felt like crap this whole week. For me the bulk of the symptoms are fatigue, muscle aches and joint aches, my stomach is not digesting aweosme but I don't seem to have a lot of other GI issues. I am young, fit and had a very quick diagnosis it seems weird to me that I would recover some in the first week and then be completely back to go in the second week. I am EXTREMELY careful with my diet as my job depends on me feeling 100% I am doing everything right, supplements, I always cook at home and only the best ingredients. I understand recovery can be a bit up and down for people who have been suffering many years but I have only been suffering for 6 weeks, I feel like recovery would be very quick for me.

Thank you for any input, also are there any athletes out there? Feel free to DM me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sb2178 Enthusiast
sb2178
Posted

I was very active (marathons, high bike mileage) prior to diagnosis, but was quite sick for a while and have not returned to my previous routines due to a variety of life circumstances. But, if you had damage in your intestines, it's likely you just did not have overt symptoms rather than being perfectly well.

However, I found that glutening affects fatigue and joints for about a week if it's once very veyr occasionally but if I get hit more than once in a short time period it lasts about two weeks or so. Given feedback here, it's quite variable.

On the upside, I react much less about a year later than I did for the first few months. It really took me 6 months to stabilize. It's not instant gratification, although the worst of the GI issues tend to clear up quickly.

xabbar Newbie
xabbar
Posted

2 weeks ago I was diagnosed with Celiac disease. I am a professional athlete and I ony showed symptoms for 6 weeks before being diagnosed. I was neg. on the blood test but biopsy showed moderately damaged villi. In the first week gluten free I saw a fair bit of improvement training went back up to 3 hours from only being able to do 1 hour (normal is 6hrs+). After traveling internationally and being glutened by beef jerky (didn't even think to look), I have felt like crap this whole week. For me the bulk of the symptoms are fatigue, muscle aches and joint aches, my stomach is not digesting aweosme but I don't seem to have a lot of other GI issues. I am young, fit and had a very quick diagnosis it seems weird to me that I would recover some in the first week and then be completely back to go in the second week. I am EXTREMELY careful with my diet as my job depends on me feeling 100% I am doing everything right, supplements, I always cook at home and only the best ingredients. I understand recovery can be a bit up and down for people who have been suffering many years but I have only been suffering for 6 weeks, I feel like recovery would be very quick for me.

Thank you for any input, also are there any athletes out there? Feel free to DM me.

Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either.

Good luck!

xabbar

  • 3 weeks later...
reijnen Newbie
reijnen
Posted
  • Author

Just wanted to mention that it seems once you take gluten out of your diet and then ingest some, accidently or not, the effects seem to be more intense and quicker. I'm not an expert but I would guess your body becomes even more sensitive once you are on the diet. Also it might be worth checking your sensitivity to dairy - many people who are gluten intolerant/celiac cannot deal with dairy either.

Good luck!

xabbar

How do you test your intolerance to dairy? I had a LEAP test done and it said I wasn't sensitive to dairy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,203
    • Most Online (within 30 mins)
      7,748
    Barbara 1981
    Newest Member
    Barbara 1981
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      There is dextrose in table salt?
    • trents
      Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem

      By trents · Posted

      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
    • Liquid lunch
      Medicinal mushrooms 🍄

      By Liquid lunch · Posted

      I can’t say this will work for everyone but for me the difference is incredible so might be worth trying. I’ve never been diagnosed celiac but via an elimination diet I realised I can’t eat any lectins, gluten soy and oats are particularly problematic. If I eat them I’m in bed for a week, then heavy bleeding and extreme pain for another, followed by a third week of bleeding on and off. My skin was a mess and it snowed when I brushed my hair. Since taking reishi and cordyceps mushroom tincture I can’t believe the difference, I’ve had a lot of help from this site so I want to return the favour. I took the tincture for my guts but the most apparent effect is that I feel like my brain works again, I can’t begin to describe how wonderful it is to be able to achieve basic things, I’ve barely been able to organise getting out of bed for so long, it feels like I haven’t been hit over the head with a mallet for the first time in years. Then I glutened myself, not necessarily gluten as so many things wipe me out but definitely ate something I shouldn’t have, I took a treble dose of the tincture and almost immediately felt much better so continued with the increased dose and three days (not weeks) later was back to feeling great, no bleeding involved. My skin is better than I can remember it ever being, I feel great 😊. I spend £1.50 a day on these but it’s worth every penny, I hope this helps someone else out there reading this. I wish I’d known about them 20 years ago. best wishes everyone 🍄 
    • Scott Adams
      Endoscopy

      By Scott Adams · Posted

      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Biopsy results after 1,5 gfd

      By Scott Adams · Posted

      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
×
×
  • Create New...