Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed And So Happy That I'm Not Crazy


Bamberz1977

Recommended Posts

Bamberz1977 Newbie

I first heard about Celiac Disease in 2003 while listening to NPR and thought "Hmmm, maybe that's what my problem is" yet I promptly dismissed it because I felt enough like a hypochondriac as is. I have been diabetic since 17, diagnosed with Bipolar Disorder, Major Depressive Disorder, Panic and Anxiety Disorder, Borderline Personality Disorder, ADD (in other words a walking DSM-IV), have had issues with pain since my early twenties, and frankly I was starting to feel as if everything was in my head. After hospitilization a month ago for gastroenteritis I was referred to a GI Dr. who promptly did blood tests and a biopsy and I was diagnosed with Celiac Disease last Tuesday.

After doing my reading I could easily correlate pretty much everything and what a relief to know that I'm not just making everything up. I figure that the extra cost of a gluten free diet will even out with reduced Dr's. visits and I am hoping that it will also help my diabetes be more controlled. In the area in which I live not much is known about Celiac Disease so I will likely be asking a lot of questions. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

So glad you've finally gotten some real answers!

Welcome to the board!

IrishHeart Veteran

Welcome!! This forum is amazing and these people have been a major source of help and encouragement for me. You're in the right place! ;)

I am so sorry for your long struggle to get diagnosed properly. I can relate. Many of us went for YEARS-- as you did--trying to figure out what was going wrong inside us. And yes, you are NOT crazy, hon--although at times, most of us felt that way, too.

Hopefully, your other conditions will improve or diminish and your diabetes be more controlled--as you begin the gluten free life!

They are all connected to celiac disease. Read a lot and stick to the diet and you're going to start to feel better....hang in there!!Best wishes!

eatmeat4good Enthusiast

Welcome! It took me a long time to find this place too, but I am feeling way better now that I am on board with gluten free. I hope you find the same relief and fast! You will be surprised at all the little things that clear up or go away when you are strictly gluten free. Glad you are here and look forward to hearing of your progress.

Bamberz1977 Newbie

Thanks everyone! I have been compliant to the diet for a whole week, and hopefully I'm not screwing anything up lol. It really is easier than I thought at first, I thought I was going to have to give up everything that I loved. I have discovered that isn't so, as a matter of fact I made fried chicken with gravy tonight using BRM gluten-free Flour and I couldn't tell a bit of difference.

ravenwoodglass Mentor

Welcome to the board. If you are on any meds at all make sure you check with the maker to be sure they are gluten free. Since celiac can cause depression and anxiety you may eventually find you are able to forgo meds, if you take them. Do not suddenly stop any without the doctors knowledge though.

Some of us find a really happy painfree person hiding behind the gluten, hopefully you will be one also.

Read as much as you can here and ask any questions you need to. There can be ups and downs at first but hang in there.

eatmeat4good Enthusiast

Thanks everyone! I have been compliant to the diet for a whole week, and hopefully I'm not screwing anything up lol. It really is easier than I thought at first, I thought I was going to have to give up everything that I loved. I have discovered that isn't so, as a matter of fact I made fried chicken with gravy tonight using BRM gluten-free Flour and I couldn't tell a bit of difference.

That is brilliant! It took me 6 weeks to figure out there was no reason I couldn't use gluten free flour for frying chicken. Now I make my chicken strips every week! See! You really aren't crazy...your creativity is already back! Nice work. Can you PM me how you make gravy? Silly question and I can google it too, but do you use broth or milk? and what fat? I wanna try it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,292
    • Most Online (within 30 mins)
      7,748

    Mdp11
    Newest Member
    Mdp11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation of the serum antibody testing and is considered the gold standard diagnostic test for celiac disease. Now hear this, you should not be eating gluten free weeks or months in advance of either kind of testing. Prematurely going on a gluten free diet can and will sabotage the results of the endoscopy/biopsy should you get a referral to a GI doc who would want to do that. Eliminating gluten from the diet causes causes inflammation to subside which allows the small bowel ling to heal such that the damage they would be looking for is no longer there.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Scott Adams
      It might make sense for you to find out if they've run a celiac disease test on you, and if not, consider planning for it.
    • Ems10
      Thanks for your reply! I’m really not too sure, the doctor just took a few tubes of blood & that’s all I know 🥹
    • Scott Adams
      Possibly, but there used to be a movement within the celiac disease community to just tell restaurants that you have a deadly wheat/gluten allergy to, hopefully anyway, ensure that your meal is actually gluten-free. I don't recommend this approach at all, and if I ran a restaurant where there was ANY risk of cross-contamination, I'm afraid that I would decline to server someone who made this claim. No restaurant owner wants anyone dying or going to the emergency room at their business.
×
×
  • Create New...