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Another Endoscopy Today

goodnews

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goodnews Apprentice
goodnews
Posted

So I had my second endoscopy today. I asked for the report when I left to see what was going on since I never can remember anything when I leave the place. For my first endoscopy they said that visually everything looked fine. They took 3 samples (esophagus, stomach and duodenum). The one of the intestine (duodenum) showed inflammation that they said could be from celiac so they wanted to do another endoscopy with more samples. (In the meantime I had gene testing that showed high risk of celiac...and found out my gallbladder is functioning at 26%)

Today (one month later) my endoscopy visually showed minimal esophagitis in the lower third of the esophagus and mild gastritis in the gastric antrum, and the duodenum appeared normal. They took 6 biopsies of the duodenum and some of the other areas as well (not sure how many). So I am wondering about the change that occurred in one short month. Is the inflammation more a predictor of the gallbladder failure they already know about, or of celiac? Anyone else have results of visual inflammation like this...and what happened with you?

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mushroom Proficient
mushroom
Posted

Inflammation is the companion of celiac - everywhere he goes it goes. My inflammation tests (CRP and sed rate) were both off the charts for a long, long time, partly from the gut and partly from the RA - it was hard to distinguish the two. It came down a bit (from the gut) and then a lot after I went on RA meds. Inflammation is the body's standard method of attack, what produces fevers and redness and swelling from infection, etc., etc. So it is very nonspecific. All the things that end in -itis (tonsillitis, arthritis, pneumonitis, iritis) involve inflammation. No, celiac doesn't have an -itis on the end (but it produces inflammation anyway) because inflammation is not its primary symptom.

amypie Newbie
amypie
Posted

What I know is that one day you can not be allergic to something and the next day you can so I think that it could change within a month.

I had my first endoscopy yesterday. I left there with the diagnosis of hiatal hernia, gastritis and mild duodenitis. I knew I would forget what the nurse told me so i remembered I kept asking her to repeat the hernia informaiton. He went in to look for an ulcer, bacteria and take 3 biopsy's of the small bowel to test for Celiac. I won't know for 2 weeks any other results. From reading forums tonight all of these symptoms seem to be related. I'm at a loss. I've gained weight, my stoamch won't go unbloated and I'm always nauseated. I cannot remember the question I was going to ask you now.....

i'm hoping I don't have to go in for a second endo. My allergist thought Celiac from my symptoms so she sent me to a gastroenterologist. I thought I was just going in for food allergy testing. I cut wheat out of my diet, accidently had it one night and got sick. That happened again for another week. I thought for sure I was going to have Celiac. Then I read that I wasn't supposed to go gluten free with the diagnosis because it could mess up the test results so I added it back in and it hasn't been bad now. I don't know what's going on with me!

I hope your 2nd endo doesn't come back worse.

goodnews Apprentice
goodnews
Posted
  • Author

Yes, those symptoms definitely could be from Celiac...

Funny what you said about not remembering things. As I spoke with my husband last night I was asking him what the doctor said. He told me that the doctor told him that they did the procedure and then after wheeling me out they decided to take more biopsies and since I was already under they brought me back in and did the procedure again and took more samples. This is a little annoying because I had an endoscopy last month and they only took 3 samples (one from the small intestine). the whole purpose of doing this endoscopy was to take more samples to test for Celiac. I wonder if they forgot. But the good news was I don't remember any of it and I am glad they got the samples.

fozbery Rookie
fozbery
Posted

Yes, those symptoms definitely could be from Celiac...

Funny what you said about not remembering things. As I spoke with my husband last night I was asking him what the doctor said. He told me that the doctor told him that they did the procedure and then after wheeling me out they decided to take more biopsies and since I was already under they brought me back in and did the procedure again and took more samples. This is a little annoying because I had an endoscopy last month and they only took 3 samples (one from the small intestine). the whole purpose of doing this endoscopy was to take more samples to test for Celiac. I wonder if they forgot. But the good news was I don't remember any of it and I am glad they got the samples.

Hi there

I just thought I should let you know that my biopsy and claprotectin stool test both showed signs of inflammation. In the stomach, duodenum and intestines. But my biopsy was negative.

It sounds like inflammation can be caused buy celiac and I still think I have problems with Gluten. I have been gluen free for about 3 or 4 weeks now and am slightly better. I would really like a diagnosis though.

goodnews Apprentice
goodnews
Posted
  • Author

Hi there

I just thought I should let you know that my biopsy and claprotectin stool test both showed signs of inflammation. In the stomach, duodenum and intestines. But my biopsy was negative.

It sounds like inflammation can be caused buy celiac and I still think I have problems with Gluten. I have been gluen free for about 3 or 4 weeks now and am slightly better. I would really like a diagnosis though.

I can understand wanting a diagnosis. I think that since my blood test was negative that I am not going to get one either. I go back and forth. Sometimes I want one, but at this point I am going to try gluten free for a while anyhow. If I don't ever get a diagnosis I may try to introduce a little gluten back in and see how I feel. But obviously if I am sick again I will be staying gluten free. So sometimes I don't really want a diagnosis because without one at least someday in the future I may be able to have gluten again. I am trying not to think too far ahead yet or else it would be very depressing. One day at a time.

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