Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New From New Mexico


DesertDogs

Recommended Posts

DesertDogs Rookie

I'm so glad I found this site!

One day I was fine. The next day, I was an absolute mess (gluten reaction, though I didn't know it at the time). And every day after that, I had the same experience. For over two months, every morning, within 5 minutes of getting up, I would start feeling roiling in my stomach and have to head for the bathroom. Ugh! It was awful! And I couldn't figure out what was going on! Some days this went on till noon.

I finally saw my doctor and he did some blood tests (not the Celiac test) and stool tests and everything he tested for was negative. So, as I have done before, I took my health into my own hands and started my internet research. I read all about food intolerance and set about doing some testing on my diet. Lactose, fat, supplements, sugar... I cut them all out of my diet. When none of those helped, I moved on to gluten. The first morning after my first gluten-free day, I thought I noticed alittle improvement. The second day was better and each day got better and better! Woo-hoo! I had found it! After 8 days, I was back to almost normal!

Adding my supplements back in, I discovered that I reacted to Quercetin or Bromelain and I'm just getting over that now. But that's the only problem I've had.

I asked my doc to do a Celiac test and I'm waiting for the results now. I suspect since the onset was SO marked and sudden, that I have Celiac.

Fortunately, my husband wants to go gluten-free, too so there will be no cross contamination here.

I'm a bit overwhelmed with how to deal with this, but I'm learning a little every day and I know I'll learn a lot more here. I'm looking forward to getting to know some of you and pick up on your fantastic insights.

Thanks for reading! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome to the Club, regardless of your testing. You saw improvement going gluten free and that's part of the diagnostic package.

As you already know, there is a great of information here. Please make your self at home and ask any questions you may have.

:D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,831
    • Most Online (within 30 mins)
      7,748

    BIg Nodge
    Newest Member
    BIg Nodge
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...