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Could It Be Crohn's

Kquad

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Kquad Apprentice
Kquad
Posted

I was diagnosed with Celiac a few weeks ago. My IgA was moderately postive and my IgG was negative. I went gluten free for the week before my endoscopy and the result was negative. He said I might have Crohn's and I will have a colonoscopy next week. I was reading that transglutaminase was also present in inflammatory bowel disease and that most false positives were in fact Crohn's. Have any of you heard of this? The gluten free diet has taken the edge off my disease in 2 1/2 weeks, but has in no way made me feel any where normal. However, I must have some issue with gluten, as my seasonal allergies are much much milder!

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ravenwoodglass Mentor
ravenwoodglass
Posted

False positives on blood tests are really pretty rare. False negatives on endos are not uncommon. You colonoscopy will be able to rule out chrons and there are folks that can have both. 2 and a half weeks gluten free isn't really enough time to fully heal but it sounds like you are healing. Do keep to the diet and be sure to take the precautions we need to take around the house and in restaurants.

GFinDC Veteran
GFinDC
Posted

2 and 1/2 weeks is not enough time to tell if you are getting completely better. It could take 6 months just to learn how to do the diet correctly. And it can take longer than that to start feeling "right".

Kquad Apprentice
Kquad
Posted
  • Author

Thank you for you response. I guess what I am saying, is that while a transglutaminase may be a false positive for celiac, but be a real positive for crohns. I only found a couple of sites, but it seems it is the norm, as I read to have a weak or moderate positive transglutaminase with crohn's . Does anyone know if this is correct?

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ravenwoodglass Mentor
ravenwoodglass
Posted

You mention your results from IGA and IGG did you have the TTG done? I think that is the transglutaminase test. When you have your lower scope done do make sure the prep they give you is gluten free.

Kquad Apprentice
Kquad
Posted
  • Author

Yes, I had the TTG. The prep is golytely and bisacodyl, YUCK!!! :D . My first cousin had crohn's, so it is in the family. My symptoms exploded from mild/moderate to severe in a couple of days. I was flat on my back and thought I was going to die for a week, although there was quite a variation throughout the day, up and down. Now the GI symptoms seem to be getting better, except sometimes I want to pop my intestines ( this is worse than last week), they are so swollen. Also there still seems to be a lot of fat in the stool.

This week the main thing is the constant fatique and the loss of appetite continues. I was always famished, but since this attack began, I have to watch the clock to remember to eat and have lost 7 pounds in the last 2 weeks. I am normal weight and do not want to lose more. Has anyone else had suck a sudden increase in symptoms. That suddenness, is why I am thinking crohn's. My last attack 8 years ago was not nearly as bad and that after almost no testing is when I was diagnosed with IBS. \

On the good side, I, who knew how to make toast am now cooking 3 times a day. The diet seems to be helping my son with aspergers, although he was TTG negative. I have been extremely strict on the diet, starting with 3 foods and fruit and then adding as I am sure they are gluten free, Besides a frosty and chili at Wendy' once, I have not eaten out and have all of my own stuff to prevent cross contamination.

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