Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Arm And Leg Pain


sherrylynn

Recommended Posts

sherrylynn Contributor

I have been having this pain in my arms and legs and twice in my head. The pain is a sharp stabbing pain and I started having it when my first child was about 9 months old. The pain will stab my muscle and it might stab a few times and then I won't have it again for weeks or months, sometimes I have what I call a storm of pain and it will hurt both legs and arms, just not at the same time. When the pain hurt my head on the right side, it did it twice and my right arm got weak when the pain "hit" my head. it was very wierd. I have been checked for MS, Fibro, neuropathy, just about everything and no one knows what it is. I was reading these posts and it occured to me it might be from celiac.

I haven't been diagnosed yet. had the blood work done twice, once while I was gluten free and the other time I had been eating a lot of gluten. both times It showed neg.

I want to go on the gluten free diet and just see if it will help, but I need to wait until I get money from my disability from the va first so I can afford the food. I hope I get the money soon, I can't wait to go gluten free.

When I was gluten free before, I did it for 2 months and my swelling in my belly went way down, but I didn't notice if my arms and legs felt any better. I was more concerned about my little girl and how she was doing on the diet.

I also have a lot of other symptoms of celiac, so I truely believe I have it, as well as my dad and aunt. They both keep having polyps removed from thier colon and my uncle had colon cancer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I want to go on the gluten free diet and just see if it will help, but I need to wait until I get money from my disability from the va first so I can afford the food. I hope I get the money soon, I can't wait to go gluten free.

I'm just curious as to why you have to wait to "afford the food". Gluten-free doesn't have to be expensive. It's highly recommended that you start by eating a simple whole foods diet...meats, veggies, fruits, eggs, etc. There are a lot of gluten-free prepared foods out there that are pretty expensive and are probably best avoided anyway when you first go gluten-free.

What are you eating now? I'm sure you can get a lot of suggestions from people on this forum to suggest inexpensive foods so you won't have to wait.

sherrylynn Contributor

I'm just curious as to why you have to wait to "afford the food". Gluten-free doesn't have to be expensive. It's highly recommended that you start by eating a simple whole foods diet...meats, veggies, fruits, eggs, etc. There are a lot of gluten-free prepared foods out there that are pretty expensive and are probably best avoided anyway when you first go gluten-free.

What are you eating now? I'm sure you can get a lot of suggestions from people on this forum to suggest inexpensive foods so you won't have to wait.

Eating cheap hot dogs and sandwiches is cheaper than buying meat and veggies and fruit. I am working but am not making enough money to buy groceries to cook every day. I tried it and I ran out of money very fast and eneded up not having anything to eat except the pasta that I bought for the kids. My oldest daughter is 26 and she is not going to go on the diet. She does work too but only makes enough to pay her car payment and day care and diapers for my grandson.

I did do well when I had my refund money. I bought chicken and pork and cooked every night. But I just cannot do it right now. I should hear something pretty soon about my disability then it should not be so bad.

sa1937 Community Regular

Eating cheap hot dogs and sandwiches is cheaper than buying meat and veggies and fruit. I am working but am not making enough money to buy groceries to cook every day. I tried it and I ran out of money very fast and eneded up not having anything to eat except the pasta that I bought for the kids. My oldest daughter is 26 and she is not going to go on the diet. She does work too but only makes enough to pay her car payment and day care and diapers for my grandson.

I did do well when I had my refund money. I bought chicken and pork and cooked every night. But I just cannot do it right now. I should hear something pretty soon about my disability then it should not be so bad.

I am so sorry you have been waiting so long...guess with the VA or any other gov't. agency, red tape interferes with getting people the help they need fast. Is there any way you could qualify for food stamps? Or is there a food pantry in your area that would be able to help you out?

When I was thinking of inexpensive foods, I've seen stores around here having canned veggies 3/$1.00, fruit for $1.00 a can, 5 lb. bags of potatoes buy one, get one free, some type of cheese on special every week, meat mark-downs on certain days as they are almost ready to expire by the "sell by" date, etc.

sherrylynn Contributor

I am so sorry you have been waiting so long...guess with the VA or any other gov't. agency, red tape interferes with getting people the help they need fast. Is there any way you could qualify for food stamps? Or is there a food pantry in your area that would be able to help you out?

When I was thinking of inexpensive foods, I've seen stores around here having canned veggies 3/$1.00, fruit for $1.00 a can, 5 lb. bags of potatoes buy one, get one free, some type of cheese on special every week, meat mark-downs on certain days as they are almost ready to expire by the "sell by" date, etc.

Your right, I could buy canned veggies and fruit cheap, and I could buy meat that is about to expire. Harps has a 5 products for 25.00 I just need to find a freezer to put it in. I may be able to buy a freezer kinda cheap from the want adds. I will start looking.

sa1937 Community Regular

Your right, I could buy canned veggies and fruit cheap, and I could buy meat that is about to expire. Harps has a 5 products for 25.00 I just need to find a freezer to put it in. I may be able to buy a freezer kinda cheap from the want adds. I will start looking.

I'd search for all possibilities to be able to have a healthier diet. Even frozen veggies are on sale frequently. Do you clip coupons? Sometimes you can get better buys on name brands than store brands with coupons. There are a bunch of coupon sites, too, where you can print out coupons for various products.

Not knowing where you live, there are some discount food stores...in my area we have Aldi's and Save-A-Lot. Big Lots and Ollie's sometimes have great buys, too.

Do you have a Freecycle group in your area? I've seen people give away a lot of stuff including appliances. And people can post that they are looking for a particular item. In our area I always see a lot of baby and children's clothing listed frequently as they grow out of them so quickly. And for Freecycle, it has to be free, period...no selling allowed.

I'm sure others will probably have a lot more ideas for you. And if you have a crock pot, it gives you all sorts of possibility to make inexpensive meals.

sa1937 Community Regular

Thought of a few more things: Rice is cheap as are beans (you can buy a bag, soak them and cook them yourself). Also Mission Corn Tortillas are gluten-free and made on dedicated lines. And who doesn't like Tex-Mex.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sherrylynn Contributor

Thought of a few more things: Rice is cheap as are beans (you can buy a bag, soak them and cook them yourself). Also Mission Corn Tortillas are gluten-free and made on dedicated lines. And who doesn't like Tex-Mex.

I am so glad you responded to my post. I got onto freecycle and am waiting for them to accept me. and I will look into the suggestions you gave me.

Thank you.

sa1937 Community Regular

I am so glad you responded to my post. I got onto freecycle and am waiting for them to accept me. and I will look into the suggestions you gave me.

Thank you.

You're welcome! I think there are a lot of options for you so you will be able to go gluten-free and be on your way to better health. And be sure to read labels on the things you do buy...we all major in Label Reading 101. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      14

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,554
    • Most Online (within 30 mins)
      7,748

    JazmineButterfly
    Newest Member
    JazmineButterfly
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Lactose intolerance is not necessarily to problem in the celiac community. Intolerance to the dairy protein casein can be the culprit as it is similar enough to gluten to cause cross reactivity in a fairly significant element of the celiac population. Oats and dairy are common cross reactors in the celiac community. Eggs, corn and soy are also common cross reactors but oats and dairy are the two big ones.
    • knitty kitty
      Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]." and... Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/  
    • dsfraley
      Thank you for these thoughts, Knitty. Trents: Yes. I would say we are taking it relatively light on his belly because it's been upset, so no heavy/excessive dairy, but he has had some cheese here and there. Not high quantities, however, and tests were negative for lactose intolerance.
    • trents
    • knitty kitty
      Being low in Thiamine B1 can cause fingers and toes to be cold all the time.  Thiamine deficiency affects body temperature regulation and sleep/wake cycles.   Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.