Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Allergy?

Guest BERNESES

By Guest BERNESES
in Related Issues & Disorders

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

Hi- I wasn't sure where to post this but I wondering about the people on this board who are also allergic to soy. I'm starting to think I might be and I'm wondering what symptoms you experience. Thanks, Beverly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kvogt Rookie
kvogt
Posted

I react to soy. I have a patch on my shin that itches after eating soy. I also have exerienced mental confusion - difficulty concentrating and problem solving. Difficulty communicating complex ideas because my mind is racing.

Hennessey Rookie
Hennessey
Posted
Hi- I wasn't sure where to post this but I wondering about the people on this board who are also allergic to soy. I'm starting to think I might be and I'm wondering what symptoms you experience. Thanks, Beverly

<{POST_SNAPBACK}>

My son is allergic, just a baby, but his symptoms from the soy are eczema.

jenvan Collaborator
jenvan
Posted

I am intolerant to soy--I noticed if I have soy milk, or soy chips etc, that it really gets my gut going--gurgling, gas etc.

Kasey'sMom Enthusiast
Kasey'sMom
Posted

My child is allergic to soy also. I've found that she also reacts to soybean oil and soy lectin. She gets eczema patches become red and itchy after eating soy. She also has a change in temperment, just as she does with her other allergies and gluten. Soy seems to be hiding in all sorts of places. ;)

Merika Contributor
Merika
Posted

My ds has soy allergy. Symptoms can vary a lot from person to person, as with any food allergy. Actually, according to the food allergy test I had run, I'm allergic to soy too. Can't tell you what my symptoms are though, as I'm allergic to about 45 things according to the test.

I can tell you that eggs gave me anxiety the day after eating them, and I tested postive for those too.

Merika

Kasey'sMom Enthusiast
Kasey'sMom
Posted

Merika,

I don't know if you've ever buy the Envirokidz-Crispy Rice Bars for your ds or not, but I have gotten the berry flavor a few times. One the outside of the box it says canola oil. I just noticed the indiv. wrapers say canola and or soybean oil. I called yesterday and they say that due to a shortage of avalability of organic canola oil, they are switching to soybean oil. :o Just thought I'd share.....

Take Care!!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
Guest BERNESES
Guest BERNESES
Posted

Thanks everyone- I'm really starting to think it might be a problem. More of an intolerance than an allergy but it's in EVERYTHING. Biggest question- are any peanut butters soy free? I tyhink that's why peanut butter's making me feel icky even though I love it and don't want to give it up.

Merika Contributor
Merika
Posted

Berneses,

An all-natural peanut butter will be soy-free. That means they just grind up the peanuts and put it in a jar, which is really how it should be :)

Depending on where you are in the US: Laura Scudder natural peanut butter is soy free. And their new "organic" line is mixed with peanut oil and roasted (though not as good, IMO as the regular). East of the Mississippi it's Smuckers - but I don't live there anymore, so double-check the ingredients (it's owned by the same company).

So, yes, if soy is the problem, you can still eat peanut butter :D

Kasey's mom - we don't eat it, but thanks for the heads up!

Merika

Guest BERNESES
Guest BERNESES
Posted

Merika- Thank you! Thank you! Thank you! Beverly

Kasey'sMom Enthusiast
Kasey'sMom
Posted

Beverly,

I haven't seen the Laura Scudder natural peanut butter but my family likes the organic nut butters from Maranatha. The peanut butter is made with Valencia peanuts. The nut butters don't contain any added ingredients. We also love the almond butter. I think the peanuts are roasted for the peanut butter and the almonds are raw. :):):)

So yummy!!!!

tarnalberry Community Regular
tarnalberry
Posted

You can also get raw peanut butter.

I think I've got a bit of a soy problem, but more of the sort of thing where I can't have it every day, but can once in a while.

terri Contributor
terri
Posted

I get the same reaction as Jen and have eliminated it from my diet. I should say I've ALMOST eliminated it from my diet. I use the wheat free Tamari sauce in my oriental cooking and I guess that has soy....but it's worth the gurgle! :rolleyes:

Hennessey Rookie
Hennessey
Posted
Hi- I wasn't sure where to post this but I wondering about the people on this board who are also allergic to soy. I'm starting to think I might be and I'm wondering what symptoms you experience. Thanks, Beverly

<{POST_SNAPBACK}>

My son is 11 months and one of his many allergies is soy, he will break out with eczema.

Guest BERNESES
Guest BERNESES
Posted

Thanks so much for all your replies. I seem to be able to handle it in small amounts but I have a reaction to large amounts (like a soy bar, Trader Joe's soy and flaxseed tortilla chips, soy bars, soy cheese, etc) that's almost like the feeling I get when glutened (nauseous, gassy, feverish, smelly, constipated).

Today I felt so anxious and exhausted (I'm pretty sure I was glutened by something over the weekend, but I also had edamame and peanut butter and a soy bar). I think I'm going to try eliminating it from my diet as much as possible to see if that's what the problem is. Thanks for all your help so much, Beverly

ianm Apprentice
ianm
Posted

I think soy might be a problem for me also. I had some chips and ice cream made with soy, don't remember the brands a couple of months ago. I am quite certain there was no gluten involved. The reaction was very different from a gluten reaction. With gluten I experience mostly fatigue and lots of brain fog and bloating. With the soy there was fatigue but it felt different and no brain fog. My guts also were acting up and it was a different sensation than what I get from gluten. Not a lot of bloating either. It had to be the soy because that was the only thing different I ate that day. Small amounts of soy don't seem to have any effect but I will stay away from any large quantities.

aaascr Apprentice
aaascr
Posted

In addition to the gastro issues - I get an asthmatic reaction from soy-

I'm really allergic and have to check labels for soy that is not so clearly

listed. It can definitely fatigue one! ;)

mangogirl Newbie
mangogirl
Posted
Hi- I wasn't sure where to post this but I wondering about the people on this board who are also allergic to soy. I'm starting to think I might be and I'm wondering what symptoms you experience. Thanks, Beverly

<{POST_SNAPBACK}>

gf4life Enthusiast
gf4life
Posted

I am allergic to soy. When I eat soy sauce, soy protein, soy flour, etc. then I get itchy (really bad, all over my body). I had trouble breathing once after I ate some soy cheese. I didn't try that one twice!

I seem to be fine with the soy oils. For a IgE related allergy it is usually just the soy protein that will trigger a reaction, only a small percentage of allegic people will also have trouble with the oils.

A soy intolerance is also quite common and my children's pedi GI said that it is pretty easy to figure out yourself. If you get gassy and have stomachaches after eating soy, then you are most likely intolerant to it. One of my children does have that reaction to large amounts of soy. That combined with my allergy causes us to avoid most soy products. The kids still eat the gluten-free pretzels made with soy flour, but in small amounts on occasion, not all the time.

I am not as careful with avoiding the soy as I am with the gluten, but I should be. Occasionally I will eat a gluten-free food that contains soy knowing that I will have to take Benadryl later, because I really want to eat that particular food!

God bless,

Mariann

Merika Contributor
Merika
Posted

My ds is one of the "few" who reacts to soy of ANY quantity - oils, lecithin, vitamins, you name it.

I have heard - can anyone confirm this? - that the soy protein molecule looks ALOT like the gluten molecule, so it is possible the body might mistake one for the other, especially if you have leaky gut (which it seems any of us with additional food allergies do....). I don't mean soy would cause villi damage, just that the body would react in a similar way in the short term.

Merika

gf4life Enthusiast
gf4life
Posted

Merika,

I haven't heard that about soy, but I heard that same theory about the casein molecule. I have not found any scientific evidence yet to support that theory though.

Has anyone else found any "proof" of these claims? Just curious. I may just not be looking in the right place and I wouldn't want to say that the claims were false without knowing for sure.

God bless,

Mariann

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Soy makes my hair fall out in gobs. And, I feel itchy all over and my ears itch. [giggle]

kabowman Explorer
kabowman
Posted

My soy reactions are similar to my gluten reactions and I cannot tolerate ANY. I accidentially used a minced garlic without checking the ingredients and was horribly sick so I checked the one thing that had changed and it contained soy oil. I switched back to my regular crushed garlic that does NOT contain any oil now that I know!!!

PennyG Newbie
PennyG
Posted

I, too, have reactions to soy. I developed eczema on my neck and arms after I started using soy milk to replace regular milk. I had the ringworm appearing patches biopsied when they wouldn't clear up (required because I worked with children and they had to make sure the children weren't going to "catch" what I had) and was told it was "an allergic reaction". I also kept getting sick all the time -- flu/cold that would lead to sinus, ear, and lung infections. As soon as I did an elimination diet, I discovered that soy was one of the problems.

Soy is used in so many things, after all, it is a cheap product to use. I had to stop eating french fries and grilled chicken (marinade contains soy) at McDonalds. I finally found frozen fries that are gluten and soy free -- Alexia.

I have been having a reaction to eggs lately that I think might due to chickens getting fed soy, barley, and other "whole grains".

I never use margarine, so that isn't a problem, but had to throw out several salad dressings, mayonnaise, vegetable shortening & oil, and my Skippy because they had soybean oil in them. Skippy does have a "Natural" peanut butter with palm oil that is an aquired taste. I also use cannola/safflower mayonnaise & oil now.

Now, if I eat something with soy in it I get a migraine and/or stomack problems and have a hard time with my eyes focusing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      New Research Reveals Why the Gut May Stay Sensitive Even After a Gluten-Free Diet

    2. cristiana
      - cristiana replied to Scatterbrain's topic in Sports and Fitness
      5

      Feel like I’m starting over

      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy. Benfotiamine and other forms of Thiamine do not bother me at all. There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes. The sulfur in thiamine is in a ring which does not trigger sulfa allergy...
    4. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    5. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,295
    • Most Online (within 30 mins)
      7,748
    LaniH
    Newest Member
    LaniH
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.