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- cristiana replied to Farralley's topic in Related Issues & Disorders1Sore mouth lining and Coeliac Disease.
Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I... -
- Farralley posted a topic in Related Issues & Disorders1Sore mouth lining and Coeliac Disease.
Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia. I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist. My concern is a... -
- trents replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Inconclusive biopsy results
In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores... -
- Lizy487 replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Inconclusive biopsy results
Thanks for the reply, I will ask for the antibody test. FODMAP does not eliminate gluten so it shouldn’t affect the results. -
- trents replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Inconclusive biopsy results
I would ask to have celiac antibody blood tests done. These tests would not be valid, however, unless you were eating normal amounts of gluten for weeks or months leading up to the blood draw. So, not sure how the FODMAP diet figures into that. Ask for a minimum of 1. total IGA and 2. TTG-IGA. "Villi are swollen, congested, and shorter." "Moderate...
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Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I had so many, even eating toast and marmalade made me think I was chewing glass. In your case, what you are describing could well be due to a reaction to cross contamination, or perhaps even a sensitivity to oats? Are you consuming gluten free oats - i.e. certified pure oats, free from contamination? You will probably know that coeliacs cannot eat standard oats, they have to be oats that are grown and processed separately from gluten containing grains, and certified as such. But even then, a small percentage of coeliacs cannot tolerate pure oats, in the short term while they are recovering, or even in the longer term, unfortunately. It took me eight years before I stopped reacting to even pure oats and now eat them with no issues, but for some a reaction to the protein avenin in oats can be either a temporary or long term issue. Another issue is you may be short of iron or B12 and other B vitamins, which can leave your mouth sore and prone to ulcers. Have you had these levels tested recently? If the burning continues, I'd definitely ask your doctors to do another blood test. Lastly - you may have burning mouth syndrome, do have a look into that, which could just be a temporary reaction to something - food, a new toothpaste, reflux? For now, in your shoes I'd probably keep an eye on any recurrences and perhaps keep a food diary to see if there is a pattern. Have the blood test to check for deficiencies, and try to eat soft, bland food for a few days to help recovery along. Hope this helps, Cristiana -
Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia. I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist. My concern is a sore mouth lining. I'm not certain but thought that consumption of a gluten free Granola which contained freeze dried berries seems to coincide with the soreness.. it's taken weeks and a range of over-the-counter remedied to reduce the soreness. I've also been casting around for a remedy and a genuine cause. Perhaps foolishly I purchased another similar product ( no frozen berries) and my mouth has become a lot sorer almost immediately. No doubt my doctor will have some ideas. Just wondering if 1. Others had mouth soreness 2. Others had difficulty with gluten-free Granola-like cereal. TThans in advance. Farralley .
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In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores for individual IGA tests will be artificially low and can generate false negatives. The TTG-IGA test is the most popular test ordered by physicians when checking for celiac disease, and considered to be the centerpiece of celiac disease antibody testing, but it is not the only one. Ideally, others would be ordered but cost containment in medicine being what it is, physicians seldom order a "full celiac panel" at the outset. Here is an overview of the tests that can be run:
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Thanks for the reply, I will ask for the antibody test. FODMAP does not eliminate gluten so it shouldn’t affect the results.
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I would ask to have celiac antibody blood tests done. These tests would not be valid, however, unless you were eating normal amounts of gluten for weeks or months leading up to the blood draw. So, not sure how the FODMAP diet figures into that. Ask for a minimum of 1. total IGA and 2. TTG-IGA. "Villi are swollen, congested, and shorter." "Moderate chronic duodenitis with loss of villi." These two lab findings you list are classic signs of celiac disease but can also have other causes.
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