Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suggestions For A Complicated Diet

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

I think I need advice from some of you, as I know I have heard from some of you that you have multiple allergies.

I am of course gluten-free, and mainly lactose-free (I can tolerate some forms of dairy again).

Since then I have developed the following complications:

- some form of Inflammatory Bowel Disease (still undiagnosed after 5 1/2 years almost), can't tolerate red meat or most veggies

- allergies to all food but beans (as of July 2009)

- high blood pressure

So, I am trying to manage 6 separate diets: gluten-free, mainly lactose-free, red meat-free, veggie-free, low-sodium, AND am on a rotation diet which I have modified to what works for me (this means I eat something for a few days in a row, then not again for a few weeks, rather than once every 4 days)

Is anyone else here just as in bad shape for food?? I'm just puzzled how to rotate it all, while being 100% gluten-free, and stop packing on the pounds...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

Are you eating any gluten free packaged foods? Are you eating anything with soy? Do you have a totally gluten free home or is there gluten still in your house.

Just some questions I was wondering about. Soy will keep your system messed up. You could still be getting glutened from trace amounts of gluten in the gluten free foods which are higher in sugars and carbs. Also you could be being glutened from the gluten eaters in your household. If you have a mixed household do you have your own cooking pans, collander, toaster, cutting board, etc, or do you share? That could be your problem. Do you have pets? They may need to be gluten free. Your lotions, shampoos. Have you checked your meds and vitamins. I would kick all the dairy out not just some.

Anyway, just a few thoughts. I hope you get to feeling better.

Txplowgirl

Nor-TX Enthusiast
Nor-TX
Posted

I also have several issues to deal with. I need to eat foods that are gluten free, totally dairy free, no fresh vegetables or fruit, low in acid (no tomato, citrus), easy to digest (no beef), as low in fat as possible.

It is absolutely overwhelming to say the least. At 61 I was trying to prepare the foods I had grown up eating and loved. It just wasn't happening for me.

The way I cope now is that I have my "safe" list of foods. The list sometimes expands and sometimes gets smaller if I run into something that just isn't working.

From that "master" list I put my creativity into play. For instance I can eat salmon and I love hamburgers. I made salmon patties and used corn meal as a binder. I bought the new Udi hamburger buns and added pickles and mayo and was in heaven.

I was devastated at the beginning of this diet. The looming idea that I could never eat my favorite foods was almost too much to handle. Now, 2 years later, I am settled into knowing what I can eat and being creative in meal planning.

Take each day and work on your "master" list. Add, subtract and read recipes. Make the food you like to eat from that list. You will be happier and healthier.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I have multiple food allergies as well that are severe (see my signature). I have to pretty much cook everything at home from scratch as much as possible. I agree with NorTx. Make a list of the foods CAN have and then figure out the best way to prepare them so they are yummy for you. You should also try new foods that you don't currently eat, even if you tried them a long time ago and didn't like the taste. You may find you now like things you didn't like before or you might find a new way to prepare the food that makes it your new favorite. As for not packign on the pounds and managing the rotation diet you might want to start logging your meals on an online food diary which will calculate the nutrtion (calories, fat, carbs, etc) and also let you keep track of what you are eating and how you are feeling. One website I have used in the past is livestrong.com

Another thing--since you keep developing new food intolerances you might want to get on probiotics and look into Leaky Gut theory (I don't know much about it yet--I'm still reading up on it myself, just putting it out there).

mommida Enthusiast
mommida
Posted

When my daughter was diagnosed with Eosinophilic Esophagitus (now they lump all of the Eosinophilic GI track disorders together) we had to keep her gluten free (for the Celiac) and go all top 8 allergens, peas, and to be really safe we were seriously watching dyes and preservatives.

We had to find "non-food" items because it was possible that she would end up on a feeding tube. Non-food items are dum-dum suckers and cotton candy for example to keep some muscle memory of eating. You can find some of these lists on children's food allergy sites.

I found a great cookbook, The Allergen-Free Baker's Handbook How to Bake without Gluten, Wheat, Dairy, Eggs, Soy, Peanuts, Tree nuts, and Sesame. by Cybele Pascal

Other than that, tell us what you can eat for more suggestions. (tell us if there are any more allergens too)

  • 4 weeks later...
num1habsfan Rising Star
num1habsfan
Posted
  • Author

I rarely eat red meat due to its habit of causing IBD flares. For vegetables I can eat peas, lettuce, asparagus, cucumbers, and coloured bell peppers. I seem to tolerate pork well. Kinnikinnick white rice bread is my staple food. I avoid corn as much as possible, also due to IBD flares. Everything else for food I only eat once in awhile...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,685
    • Most Online (within 30 mins)
      7,748
    Janahawk
    Newest Member
    Janahawk
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Brook G
      Not sure if this is Celiac or just a gluten-free intolerance

      By Brook G · Posted

      People who are Celiac don't have a gluten response to Quinoa, but some people who are gluten intolerant do.  I react to quinoa just like I do to gluten.  Freddies/Kroger came out with their own gluten-free Bread and I didn't think to read the ingredients.  I couldn't figure out where I would have gotten gluten in my diet until I read the ingredients in their bread... QUINOA
    • trents
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By trents · Posted

      Thanks for the additional information. I was thinking of asking you if your daughter was taking methylated vitamins since she has the MTHFR gene but you beat me to it. To answer the question you posed in your original post, as I explained, celiac disease does not damage the colon but the lining of the small bowel. If the damage is pronounced enough and the doc doing it is experienced, yes, the damage done to the lining of the small bowel can be spotted with the naked eye.
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      I could not locate the correct Gary Brecka video where he explains the methylation process and specifically states things about how people with the MTRR homozygous gene mutation are known to suffer from heartburn due to a weakened valve/sphincter where the esophagus and the stomach connect.  My brother had the youtube video sent to him from 10x health which is probably why I cannot locate it.     I will have read up on mast cell activation.  I do not know anything about it.  Tums is my preferred gerd treatment.  I always figured a little extra calcium could not hurt me.  
    • cameo674
      Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

      By cameo674 · Posted

      Trents: Due to a genetic mutation, my daughter has inherited from both parents she cannot process the Folic Acid provided in the fortified American grains.   An MD told her to avoid eating fortified grains.   My daughter makes the assumption that unless she makes the food item, that the baker used a fortified grain so she has been limiting her gluten intake since 2020.   Her Psychiatrist was who tested her for MTHFR gene issue because she suffers from depression and severe anxiety. The Psychatrist also instructed my daughter to supplement with a methylated version of folate once she knew my daughter was homozygous, because the methylated version bypasses the mutated gene step so her body can absorb it.  Low folate absorption impacts serotonin and dopamine production.  My husband and I also both have two other homozygous gene mutations that interfere with vitamin absorption: MTRR and VDR taq.  The first interferes with B-12 absorption which requires us to take a methylated B-12 vitamin and the second with Vitamin D absorption so we have to take higher doses to stay within normal levels.   My brother, who has the exact same gene mutations, went through 10x health genetic testing for vitamin supplements (paid by his employer) and received a huge report saying the same things about which types of supplements had to be taken.  Gary Brecka does videos on how these gene mutations impact the vitamin absorption pathways.       If my brother had not gotten his testing through work, he would never would have started his supplement journey.  His testing is what triggered my getting functional health testing that tested similar biomarkers to his.  Again the celiac testing was an add-on test that I did off the cuff.  
    • trents
      Colonoscopy with large are of inflammation

      By trents · Posted

      Welcome to the forum, @growlinhard1! If eliminating gluten from your diet makes significant improvement in your symptoms then there are two possibilities. Either you have celiac disease (aka, gluten intolerance) or NCGS (Non Celiac Gluten Sensitivity, aka, gluten sensitivity). The difference is that celiac disease is an autoimmune disorder that creates inflammation and, over time, damages the lining of the small bowel which inhibits nutrient absorption whereas NCGS does not damage the lining of the small bowel. They share many of the same symptoms. At the end of the day, the antidote for both is to abstain from foods that contain wheat, barley or rye, the three gluten-containing grains. Some countries supply stipends and healthcare benefits for those with an official celiac diagnosis. If you live in the USA that does not apply. The main reasons for seeking an official celiac diagnosis are psychological and social. Many people have a hard time not falling off the gluten free bandwagon without an official diagnosis. They find it easy to rationalize it all away as being temporary or due to something else. When you have an official diagnosis, you tend to take gluten-free eating more seriously. Socially, family and friends are more likely to respect and attempt to comply with your need to eat gluten free if you have an official diagnosis of celiac disease. Your physician is more likely to take you seriously as well if you have an official diagnosis because there are typically other health problems that are spinoffs which develop from celiac disease in time. One autoimmune disease invites others. There are no tests for NCGS. Celiac disease must first be ruled out. We do have specific tests for celiac disease. By the way, some experts believe that NCGS can transition into celiac disease. If your endoscopy/biopsy is only a month away, I would encourage you to stick it out and go back on gluten to get an official diagnosis. You still have time to get a valid test result if you start back on gluten now, 10g of gluten daily which is about the amount found in 4-6 slices of wheat bread.
×
×
  • Create New...