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melhopkins02

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melhopkins02 Rookie
melhopkins02
Posted

I have a question. I am new to this, just diagnosed on Thursday so I am in the very beginning stages. Can I have popcorn? I know its made from corn but is there anything added in the bag that I can't have?

thanks!!!

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lovegrov Collaborator
lovegrov
Posted

Every microwave popcorn I've checked on has been gluten-free, although I think one of the caramel pour-overs isn't. Pop Secret, Jolly Time, Act II, Newman's, Kroger, and Orville -- all gluten-free.

richard

melhopkins02 Rookie
melhopkins02
Posted
  • Author
Every microwave popcorn I've checked on has been gluten-free, although I think one of the caramel pour-overs isn't. Pop Secret, Jolly Time, Act II, Newman's, Kroger, and Orville -- all gluten-free.

richard

<{POST_SNAPBACK}>

melhopkins02 Rookie
melhopkins02
Posted
  • Author

<{POST_SNAPBACK}>

GREAT!! thats good news because I love popcorn. One other question if you know....when ordering at a fast food rest., is it ok to just take the bread off the sandwich or do I have to order it without the bread completely?

Guest gfinnebraska
Guest gfinnebraska
Posted

You have to order it without the bread completely! IF you just take the bread off, it leaves "particles" of the bun behind... therefore contaminating the whole thing. I know it sounds overwhelming at first, but hang in there... it gets much easier in time!!! Plus, thanks to Atkins, people don't look at you weird when you order it without the bun. :) Bonus!!!

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Order it "no Bun" everytime!

Even crumbs can hurt your intestine and invoke bad symptoms (nausea, diarrhea, DH, etc).

If possible watch as they make your food (it is easier at Wendys, Mc D's and Arby's because you can see the kitchen. -- Sometimes the employees will just taka an old sandwich and "remove the bread" -- this is unacceptable -- make them make you a fresh one. If there is a problem, SPEAK UP and tell a manager -- its their job to make you happy !!

Frenh fries are NOT OK unless they are MCD's - they have dedicated fryers USUALLY -- you still need to ask a manager (not Suzy the 16 year old employee who has no idea what a dedicated fryer is)...

hope this helps!!

Bronco

melhopkins02 Rookie
melhopkins02
Posted
  • Author
Order it "no Bun" everytime!

Even crumbs can hurt your intestine and invoke bad symptoms (nausea, diarrhea, DH, etc).

If possible watch as they make your food (it is easier at Wendys, Mc D's and Arby's because you can see the kitchen. -- Sometimes the employees will just taka an old sandwich and "remove the bread" -- this is unacceptable -- make them make you a fresh one. If there is a problem, SPEAK UP and tell a manager -- its their job to make you happy !!

Frenh fries are NOT OK unless they are MCD's - they have dedicated fryers USUALLY -- you still need to ask a manager (not Suzy the 16 year old employee who has no idea what a dedicated fryer is)...

hope this helps!!

Bronco

<{POST_SNAPBACK}>

Thanks!!  I have so much to learn and some rest. are helpful, some not!  This message board is the best thing I have found yet....thanks so much for helping me!

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VydorScope Proficient
VydorScope
Posted
Frenh fries are NOT OK unless they are MCD's - they have dedicated fryers USUALLY -- you still need to ask a manager (not Suzy the 16 year old employee who has no idea what a dedicated fryer is)...

I just wanted to repeat this and STRESS THE ASK part because I have not found a McDonalds where the freis are gluten-free. Some ppl here praise McDonalds for thier so called dedicated friers, but my personal exp is much different. See the problem is that McDonalds is a franchise so every location potentialy can be drasticly different.

ANY time you eat at ANY resturant you must ask lots of questions, and you must be prepaired that no mater how hard you try, you will occasoinaly get glutted from them. Find places that know you and do a good job, and stick with them is the best advice I can give you.

melhopkins02 Rookie
melhopkins02
Posted
  • Author
I just wanted to repeat this and STRESS THE ASK part because I have not found a McDonalds where the freis are gluten-free. Some ppl here praise McDonalds for thier so called dedicated friers, but my personal exp is much different. See the problem is that McDonalds is a franchise so every location potentialy can be drasticly different.

ANY time you eat at ANY resturant you must ask lots of questions, and you must be prepaired that no mater how hard you try, you will occasoinaly get glutted from them. Find places that know you and do a good job, and stick with them is the best advice I can give you.

<{POST_SNAPBACK}>

Thanks for the information.....another question, my feet have started cramping very easily...is that part of the diet, celiac disease, or possibly something else??

thanks!!

mytummyhurts Contributor
mytummyhurts
Posted
I just wanted to repeat this and STRESS THE ASK part because I have not found a McDonalds where the freis are gluten-free. Some ppl here praise McDonalds for thier so called dedicated friers, but my personal exp is much different. See the problem is that McDonalds is a franchise so every location potentialy can be drasticly different.

That's weird. So every McDs you have been to uses their fries frier for other stuff too? I've never found that.

VydorScope Proficient
VydorScope
Posted
That's weird. So every McDs you have been to uses their fries frier for other stuff too? I've never found that.

<{POST_SNAPBACK}>

Yes. And let me assure you, a screaming toddler in pain with 5 or 6 cases of diareara in a evening is darn good deterent from ever going back!

VydorScope Proficient
VydorScope
Posted
That's weird. So every McDs you have been to uses their fries frier for other stuff too? I've never found that.

<{POST_SNAPBACK}>

Yes. And let me assure you, a screaming toddler in pain with 5 or 6 cases of diareara in a evening is darn good deterent from ever going back!

judy05 Apprentice
judy05
Posted
Thanks for the information.....another question, my feet have started cramping very easily...is that part of the diet, celiac disease, or possibly something else??

thanks!!

<{POST_SNAPBACK}>

To answer the question about feet cramping, I too have had it. Like I said before, you name it, I've had it. I never found out what caused it, but it went away. My feet used to cramp on the top.

melhopkins02 Rookie
melhopkins02
Posted
  • Author
Yes. And let me assure you, a screaming toddler in pain with 5 or 6 cases of diareara in a evening is darn good deterent from ever going back!

<{POST_SNAPBACK}>

some good news is the McD where I live does only cook their fries in the same machine...no mixing!! So, there a some out there atleast!

pixiegirl Enthusiast
pixiegirl
Posted

I can tell you every McD's in Hyannis, MA have totally gluten-free fries and so does every McD in Boston that I've been too. I don't just ask the person behind the register, I ask the store manager. I'm a fast and huge reactor and I've never reacted at McD. But you do have to ask if the fryers are dedicated and I go further to quiz them.... nothing else... no chicken nuggets... how about when you are really busy?

Even though they are franchises they are supposed to follow the rules McD sets up so if you find one that doesn't at least take the time to report them to McD.

Susan

VydorScope Proficient
VydorScope
Posted

Just becarefull, I am far form the only one that has had problems at Micky D's. I just tend to aviod all deep fryers anywhere any more. Not worth it to me! I have my own fryer at home when I need a fry fix, and I use REAL POTATEOS and I leave the skins on! Ppl just dont know how to make them right most places any more LOL

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    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

      By Heather Hill · Posted

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    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

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    • trents
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      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
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