Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free, But Now Have Tingling In Feet


xxkristin

Recommended Posts

xxkristin Apprentice

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



The Fluffy Assassin Enthusiast

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?

In my gluten-eating days, the tingling wandered and might have been found anywhere. It wasn't just confined to the feet. Sometimes my head, sometimes my chest right over my heart. (As I thought the problem was poor circulation, this was particularly alarming.) Speaking only for myself, I find that tingling in hands and feet is more likely a result of allergies and incipient asthma. I amped up my squash and apple consumption with good results. It might be worth a try.

AgainstTheGrainIdaho Rookie

Also make sure your B12 is a kind that dissolves in the mouth because the stomach acids will kill the B12 and you'll keep taking huge doses without it ever absorbing into your body. Just found that out from the Dr.

xxkristin Apprentice

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

ravenwoodglass Mentor

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

Look for B12 tablets that are sublingual. They dissolve under the tongue or between the cheek and gums and go directly into the bloodstream.

You can find Sublingual B12 in most pharmacey or grocery stores. There are a lot of gluten free vitamins out there but do be sure to read the entire label as barley and wheat grass can be in some but they will still be able to put a gluten free label on them.

lynnelise Apprentice

I had terrible trouble with tingly spots in my legs and feet. I took B12 shots for awhile and then switched to the sublinguals. I have no issues now that my levels are high! Good luck!

chrissygirl0668 Rookie

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.

Have you eliminated iodine from your supplements and foods? If you have DH that is important to do until the lesions have been gone for a while. Since you have DH make sure to eliminate gluten from toiletries as well. Since celiac can effect the nervous system do try some sublingual B12 to help the nerves heal.

OneStarTattoo Newbie

Thank you for this information. I had the tingling really bad, hands, feet, chest, face etc. I went to the ER one night thinking I was having a heart atack at 30! That was 4 years ago and I was just diagnosed. I wish more doctors knew to check for celiac disease when a patient presents tingling hands and feet. Years of needless suffering could be eliminated. I was sent home with a "We have no idea what's wrong with you, good luck."

I'm going to have my B12 checked, thank you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.