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Gluten Free, But Now Have Tingling In Feet

xxkristin

By xxkristin
in Related Issues & Disorders

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xxkristin Apprentice
xxkristin
Posted

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?

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The Fluffy Assassin Enthusiast
The Fluffy Assassin
Posted

I've been gluten free since the beginning of March. Recently, I've started having some tingling in one foot. I don't know if this has just started after going off gluten or if it was happening before, as I never really paid attention to it until recently, after having seen that this is a symptom of celiac. I had my B12 levels checked and I'm now taking B12 vitamins, as well as vitamin D and magnesium. I've read that taking B12 supplements might help stop the tingling. Does anyone know if this is true? Otherwise, will it just go away on its own after being gluten free for a while longer?

In my gluten-eating days, the tingling wandered and might have been found anywhere. It wasn't just confined to the feet. Sometimes my head, sometimes my chest right over my heart. (As I thought the problem was poor circulation, this was particularly alarming.) Speaking only for myself, I find that tingling in hands and feet is more likely a result of allergies and incipient asthma. I amped up my squash and apple consumption with good results. It might be worth a try.

AgainstTheGrainIdaho Rookie
AgainstTheGrainIdaho
Posted

Also make sure your B12 is a kind that dissolves in the mouth because the stomach acids will kill the B12 and you'll keep taking huge doses without it ever absorbing into your body. Just found that out from the Dr.

xxkristin Apprentice
xxkristin
Posted
  • Author

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

ravenwoodglass Mentor
ravenwoodglass
Posted

Good to know. I just bought Jamieson vitamins because those are gluten free. I'm assuming those are ones that dissolve in the stomach. Is there a certain kind that you know of that dissolves in the mouth?

Look for B12 tablets that are sublingual. They dissolve under the tongue or between the cheek and gums and go directly into the bloodstream.

You can find Sublingual B12 in most pharmacey or grocery stores. There are a lot of gluten free vitamins out there but do be sure to read the entire label as barley and wheat grass can be in some but they will still be able to put a gluten free label on them.

lynnelise Apprentice
lynnelise
Posted

I had terrible trouble with tingly spots in my legs and feet. I took B12 shots for awhile and then switched to the sublinguals. I have no issues now that my levels are high! Good luck!

chrissygirl0668 Rookie
chrissygirl0668
Posted

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.

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ravenwoodglass Mentor
ravenwoodglass
Posted

I was just diagnosed with the celiac sprue as well as the herm/dermititis. I am having problem with my left foot, the toes. Started out tingly feeling, thought it was my sneakers or uggs. Went out bought new sneakers, etc. still having same problem; however, the tingly feeling now has gone and there is pain. I am seeing a podiatrist for second time tomorrow. I am also seeing another specialist on May 20th as the dapsone made me very sick. I am also getting the watery blisters on the bottom of my feet, but that I can tolerate. I bought everything that was gluten free, and thought I was safe; still wasn't feeling well, and noticed on all gluten-free products I bought from a gluten-free supermarket has soy. Get your feet checked out. IT's important.

Have you eliminated iodine from your supplements and foods? If you have DH that is important to do until the lesions have been gone for a while. Since you have DH make sure to eliminate gluten from toiletries as well. Since celiac can effect the nervous system do try some sublingual B12 to help the nerves heal.

OneStarTattoo Newbie
OneStarTattoo
Posted

Thank you for this information. I had the tingling really bad, hands, feet, chest, face etc. I went to the ER one night thinking I was having a heart atack at 30! That was 4 years ago and I was just diagnosed. I wish more doctors knew to check for celiac disease when a patient presents tingling hands and feet. Years of needless suffering could be eliminated. I was sent home with a "We have no idea what's wrong with you, good luck."

I'm going to have my B12 checked, thank you.

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • Jmartes71
      My only proof

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      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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