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Dairy

Chad Sines

By Chad Sines
in Coping with Celiac Disease

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Chad Sines Rising Star
Chad Sines
Posted

I have read a lot of dairy posts in these forums. Just how bad of a reaction do most of you have and how much sets it off? It is appearing like I may have some significant dairy issues that cause some major sinus and GI issues but it an at times seems almost worse than the gluten reaction (not really).

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sb2178 Enthusiast
sb2178
Posted

Acne (I think... hard to tell exactly) and a bit more gas than usual. It used to really cause some abdominal pain, but that has faded with time. Sheep cheese is fine these days, but I wouldn't try mroe than a few tablespoons of ricotta or milk.

quincy Contributor
quincy
Posted

Acne (I think... hard to tell exactly) and a bit more gas than usual. It used to really cause some abdominal pain, but that has faded with time. Sheep cheese is fine these days, but I wouldn't try mroe than a few tablespoons of ricotta or milk.

I was letting a little lactaid milk creep into my diet again for my tea. I also had some cheese and yogurt and within a few weeks I had a bad bout of colitis. I just cant take dairy after years of being a milk drinker....

ringing in ears, sinus and lung congestion and worst of all the colitis problems....

txplowgirl Enthusiast
txplowgirl
Posted

Stomach pain, gurgles,sometimes gas and D, sinus pressure, but the worse of all is 2 to 3 days of irritability, where I snap at anyone over the least little thing plus depressionn and cry over the least little thing. That can be from just trace amounts in anything. I have to be hypervigilant, almost more so than with the gluten.

Chad Sines Rising Star
Chad Sines
Posted
  • Author

I am in a different location with fewer allergens (none i am allergic to) and significant sinus issues that I think is dairy. Definite gi issues from something that i think might be dairy too. can't we just have issues with one food source at a time. lol.

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      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
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      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      dermatitis herpetiformis with all grains

      By Richardo · Posted

      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      dermatitis herpetiformis with all grains

      By trents · Posted

      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
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