Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Skin And Fatigue?


MrMatchStick

Recommended Posts

MrMatchStick Newbie

The other day I had red skin splotches all over my body. Specifically in area's that were once scarred or damaged in some way. Like my tattoo I have turned all red.

I was very fatigued. Next morning I woke up and feel out of bed and couldn't even get back into bed.

Not sure if this is celiac though. I was giagnosed 10 months ago and I am very carefull about my diet though I do slip from time to time. When I do slip I typically get slightly fatigued, tremors in my hands and feat and tingling fingers. Lateley, seems to be getting worse though because I had a beer and had an ear rash for a week which was unusual because it was always on my butocks that the rashes developed.

Anyhow, I don't think I ate any gluten that day and if I did it couldn't of been that much because there was nothing accept maybe a taco which should of been gluten free according to their web site. Was this Celiac....seems that it could be Aenemia...havn't had a chance to re-up my vitamin supply lately. :(

It sucked. I was in bed the whole day. Could barely move.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Authentic Foods
Food for Life



Celiac.com Sponsor (A8-M):
Daura Damm


cahill Collaborator
  On 5/1/2011 at 8:40 PM, MrMatchStick said:

The other day I had red skin splotches all over my body. Specifically in area's that were once scarred or damaged in some way. Like my tattoo I have turned all red.

I was very fatigued. Next morning I woke up and feel out of bed and couldn't even get back into bed.

Not sure if this is celiac though. I was giagnosed 10 months ago and I am very carefull about my diet though I do slip from time to time. When I do slip I typically get slightly fatigued, tremors in my hands and feat and tingling fingers. Lateley, seems to be getting worse though because I had a beer and had an ear rash for a week which was unusual because it was always on my butocks that the rashes developed.

Anyhow, I don't think I ate any gluten that day and if I did it couldn't of been that much because there was nothing accept maybe a taco which should of been gluten free according to their web site. Was this Celiac....seems that it could be Aenemia...havn't had a chance to re-up my vitamin supply lately. :(

It sucked. I was in bed the whole day. Could barely move.

If the taco was eaten at a restaurant there is always a possibility of CC (cross contamination )

For me it does not take much gluten for me to react

MrMatchStick Newbie
  On 5/1/2011 at 10:13 PM, a1956chill said:

If the taco was eaten at a restaurant there is always a possibility of CC (cross contamination )

For me it does not take much gluten for me to react

Used to take allot for me but it's been getting worse. I used to be able to cheat here and there...typically a guiness. But I can't cheat in the least bit these days.

However I never turned all red like that and that was the worst fatigue I have ever felt from the the celiac. I got out of bed and fell right to the ground. It was ridiculious. I swear I couldn't of been that much cross contaminated I don't think.

Could it be iron deficiency and aenemia? The red blotches seem to add up and my primary source of iron is my vitamins which I have not taken in a week. Besides the vitamins my primary source is rice, chicken and potato...lots of chicken and potato. Found out recently bananas is good too.

cahill Collaborator
  On 5/1/2011 at 10:53 PM, MrMatchStick said:
. But I can't cheat in the least bit these days.

However I never turned all red like that and that was the worst fatigue I have ever felt from the the celiac. I got out of bed and fell right to the ground. It was ridiculious. I swear I couldn't of been that much cross contaminated I don't think.

the last time I got CC ( a very small amount) I ended up in the ER with CT scans (head and abdomen) and all kinds of testing,,

as to the anemia ,have you had your vitamins,minerals and iron checked lately ??

eatmeat4good Enthusiast

That kind of fatigue and weakness and falling down is consistent with the neurological symptoms of Celiac. It can get worse..if you keep getting contaminated -whether it is from cheating or cross contamination..it can definitely get worse, mine did. They diagnosed it as "fibromyalgia" but it was Celiac muscle weakness, dizziness, and fatigue. The fatigue kept getting worse until all I could do is sit and stare...like the depression commercials. But it all went away once I got 100% gluten free. It all comes back with the slightest gluten cross contamination, but the length of the reaction can vary from days to a week. In fact, you may find your reactions continue to get worse than what you have already experienced. There have been a lot of posts about that here. You probably ought to get rid of all sources of cross contamination you can find, and no more guiness. In my opinion.

ravenwoodglass Mentor
  On 5/1/2011 at 8:40 PM, MrMatchStick said:

I was very fatigued. Next morning I woke up and feel out of bed and couldn't even get back into bed.

It sucked. I was in bed the whole day. Could barely move.

You need to call your doctor today. It would have been a good idea to have gotten to the ER when that happened. Not everything is celiac. While that could have been a gluten reaction it also could have been something else, like a TIA or a stroke. Do mention this to your doctor and quit cheating on the diet.

MrMatchStick Newbie
  On 5/2/2011 at 11:14 AM, ravenwoodglass said:

You need to call your doctor today. It would have been a good idea to have gotten to the ER when that happened. Not everything is celiac. While that could have been a gluten reaction it also could have been something else, like a TIA or a stroke. Do mention this to your doctor and quit cheating on the diet.

Yea, was going to go to the hospital but was so tired I just fell asleep. When I woke up later that night was starting to feel better and the red splotches all over me were gone so I decided against it (fatigue and red skin lasted about 24 hrs) considering they probably would of chalked it up as Celiac and sent me on my way and in the end just being a waste of my time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Food for Life



Celiac.com Sponsor (A8-M):
NutHouse! Granola Co.


ravenwoodglass Mentor
  On 5/2/2011 at 5:21 PM, MrMatchStick said:

Yea, was going to go to the hospital but was so tired I just fell asleep. When I woke up later that night was starting to feel better and the red splotches all over me were gone so I decided against it (fatigue and red skin lasted about 24 hrs) considering they probably would of chalked it up as Celiac and sent me on my way and in the end just being a waste of my time.

You may still want to mention this to your doctor. You may have a true allergy to wheat in addition to the celiac especially if the blotches were itchy. If they didn't itch then perhaps it was simply inflammation. Glad to hear you are feeling better.

MrMatchStick Newbie
  On 5/2/2011 at 9:02 PM, ravenwoodglass said:

You may still want to mention this to your doctor. You may have a true allergy to wheat in addition to the celiac especially if the blotches were itchy. If they didn't itch then perhaps it was simply inflammation. Glad to hear you are feeling better.

These blotches were different than the celiac rashes. The celiac which was always on my buttocks spread now appearing on my ears also. They are much differnt. Like scabbish I guess is the word I would use and itchy. This was like someone painted me and specifically places where I was onced scarred. Had my appendix removed when I was kid and that scarr turned all red, my chest, my knees, kneck and face all turned a bright red.

The celiac rashes stay a long time these rashes started at night but went away in the morning but the fatigue was still there....unbelievably so.

The celiac has definetly become worse over the last few months. I used to be able to cheat and have some noodles, beer or god forbid, a real slice of pizza ( I live in Buffalo.) Now the slightest contamination bites me and bites me hard. Fatigue, rashes, and the worst is the my hands shaking because I can't hide that...nor the fatigue really.

It was weird. Not typical of celiac.

ravenwoodglass Mentor
  On 5/3/2011 at 12:20 AM, MrMatchStick said:

These blotches were different than the celiac rashes. The celiac which was always on my buttocks spread now appearing on my ears also. They are much differnt. Like scabbish I guess is the word I would use and itchy. This was like someone painted me and specifically places where I was onced scarred. Had my appendix removed when I was kid and that scarr turned all red, my chest, my knees, kneck and face all turned a bright red.

The celiac rashes stay a long time these rashes started at night but went away in the morning but the fatigue was still there....unbelievably so.

The celiac has definetly become worse over the last few months. I used to be able to cheat and have some noodles, beer or god forbid, a real slice of pizza ( I live in Buffalo.) Now the slightest contamination bites me and bites me hard. Fatigue, rashes, and the worst is the my hands shaking because I can't hide that...nor the fatigue really.

It was weird. Not typical of celiac.

It sounds like your body is trying really hard to get you to stop cheating. When we get gluten after we go gluten free the body often reacts more strongly. While I have never had the blotches the fatigue I get from a glutening lasts for about 2 to 3 weeks and my neuro symptoms flare up for a while. For me that means a return of balance issues now but before diagnosis my hands trembled so much that some doctors were convinced I was an alcoholic. When the antibodies flare it causes an inflammatory response. That response can present differently for each of us. My arthritis flares and my tattoos will raise up, perhaps in you that response caused the red blotches. I can't say for sure but I can say that your body is making it clear it doesn't want you to continue to cheat on occasion. While that is a bit of a drag it is your bodies attempt to protect you. I hope the fatigue lets up a bit soon. Some of us find that sublingual B12 can help with that.

quincy Contributor
  On 5/1/2011 at 8:40 PM, MrMatchStick said:

The other day I had red skin splotches all over my body. Specifically in area's that were once scarred or damaged in some way. Like my tattoo I have turned all red.

I was very fatigued. Next morning I woke up and feel out of bed and couldn't even get back into bed.

Not sure if this is celiac though. I was giagnosed 10 months ago and I am very carefull about my diet though I do slip from time to time. When I do slip I typically get slightly fatigued, tremors in my hands and feat and tingling fingers. Lateley, seems to be getting worse though because I had a beer and had an ear rash for a week which was unusual because it was always on my butocks that the rashes developed.

Anyhow, I don't think I ate any gluten that day and if I did it couldn't of been that much because there was nothing accept maybe a taco which should of been gluten free according to their web site. Was this Celiac....seems that it could be Aenemia...havn't had a chance to re-up my vitamin supply lately. :(

It sucked. I was in bed the whole day. Could barely move.

isnt' Rosacea a red blotchy skin condition? I don't know much about it but another poster said she had it from bacterial overgrowth... maybe check out that lead to see? just guessing here based on your recent diagnosis....

ravenwoodglass Mentor
  On 5/5/2011 at 5:30 PM, quincy said:

isnt' Rosacea a red blotchy skin condition? I don't know much about it but another poster said she had it from bacterial overgrowth... maybe check out that lead to see? just guessing here based on your recent diagnosis....

Rosacea is red and blotchy but wouldn't come one day and be gone the next from what I understand about it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      128,867
    • Most Online (within 30 mins)
      7,748

    Amxjo
    Newest Member
    Amxjo
    Joined

  • Celiac.com Sponsor (A20):
    Skout Organic


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Skout Organic



  • Upcoming Events

  • Posts

    • Scott Adams
      Most likely cross-contamination I believe.
    • cristiana
      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase...
    • knitty kitty
      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic...
    • trents
      Welcome to the forum, @jnstefan! She should start feeling better within a week or two if she is truly avoiding gluten and if she isn't also showing intolerance to other foods. It is quite common for celiacs to be dairy intolerant (not just the lactose but the protein casein in dairy) and to oats (protein is avenin). Casein and avenin have structures similar to gluten. We call this cross reactivity (not to be confused with cross contamination). So, you might look at pulling these two food items from her diet to see if there is improvement. But achieving a gluten free state is more challenging than people realize when the first start in. It is hidden in so many foods you would never expect to find...
    • jnstefan
      My 10 year old daughter was diagnosed with Celiac 2 weeks ago. We've been on gluten free diet now for 2 weeks. She still experiences abdominal pain at times , and is struggling with fatigue. What is everyone's experience with how long it takes for the body to heal and stabilize after starting the gluten free diet? Thanks for any feedback!
×
×
  • Create New...