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Foot Pain, Anyone?


Melissaann829

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Ptaradactyla Newbie

So I have been in pain for ten years. So much money down the toilet in podiatrist bills and a major career change because I simply have not been able to stand on my feet all day. The career change ended up being a blessing in disguise BUT 3 weeks ago I went on a gluten-free diet to see if it would help manage some digestive symptoms I had been experiencing. I feel so dumb, I have two family members that are celiac and never really seriously considered this. I did go gluten-free a few times here and there, but when I didn't see an immediate improvement in digestive issues I went back on gluten within a week. But this time I told myself I was going to give this a real try for a few months. After reading some articles, it sounded like I actually do have to give my body a chance to repair. My digestion is still a bit of a mess, BUT my foot pain after about 2 1/2 weeks has disappeared completely. This is foot pain that has been so incredibly debilitating. Diagnosed with plantar fasciitis BECAUSE that is what it presented as. They kept telling me it would heal if I rested. Years of rest, no relief. I even had a foot MRI where they did see tendon inflammation. 10 years of chronic foot pain, I'd be in pain if I was sitting, laying down, standing... nothing would relieve it. And low and behold... it was gluten. It's only been 3 days, so maybe it is a fluke, but I have never been pain-free like this. My fingers are crossed that I see some relief with the digestion soon and this pain continues to stay away. 


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Scott Adams Grand Master

I hope you solved your mystery, because foot pain is the worst! My wife dealt with decades of pain in both her feet due to severe bunions, and finally had surgery to fix them. Let us know how it goes!

plumbago Experienced

I wish my foot pain would go away since I'm on a gluten-free diet, but it hasn't. I have bilateral bunions and a neuroma on my right foot. I also can have foot pain on waking in the mornings, that goes away a bit (as someone upthread commented).

Plantar fasciitis and tendonitis are not the same thing, btw.

Plumbago

 

Scott Adams Grand Master

I'm not sure if you've looked at bunion surgery, but this was the final solution for my wife's foot issues, which were also unrelated to any gluten issues.

plumbago Experienced

Thanks @Scott Adams. Yes, I have gone back and forth many times on this. Podiatrists I've consulted say I'm not there yet. And despite the complaint above, I am managing it pretty well. However, there are several complications that can happen, like in my case, my big toe not being able to function in its weight bearing capacity due to the bunion, so my weight has shifted to the middle part of my upper foot, damaging the ligament(s) and pinching a nerve. But it's not always bad and for some reason has gotten better in the last two years. I went to pick up my orthotics last year, waited three hours, only to find out they didn't put in the order.

My mom had the surgery (in the 80s) and advised me not to get it.

I would like to know how people fare, say, one year on, then five years on, then 10.

Plumbago

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    • trents
      I'm a little confused. In your second post you said, "but these symptoms have been ongoing for a long time before the pregnancy" while in your most recent post you say, "I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea." CBC = Complete Blood Count. This is the typical bloodwork most people would have done routinely with an annual wellness checkup. I would include things like iron levels, various blood cell counts including reds and whites and other infection fighters. CMP = Complete Metabolic Panel. This would measure things like blood sugar, kidney and liver function, plasma proteins and various enzymes. Non cellular things that the body produces. Also typical of an annual wellness check. Have you tried cutting out dairy and oats? These two are the most common cross reactors in the celiac community. I know it must be tough trying to get adequate calories and nutrition when you are pregnant while at the same time eliminating foods that are good sources of those things.
    • Maura Gissen
      They did. I was doing a lot better on the AIP diet. However, I was unable to do the full reintroduction process because I went off the AIP diet when I got pregnant and was experiences chronic nausea. This is what makes me believe it's food related.  I do check all of my food products and supplements and I am very careful about them being gluten free and trying to stay away from corn starch etc. However, I am eating gluten free breads that sometimes have rice flour, yeast, etc. - I seem to do fine with these breads/bread products some days, but then am sick other days.  I have never really had any GI symptoms outside of bloating. My symptoms are dizziness, brain fog, and a general feeling of unwellness or malaise, sort of like when you're going to get the flu.  I have had a lot of bloodwork done over the last three years, but I don't recall doing the CBC, CMP, or a celiac-specific test recently. That's helpful so that could at least provide some insight to see if I'm still being exposed.  Do you see most individual with celiacs having to take a period of time away from even gluten free breads and other cross-reactive foods to let their guts heal? I'm not sure how restrictive to get with my diet again since it's so challenging. 
    • trents
      Did the symptoms commence after you discontinued the AIP diet? Have you checked all nutritional supplements and oral hygiene products for possible gluten content? Have you recently checked all the labels of purchased processed foods in your pantry to check for formulation changes that might have introduced gluten? Historically, when "glutened" did you have GI symptoms or were you a "silent" celiac whose symptoms were non GI. Is what you are experiencing now like what you were experiencing at the time of diagnosis? Have you had recent blood work done (CBC and CMP) and if so, were there any parameters out of norm? I know you have Hashimoto's but you say that is well controlled now? It certainly wouldn't hurt to get celiac antibodies rechecked. Because you are essentially gluten free I would not expect to see any big departures from normal levels but if there are even weak positives it could indicate you are getting glutened from some unexpected source.
    • Maura Gissen
      Hi Trent! Thanks so much for your warm welcome and questions! They do, but these symptoms have been ongoing for a long time before the pregnancy. However, it's hard for me to know what's a celiac response vs. a Hashimotos one. I haven't, maybe it's worth getting those checked again? 
    • trents
      Welcome to the forum, @Maura Gissen! Don't those same symptoms often come along with the territory when pregnant? And then throw in Hashimoto's.  Have you had your celiac antibody levels checked recently?
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