Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac ? Or Gluten Intolerance?

collgwg

Recommended Posts

collgwg Contributor
collgwg
Posted

it all started back in feb 23 i started having diareah

so i stoped taking my vit, it kept up, ok so i quit my new pain meds,(for back surg a couple of years ago, can not seem to get pain management),

so im still having diareah gone to the dr on the 3rd of march mentioned it "its just the stomach flu" ok 2 weeks passed its getting worse im now off all medications including nexium

go back to dr she gave me some meds to take to stop the diareah omg bad idea major pain in right side , bowels making all sorts of noises, stoped taking that right away i just took one, ok go back to dr she gave me new pills to take to cause diareah (wtf?) ok took one of thoes gawd awful pain, and of course made it worse

then i developed asthmatic cough and feeling so run down and horrible then im puking and water is not even staying in me what ever went in came out with in the count of 10

so i was rushed to the hosp, i was really bad dehydrated and at one point i was passing bowel tissue had an emerg colonoscopy but there was fear my bowels were coloapsing

after the colonoscpoy i was sent home to go on a liquid diet

i go back to the dr and he said he did not find anything and that he wants a upper gi done i have to go to the xray dept on the 6th of june and wants to test for celiac

so i talk to my family members and yes there is celiac in the family

i get blood work done not sure of the results yet

i went gluten free 4 days ago been off lactose since feb 29th

so here are my symptoms (wondering if this could be celiac)

the obvious diareah lol

bloating after consumeing beer,pasta ect

joint pain

joint swelling

all over body swelling feeling

retaining fluid

back pain

asthmatic cough

intensional pain upper and lower

right side pain more so than left but left does hurt

depression and irritably

i have been off work for about 2 months now (cashier grocerie store)

and is there withdrawl symptoms of going gluten free?

and i have this test coming up what type of prep should i do before this test all the dr said do not eat anything aftermidnight

i look forward hearing advice and imput on this thanks in advance

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


collgwg Contributor
collgwg
Posted
  • Author

oh yea and to add to the symptoms

i have a horrible salty taste in my mouth that wont go away

and im having muscle cramps from the neck down it hurts to laugh cough or even talk loud

ravenwoodglass Mentor
ravenwoodglass
Posted

Your poor thing you are really going through hell right now. Yes you could be celiac especially if you have other celiacs in the family. Have they done any blood testing for celiac? If they haven't call your doctor tommorrow and ask for the blood tests to be done. Do be aware that those and biopsies can have false negative results though. I really hate to have to say this but if they are going to be testing you for celiac you can't go gluten free yet. I do so wish doctors would do upper and lower scopes at the same time!!!!!!!!! If you feel you can stick with the diet without a 'formal' diagnosis then continue on the diet strictly but if you are gluten free testing will have a really, really good chance of being a false negative.

collgwg Contributor
collgwg
Posted
  • Author

thank you for your response :) oh my goodness

ok so i eat gluten i feel horrible i get diareah and super bad cramps and my cough gets really bad my back akes all the other symptoms that i said above act up i really do not want to feel like this for the rest of the month either

can i mabe eat gluten a week before the test in june 6th ? and get a possible diagnosis ?

yes there are other family members who have celiac my dad's brother, and possible his mom, a couple of cousins

and yes i have done blood work the results should be in

soon i would think

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,177
    • Most Online (within 30 mins)
      7,748
    LaurenV
    Newest Member
    LaurenV
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing

      By Wheatwacked · Posted

      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...