Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lost 4 Pounds Since Going Gluten-Free


CruiseWriter

Recommended Posts

CruiseWriter Apprentice

I went gluten-free a month ago after endoscopy/colonoscopy was done. No diagnosis but I went gluten--free anyway. Lost 4 pounds since then; I am now 241. Still a size 18/20 but everyone says I look good. I do exercise regularly,walk 45 minutes a day and use hand weights. I'm very fit and toned but I am retaining a ton of fluid. I was hoping to lose more than a few pounds,but I guess that's something. I go back to GI on Friday for a follow-up. He says I am so not Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AgainstTheGrainIdaho Rookie

I had the same issue and found out,when I lost weight, cutting out Wheat and gluten made a big difference.I also went and got tested and I showed an allergy to wheat but not other gluten grains. Your issue might not be a gluten issue either. A lot of people assume that a wheat allergy is also a gluten allergy when in fact it isn't that way. The first week I cut out wheat, I lost a good pant size and my bulge around my hips were almost down by half! I was so excited that I continued on the wheat free diet and when I slip up I notice I retain water A LOT! Plus I feel bloated and constipated too. So going wheat free makes my body a whole lot happier for sure! Just test it out. Go wheat and gluten free for a few weeks and see what happens and then add back in other gluten grains(Spelt, Kamut, barley) and you should tell a difference right away. Also remember that there are SO many different places to find gluten. Check THIS forum out to double check to see if you are on a true gluten free trial period. Lots of spices, vinegars, food flavorings and personal products can all have some form of wheat and gluten in it. Good luck!

L Ceezy Newbie

Many GI doctors don't like the diagnosis of Celiac. I'm not sure why, but I know I dealt with a real jerk who came in and said "good news! you're not sick!" after doing a colonoscopy on me (because he makes more money off of that, my bf knows him and warned me he would do that) when I came in asking for an endoscopy. Like oh good, so I guess the diarrhea 8x a day is nothing to worry about then, since according to you, I'm not sick, right? And when I told him I already had a great relief of symptoms since not eating gluten, he tells me I don't have a problem with it and am only making life hard for myself by having an unnecessary restrictive diet. So I asked him about my stomach pains and bathroom issues, and he tells me I have IBS (It's BullShit) and tries to prescribe me Prevacid for the 800th time in my life. I then ask him about my chronic fatigue... he says it's not related!! Right.

So I feel you with your experience with your GI and def believe that we each know our bodies best. If you feel a positive difference, then continue it! My bf owns a blood work lab so I was constantly testing myself for everything and he tells me about new tests that come out all the time, so things are constantly changing. And with the lack of funding that research for Celiac disease gets because of it's lack of drug treatment, the testing still has a long way to go to being fully comprehensive like AIDS or pregnancy, which can still both present false results too.

I fully believe you'll continue to see improvements in your health if you are serious about going gluten-free, but it does take time. It's worth it. Good luck! :)

bloomgirl Newbie

Congratulations on your weight loss!! I understand that it can be tough to lose weight when your body is sick. Since going gluten free I have lost 6 lbs in the last three weeks. I had problems with water retention as well and it was so painful to walk. As painful as it is I would manage to walk 5-6 miles per day and not a drop in weight.

shadowicewolf Proficient

I understand the weight thing completely. My case was a bit diffrerent. Originally before all of this mess started i was just under 180. Then i got sick and was diagnosed after loosing about 20lbs in about a month (!!!) not the best way to do it. I have since lost another 5 since starting this diet. I've found that my previously tight clothes are no longer tight (yay). But i'm not exercising either (still dealing with side effects). So i'm hoping to keep loosing till i can get down to a 'healthy' weight (which for me would be around 130).

Good luck :)

roguegrl Newbie

Does anyone know of the reasons why dropping gluten from our diet has such a significant effect on our weight?

Since going gluten free three months ago I have lost 20 pounds! And I am eating constantly. Processed foods also have been cut out of my diet, for the most part, with fresh and natural products being supplimented and all meals being cooked from scratch. My energy level is through the roof and my anxiety has dropped significantly... unforuntaely so has my wallet, with having to purchase cloths that don't fall off when I walk, but c'est la vie.

color-me-confused Explorer

Does anyone know of the reasons why dropping gluten from our diet has such a significant effect on our weight?

I don't have any idea. I just know that I'm dropping about 2 lbs per week since going gluten-free and am about to need new pants and more holes in my belt. Over the past 10 years or so I've had a terrible time losing weight when really trying at various times - even careful calorie counting, complete with a food scale, a food diary, and lots of exercise didn't do it. Also my body fat % is down 1.5%, after not budging for years.

Can't say I'm complaining though. Another 10 lbs and I'll be at what I weighed at college graduation 15 years ago.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Yeah, my theory is that gluten actually adds to the weight, so once removed your body (in theory) will become healthier and loose said gluten'd weight :D

color-me-confused Explorer

Yeah, my theory is that gluten actually adds to the weight, so once removed your body (in theory) will become healthier and loose said gluten'd weight :D

Another theory that occurred to me today: this new diagnosis has taken the fun out of eating. Unless it's produce or something I've made or a specifically gluten-free product...well...food is now making me anxious.

  • 3 weeks later...
jemms Apprentice

Another theory that occurred to me today: this new diagnosis has taken the fun out of eating. Unless it's produce or something I've made or a specifically gluten-free product...well...food is now making me anxious.

I agree with you! I dont look forward to eating anymore. In a sense it is good for me because I was consumed with food before all this. Now it is eating whatever I can to make sure I get the most nutrients possible. Not much fun anymore...and at times I do get anxious as well because I worry about CC so in that case I sometimes just go without eating if I am out and about.

Also, I would suggest cutting back on your dairy intake if you havent already. I cant tolerate dairy anymore and since stopping it I have lost about 30 lbs. Congrats on your 4lbs! It is a great feeling to finally see that scale move down!!

Looking for answers Contributor

Does anyone know of the reasons why dropping gluten from our diet has such a significant effect on our weight?

I don't have an answer for that either, but I found it true in my case as well. I was always 150-160, but I'm almost 5'10, so I was average weight. Then I went gluten free and started exercising regularly and dropped to 125! On my doctor's request, I put on 10 pounds and have stayed this weight for 5 years. My guess is when you eat foods you're intolerant to it must mess with your metabolism.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,058
    • Most Online (within 30 mins)
      7,748

    Magali
    Newest Member
    Magali
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...