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Went Gluten-Free In August.. Weight Issues Since 07


PadmeMaster

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PadmeMaster Apprentice

In August, my mom found something about Gluten Free dieting helping with pains such as I had. Ever since I was 5 months old, I've had joint pains. I've been to doctors: When I was 5, when I was 10, 15, etc. When I was 16ish, The doc told me that I have Hyper Mobility Joint Syndrome, and that it's "benign." If that was true, I have a very very severe case, but I have a good reason to believe it isn't.

August '10 I went Gluten Free. At the time, it consisted of eating potatoes and Gluten Free Chili (Hormel marks their "with beans" Chili as gluten free; it was the only one I could find at the time). I made a few mistakes, at least, though. I destroyed most of my knee pain in the first month, but still had wrist pain. At the time, I weighed about 150/160 after losing weight (and gaining it back) with HcG diet in the past. I hurt my wrist pretty bad in September (moving baskets into a hotel; we were traveling for work) and wore a wrist brace for about 2 months because of it. After that, I had no wrist pain until I drank a "Green Machine" (one of the Naked Juices) without checking it. That's when I knew for sure that I had a gluten intolerance. I now eat a ton of prepared foods, mostly recommended by someone with Celiacs that plays a game I play. Of course, they are high sugar/carbs/calories/fat, and cost $5-7 for a small container.

So now, after moving and eating badly (understatement: Hamburgers without the bread are just as bad as WITH the bread, if you eat a large fry instead of a small.) I weigh almost 185, my highest yet. I am not fond of meat (unless in taquito form) and am not interested in doing HcG again because it works best with meats (recommended plan; we've tried smoothies instead though). What I'd like is something like Nutrisystem where someone tells me what to eat.

So IS there a program like that for those of us who need Gluten Free?


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    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
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      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
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