Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disneyland

beatthewheat

Recommended Posts

beatthewheat Newbie
beatthewheat
Posted

My best friend invited me to go with her and her family on an RV trip to Disneyland for her sixteenth birthday... Her family believes that being gluten free is a fad and doesn't recognize that it is serious.. My mom doesn't want to let me go because she is worried about how im going to eat.. I have only been gluten free for 5 months and i don't want my intolerance keeping me from going places and having fun especially missing out on my best friend's 16th birthday!! Can anyone share their experiences with Disneyland or give me any tips? I would have to pack a weeks worth of food... also any advice about dealing with her parents disbelief? thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

At Disneyland, it is easy to eat gluten-free. They do a very good job with that.

If this family you are going with will not take your illness seriously, you should not go. You and your mom could talk with them. Offer some solutions like bringing your own food and pans. & then making your own stuff to eat. Money for food at Disney. Even if they take the gluten-free thing seriously, you can't expect them to understand or not forget.

If they still think it's silly, you have to realize that this isn't a safe place for you or me. If you had an allergy to peanuts but they wouldn't give up on having PB in the RV, you couldn't go.

I am hoping if your mom talks to them, they will take it seriously. But you have to realize that there are a lot of people in the world who only worry about themselves.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

My best friend invited me to go with her and her family on an RV trip to Disneyland for her sixteenth birthday... Her family believes that being gluten free is a fad and doesn't recognize that it is serious.. My mom doesn't want to let me go because she is worried about how im going to eat.. I have only been gluten free for 5 months and i don't want my intolerance keeping me from going places and having fun especially missing out on my best friend's 16th birthday!! Can anyone share their experiences with Disneyland or give me any tips? I would have to pack a weeks worth of food... also any advice about dealing with her parents disbelief? thanks!

I don't have any experience there, but there are many threads here about eating gltuen free at Disney. Disney does great with gluten-free, but I think you do need to call ahead to get the gluten-free options. The problem will be your friend's parents. Can your mom talk to them and explain that this is a serious medical condition? Or perhaps you could get a drs note explaining your need to be gluten-free? Would they be paying for your food on this trip or would you be buying your own meals? What would you do if they took you someplace to eat where there is nothing safe? Are you outspoken enough to ask for safe food in places and speak up when somethign is not right (like if the salad you order comes out with coupons or something?) Because it sounds like these adults will not support you if you do. Will you have your own cell phone to call your parents or someone else to ask for help if something major happens (like all your gluten-free food is ruined/lost/not enough)? What is your emergency plan if these people sabotage your food (seriously it has happened to people here by other that thought this was all in their heads) or just refuse to take you to the Disney restaurants that have gluten-free options? Your mom has good reasons to be concerned about these people not taking your diet seriously. I think you will need to convince her that you can stand up for yourself and you have a back-up plan if things go wrong.

Looking for answers Contributor
Looking for answers
Posted

I have an annual pass and visit/eat there regularly. They are very accomodating and knowledgable - I've never had a problem. No need to call ahead, you just need to pick up the gluten free list from City Hall on your way in.

Coleslawcat Contributor
Coleslawcat
Posted

We went last month and it was a breeze to eat gluten-free there. Just pick up the gluten-free listing of foods at City Hall when you get there. It gives you a list for all of Disneyland and California Adventure, including the carts. I went into the pizza restaurants in Tomorrowland (sorry can't remember the name) with my list in my hand. The employee saw it and told me to go to the front of the restaurant and the chef came out and talked to me about what I wanted. He assured me it would be made safely. I felt like I was in very good hands there.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. PixieSticks
      - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply.
    2. BoiseNic
      - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It...
    3. knitty kitty
      - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches. Really works well without hurting the digestive tract. Riboflavin B2 also helps with migraines. Most newly diagnosed people have vitamin and mineral deficiencies. Check with your doctor and nutritionist. If you follow the updated...
    4. Scott Adams
      - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    5. Scott Adams
      - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,537
    • Most Online (within 30 mins)
      7,748
    Fran Slone
    Newest Member
    Fran Slone
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • PixieSticks
      Working in a kitchen with gluten?

      By PixieSticks · Posted

      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Skinesa

      By BoiseNic · Posted

      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      Feeling ill

      By knitty kitty · Posted

      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      Advantages vs. Disadvantages of having an official Celiac diagnosis

      By Scott Adams · Posted

      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      Feeling ill

      By Scott Adams · Posted

      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...