Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crappy Gi Visit


CruiseWriter

Recommended Posts

CruiseWriter Apprentice

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Don't be surprised if the 'acid reflux' clears up gluten free. I was told that also and was given a handful of meds to try and told to call and let him know what worked best and he would give me a script. I put the samples in a drawer and although I did need to use Pepto Bismal a few times within a short time gluten free the stomach issues were a thing of the past.

If the diet is working for you stick with it.

Takala Enthusiast

More like The Beginning.

Roda Rising Star

I had horrible acid reflux before being diagnosed. I REFUSED medicine and my pcp at the time thought I was stupid. I didn't want a bandaid, I wanted to know why I suddenly had reflux. I did rely on tums for the next 2 years after when needed. When I went gluten free that was my first symptom that cleard up!! Go with your gut instinct. :P

L Ceezy Newbie

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

Grrr!! Perhaps we went to the same doc! Completely pisses me off. I'm having an attack right now so I can't type too much, but same thing happened to me and worse. Luckily I have a great GP who told me that ya that guy is a jerk, and he only took a few biopsies and it doesn't mean anything (my GI pushed a colonoscopy on me instead of the endoscopy I came in asking for, so he could make more money). I don't understand how they look at one or two things and then tell us we're not sick when we know we are sick! I was already gluten free for many months when I even went to my doctor to tell him this is what was going on, and there was no way I was going to start eating it again just to get tested.

Acid-reflux meds don't do anything. And mild erosion is common?? It's not meaningless, he's crazy. Like, it's common in people complaining of stomach issues I bet... cause they have a problem! Def don't listen to this guy, his ego is out of control. He thinks he knows everything and you can't possibly know anything about your own body because you did't go to school for it. Do what you know is right, regardless of what any tests say because those are updated and discovered all the time!

Marilyn R Community Regular

Went to GI for follow-up after colonoscopy/upper endoscopy in March. Follow-up lasted all of 5 minutes,if that. He said colonoscopy was normal,endoscopy showed mild erosion,but that's common,so he wasn't too concerned. Said biopsies were all normal,no Celiac or gluten sensitivity. I'd told him I'd gone gluten-free and felt better and he said if I wanted to stay on diet I could,but I don't need to. I'll need acid reflux meds forever,he said. Follow-up in a year's time. The end.

This is going to sound like a fairy tale but I swear it is true. I chose a gastro in my smallish town after I went gluten-free. He spent a complete hour with me on my initial visit, and I was seen within five minutes of my appointment time.

It took me a few visits before I would agree to an endoscopy, and he scheduled it himself, and gave me the instructions for prep himself. (I was a hard sale, because I knew it would turn out negative because I'd been gluten-free too long.)

After the procedure, I received a call from his office that I needed to schedule an office visit. That kind of ticked me off, because I thought that the results should be reported with a phone call, and my crappy insurance has a $50 co-pay for specialists.

I showed up for my appointment with an attitude. Dr. Ngo reviewed each and every symptom I described on my initial office visit. (15 plus or minus, including GERD). I told him that every symptom was better. Each symptom was questioned one by one.

Then he said "Your biopsy was negative, even under the microscope. I cannot diagnose you with celiac disease, but I highly recommend that you continue what you are doing."

Then he told me there would be no charge for my visit because it could have been handled with a phone call. He wanted to make sure I understood, so he had me come in. I offered to at least give them my co-pay, and they refused.

I currently have no current gastro problems. I'll still see him once a year because he's so nice, and I'll always be indebted to him when I look at the faces of doctors who ask me if I've been diagnosed and then dismiss that I have a gluten intolerance or inconclusive results from testing. Dr. Ngo gets it. And he understands that those of us with inconclusive test results need to understand.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,662
    • Most Online (within 30 mins)
      7,748

    Lieke
    Newest Member
    Lieke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Part of the body's immune reaction to gluten is to release histamine.  This tastes salty, just like tears and snot.        
    • knitty kitty
      I've had dry eye symptoms.  The eye drops did not help me.  What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins.   Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins.  Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products.  The eyes make a film of healthy omega three fats which keeps the eyes lubricated.  Insufficient omega threes can show up as dry eyes.  Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins.   Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health.  Taking a B Complex vitamin supplement is beneficial.  Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine.  The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products.   Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.).  These can dry out the eyes, too.   Staring at computer screens can be detrimental because you STARE and don't blink.  The tear ducts that keep the eyes lubricated are in the corners of the eyes.  Take breaks from staring at the computer screen.  Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye.   My eyes have sustained permanent damage because of nutritional deficiencies.  My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease.  My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV.  My vision goes gray and dim.  It's much worse than "optic snow".  It can take  hours or days for my vision to return.  My ophthalmologist said my vision might not come back from that sometime.  My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down.  The optic nerve uses lots of Thiamine.  Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly.  My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity.  I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract.  Riboflavin,  Pyridoxine B 6,  and Vitamin A are also needed for eye health.   Thiamine insufficiency can also cause anxiety.  Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering.  Hope this helps!  
    • cristiana
      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
    • Scott Adams
      Let us know what you find out, the reference ranges should appear on the original test results.
    • MommaBear82
      Hepatotoxicity DOES happen with kratom. It happened to my husband. He turned yellow with jaundice and his urine became brown. This was only after taking it three times. I know because I was the one who gave it to him, unfortunately. People should realize that it can and does happen. 
×
×
  • Create New...