Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questioning Diagnosis

ILOVEOMC

Recommended Posts

ILOVEOMC Enthusiast
ILOVEOMC
Posted

:D Hi,

This is my first post after lurking here for several months. I am impressed by the people here and have learned alot. My guestion is about my child . After stomach hurting for several months the Dr. did a scope and biopsy and diagnosed Celiac based on the findings. The only problem I have is that the week before the scope and biopsy he had the stomach flu with fever and I wonder if that could have made the findings look like Celiac. They did blood work following this and the only elevation was the anti gliadin IGa . Only up a little. 5.4 from the acceptable 5.0. Hope you all can shed some light on this and help us out. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

That would not cause a biopsy to come positive for celiac if it was not. Your child does have celiac. A positive biopsy does not lie...there is clearly indication of damage which says the gluten is destroying his intestines. A stomach flu would not cause damage like that.

ILOVEOMC Enthusiast
ILOVEOMC
Posted
  • Author

:D Thanks Kaiti,

I wonder why his blood tests didn't show more elevations then only that one. Do you have any idea? He has been on th e gluten-free diet for several months now and the tummy aches have gotten a lot better. Now my daughter is complaining of her tummy all the time so I think....here we go again. I love this board though and look forward to being a member.

KaitiUSA Enthusiast
KaitiUSA
Posted

Some tests are more accurate then others, some labs are better. There can be a lot of factors to why the blood tests did not show extremely elevated levels. The fact that he has damage though gives it away that he has celiac. I am glad he has been feeling better. Welcome to the board

swittenauer Enthusiast
swittenauer
Posted

My husband was just told by looking at his blood tests that he has celiac but they are giving him a biopsy & colonoscopy next week. They said they are checking for Crohn's disease. Is that normally associated with celiac? I feel totally in the dark on this topic.

KaitiUSA Enthusiast
KaitiUSA
Posted
My husband was just told by looking at his blood tests that he has celiac but they are giving him a biopsy & colonoscopy next week.  They said they are checking for Crohn's disease.  Is that normally associated with celiac?  I feel totally in the dark on this topic.

<{POST_SNAPBACK}>

Crohns can be associated with it. They are probably just checking to rule it out. I was also checked for that. Do you know what blood tests he had? some blood tests are very accurate. A biopsy can be good for ruling in celiac but it can't rule celiac out. If there is little or no damage yet it will come back negative so be prepared for that.

Merika Contributor
Merika
Posted

A little over the #s is over the numbers. Mine was over the adult limit by maybe 2 or 3, my mom's was over by about 30. It all means positive. I felt sicker than she did, and have been having major celiac problems for longer than her.

Welcome to the board :)

Merika

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ILOVEOMC Enthusiast
ILOVEOMC
Posted
  • Author

Thank you Merika for sharing your numbers and advice. There are still times I wonder if he really has celiac disease but they think he was just starting it and we caught it early and maybe that is why the numbers were only slightly elevated. It helps to have you "experts" keep us on the straight and healthy narrow. :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

      Take it easy! I was just prompting you for some clarification. In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution...
    2. Mynx
      - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a...
    3. Mynx
      - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate...
    4. trents
      - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those...
    5. Mynx
      - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,875
    • Most Online (within 30 mins)
      7,748
    Charli.stoz09
    Newest Member
    Charli.stoz09
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
×
×
  • Create New...