Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Chapped/cracked And Tingling Lips


xxkristin

Recommended Posts

xxkristin Apprentice

I've been gluten free since March and have been taking sublingual B12 vitamins for about 2 weeks now. A couple days ago, the corners of my lips became really dry and cracked to the point where it's painful to open my mouth. My lips also seem to be peeling almost and yesterday, my top lip started tingling.

I know that you can get tingling in your feet and hands from celiac, which I do sometimes, and I heard that taking vitamin B12 can help. But I'm confused as to why all of a sudden, this would be happening to my lips. I looked into it a bit, and found that I might need to take more B vitamins? Does anyone know if this would help? And if it sounds like a vitamin problem in the first place? I'm really hoping I don't have Sjogren's Syndrome, although I don't have dry eyes, so I don't know if I do.

Also, I've been using Neutrogena lip moisturizer with SPF 15 because I saw it on a list that was posted on this board of gluten free Neutrogena products. I wonder if maybe this is the problem. Has anyone else had any problems with it?

I'm going to look into seeing a specialist to see if they can help out with all of this. Unfortunately, my doctor doesn't seem to know a lot about celiac, even though he said his sister has it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Luddie Newbie

I've been gluten free since March and have been taking sublingual B12 vitamins for about 2 weeks now. A couple days ago, the corners of my lips became really dry and cracked to the point where it's painful to open my mouth. My lips also seem to be peeling almost and yesterday, my top lip started tingling.

I know that you can get tingling in your feet and hands from celiac, which I do sometimes, and I heard that taking vitamin B12 can help. But I'm confused as to why all of a sudden, this would be happening to my lips. I looked into it a bit, and found that I might need to take more B vitamins? Does anyone know if this would help? And if it sounds like a vitamin problem in the first place? I'm really hoping I don't have Sjogren's Syndrome, although I don't have dry eyes, so I don't know if I do.

Also, I've been using Neutrogena lip moisturizer with SPF 15 because I saw it on a list that was posted on this board of gluten free Neutrogena products. I wonder if maybe this is the problem. Has anyone else had any problems with it?

I'm going to look into seeing a specialist to see if they can help out with all of this. Unfortunately, my doctor doesn't seem to know a lot about celiac, even though he said his sister has it.

I haven't experienced the lip chapping recently but I think you're on the right track with the b vitamins. Maybe you need to add others. There are some good B-100s or B-75s on the market. Get the timed release ones otherwise I suspect they go in and out rather quickly and you want to keep bathing your cells as much as possible. I've been taking Solaray brand B-75s for several months and don't seem to have any negative reaction.

I think I'd also stop the neutrogena as soon as you can. Maybe just a tiny bit of plain old vaseline would help. Are you getting blood tests to check the level of your B12 to make sure your taking the correct amount?

Luddie

xxkristin Apprentice

I am going to stop using Neutrogena products in general. Because while it's on the gluten-free list, I'd rather not take any chances. And I've also reacted to another Neutrogena product that doesn't seem to have any gluten containing ingredients in it based on the label.

I did have my B12 level checked about a month ago and I was taking just regular B12 pills that you swallow for about 2 weeks. But then people on the board suggested taking sublingual B12 as it surpasses the digestive system. I'm only taking 1 B12 pill a day though, because my doctor didn't actually tell me how much I needed to take after getting a blood test done. I'm going to talk to him again and ask him if he can tell me specifically how much I need to take.

Thanks for the info. I'll look into those B vitamins as well.

I have an old edition of the Prescription for Nutritional Health book, and for celiacs, it recommends B12, B complex injections, and extra B6 or vitamin B complex. I'm guessing maybe I should take those ones too then?

ravenwoodglass Mentor

The cracks in the corners of the mouth are an indication of the need for more of the B vitamins. I would suggest a vitamin that is a 'Stress' vitamin which will have high levels of B's and C. Keep taking the sublingual B12. Also drop the lip product. Don't know if it is the case for you but soy in addition to gluten will make my lips peel and be raw. I found if I get enough good fats in my diet I don't need anything for chapped lips. The suggestion of petrolum jelly is a good one or even some coconut oil if you tolerate coconut.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    2. - Aretaeus Cappadocia replied to Ginger38's topic in Coping with Celiac Disease
      5

      The Struggle Has Overtaken Me

    3. - Aretaeus Cappadocia replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten challenge - Need some guidance

    5. - cristiana replied to cristiana's topic in Related Issues & Disorders
      3

      Low iron/high normal haemoglobin

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,179
    • Most Online (within 30 mins)
      10,442

    Nancy sirois
    Newest Member
    Nancy sirois
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      Ginger38, that sounds very difficult.  Each dietary restriction makes it harder to figure out what to eat. Before my celiac diagnosis I already watched out for my cholesterol level and migraine triggers, but those are much easier than diabetes restrictions. One “bad” meal isn’t that much of a problem for cholesterol levels, and my migraines only happened if I consistently ate the triggers. After many years I’ve figured out how to bake gluten free but I think many recipes have more starch which wouldn’t work for diabetes. If you go with the elephant eating analogy, I think the first portion to work on would be the diabetes, since the immediate consequences of not being careful (passing out from low blood sugar, or diabetic coma from high blood sugar) are so severe. The next portion would be celiac. The serious consequences aren’t as immediate, but if you have celiac disease, I think of eating gluten like a booster shot - revving up the immune system, but to attack yourself leading to long term damage. It sounds like you are experiencing this damage now. I did a google search on “gluten free food for diabetics” and a number of sites with advice came up.  If your insurance will cover it and you can find one, a registered dietician who knows about both diabetes and celiac disease might help you figure out what to eat safely. Hopefully my post will both scare and encourage you, as requested, with a big dose of compassion because this sounds very difficult and you are clearly suffering.
    • Aretaeus Cappadocia
      Reading the original post on this thread made me think of "How To Eat An Elephant". The key point is that a whole, big problem can seem insurmountable but if you break it into bite-sized pieces it is much easier to accomplish. Here is the google description. It's not bad: If you're facing a daunting goal, you can use these steps to "eat your elephant": Identify the Elephant: Clearly define the large project or goal that feels overwhelming. Break it Down: Divide the major task into smaller "bite-sized" pieces. If a piece still feels too big, break it down further. Prioritize: Decide which "bite" to take first based on necessity or impact. Focus on the Now: Instead of worrying about the whole animal, focus only on the single step you are taking right now. Maintain Consistency: Progress comes from taking the "next right step" every day until the task is complete. Celebrate Small Wins If I understood Ginger38's post correctly, you are facing the prospect of a gluten challenge, but you are already eating gluten on an intermittent basis. It also sounds like many of the symptoms you attribute to gluten consumption are in full expression. Step back and take a deep breath. Get a notebook and start a gluten-related diary. Don't try to make it perfect; just record what you can about food intake and what you experience as you go along. Talk to your Dr's office (nurse, Dr, whomever) about the challenge. The most rigorous challenge is for someone who has already gone truly gluten free but now needs a clear diagnosis. Someone who is already eating gluten should not need as much "challenge". Even at that, google describes an example challenge as 1-2 slice of bread or 1/2 cup of pasta a day. If that describes your existing diet you are already there. For the moment, try to focus on getting past the challenge and test. Once you have the results, start planning accordingly.
    • Aretaeus Cappadocia
      I don't know the answer to your question any better than a google search, but I am sure someone else will step up and answer. I am popping up to recommend that you keep a careful diary (in case you weren't already). Try to catalog what you are eating and experiencing. Bring a copy to your next visit (and if you have access to the Dr, also send a copy a couple days in advance). Don't assume that they will read it. They might, but they also might be under tremendous time pressure and not get to it. Two other suggestions: if your healthcare provider has a web portal, sign on and search for "gluten challenge". They may have a standard page and Dr assumed you would find it on your own. If that doesn't work, call the Dr's office and ask the office for their official advice. You probably wouldn't need to speak to the Dr directly. There should be some nurse or staff member who could answer that
    • Xravith
      After few months going gluten free, I decided to reintroduce gluten in my diet so I can do a proper diagnosis for Celiac disease. During the gluten free period I felt incredibly good. I stopped having hypoglycemia symptoms, I gained some muscle (Still, I am considerably underweight) and my anxiety totally disappeared. I felt totally like a new person. Now, I almost reached the second week of gluten challenge and all my symptoms are progressively coming back. The first days I was ok, just a bit of acid reflux I could control with medicines. However, after the first week I started to feel real stomach pain and tiredness, my face is growing acne and sometimes (specially when I walk) i feel painful migraines.  I am afraid If I am eating too much gluten or not enough, the "4 slices of bread" indication confuses me. I am actually eating 20 g of bread, 3 biscuits and 40 g of croissant each day. My doctor was not very specific when he gave me the medical order for the gluten challenge, so I invented my own daily gluten menu. Do you have any suggestions? 4 weeks will be enough to do the blood test with my current gluten intake?  Thank you
    • cristiana
      V. interesting. It might well explain the tiredness, and the increased headaches, then.   I'm trying to get my TTG numbers down a bit by avoiding eating out.  Hopefully then if I've healed more I guess I will be able to absorb more iron.  Will find out at the next blood test in the autumn. Thanks so much for your help.  
×
×
  • Create New...