Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin K Deficiency


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

For quite a while now I have wondered why I have bright red spots on my torso, and in the last few months I have had a red bruise like rash on my neck and on my face. If one of my kitties scratched me I would have bleeding under the skin around even the tiniest scratch and the smallest bump or blood draw would leave a nasty bruise. Years ago my doctors told me the bright red spots that look like red moles were 'normal'. With the rash on my neck, which had come and gone for a couple years but has now been present consistently for months I was fearful I might have something like lupus but since I have no insurance now I haven't seen a doctor. I also had a couple dark bruises inside my mouth and one on my lip that I had been worried was cancer, but again no insurance so....

Fast forward to the last couple of weeks. I needed to get some more vitamin D so the last time I went to get some I saw some that combined D3 and K2. I figured why not try it as it had the D level I needed and they were out of that level in just D. I noticed that on the days I remembered to take it, like every other day the 'rash' on my neck would be less pronounced but if I forgot it for a couple days in a row the rash would be back full force. So a couple of weeks ago I started taking it every day. Not only is the rash now totally gone but the bruises in my mouth that I had feared were cancer are also gone and the bright red spots on my torso are also fading.

I did some searching this morning on Vitamin K on Medscape. Vitamin K deficiency is considered to be rare but one of the risk factors for it is celiac disease. I thought this information might be of use to others as doctors never thought to check for it. So if you bruise easily, have mystery red spots or bleeding under the skin do ask your doctor to check for it as it can become serious if left unchecked.

It might be a good idea to specifically ask for K levels to be checked when doctors do a vitamin and mineral panel at diagnosis since no doctors ever checked my levels. Since Vit K is a fat soluable vitamin you don't want to take megadoses without having checked with your doctor first.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maximoo Enthusiast

Have Dr chk your platelet count. My sis used to bruise easily & it was due to low platelets in her blood.

ravenwoodglass Mentor

Have Dr chk your platelet count. My sis used to bruise easily & it was due to low platelets in her blood.

Thanks that is good advice. Since the bruising and red spots are pretty much gone since I started the vitamin K I think that was the issue. If they should start up again I will get blood work done.

rdunbar Explorer

I also heard recently that vitamin K is a osteoporosis wonder drug, as well!

glad that you found out that it can benefit you so much!

I have little red dots, especially on my legs. I've just assumed that they are skin infections. I also get full on mersa staph infections regularly, although less frequent all the time.

I remember having little spots of what seemed to be skin infections even as a kid.

I'll give the K2 a whirl!! can't hurt?

thanks again!

eatmeat4good Enthusiast

I'll see if it works on what is left of my livedo reticularis.

I only got it when I got sick, so it is probably another vitamin deficiency symptom.

It has lightened a lot since being gluten free but it isn't gone.

I don't eat many leafy vegetables so I bet i'm deficient.

I'm going to take it and ask Doc to check my blood level.

Thank you.

rosetapper23 Explorer

What brand of Vitamin D/K2 are you taking? I'd like to check it out. I've been using a Vitamin K transdermal creme for the past seven years to keep my levels up. Recently, I asked my doctor to check my K levels, and she said that that test isn't normally done. When I needed surgery four years ago, I recall that I had to be referred to a doctor of hemotology in order to get the test ordered.

ravenwoodglass Mentor

What brand of Vitamin D/K2 are you taking? I'd like to check it out. I've been using a Vitamin K transdermal creme for the past seven years to keep my levels up. Recently, I asked my doctor to check my K levels, and she said that that test isn't normally done. When I needed surgery four years ago, I recall that I had to be referred to a doctor of hemotology in order to get the test ordered.

I use the NOW brand. Yea K isn't a vitamin they usually check as a deficiency is considered rare. It wasn't until I noticed the improvement when I take it that I did a little bit of research and found that it is another vitamin that with celiac may be deficient.

You could do a search using vitamin K and celiac and print out something from someplace like Medscape and maybe you doctor will order it without you having to be referred to a specialist.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

My nutritionist had me order Vitamin K from Complementary Prescriptions www.cpmedical.net.

rdunbar Explorer

Dr. Peter Green mentions Vitimin K deficiency in relation to bruising, and clotting on page. 124 of his book, Celiac, the Hidden Epidemic.

oddly enough, in the section about dermatitis herpetiformis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

    2. - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

    3. - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    4. - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

    5. - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,058
    • Most Online (within 30 mins)
      7,748

    Magali
    Newest Member
    Magali
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jess270
      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...