Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Causes The Hypersensitivity?


color-me-confused

Recommended Posts

color-me-confused Explorer

I sit here with severe stomach cramps setting in, burping like crazy, and I've realized I've been super irritable all day. Gluten exposure? again?! It's been just a few days since the bread baking incident! I suppose it's possible, it's been a busy few days with a lot of people in the house. I've been making my own food but who knows. Maybe it's just normal stomach upset.

So I'm wondering: what causes the hypersensitivity after going gluten free? Looking at my list of health improvements I can see I was on something of a slow downward spiral health-wise before my surprise diagnosis. But eating gluten pre-diagnosis didn't cause these acute attacks of pain, indigestion, fatigue, etc. (I suppose it was more low-grade and chronic). Is there anything that can be done to lower the severity of the response?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Once you go gluten free, you stop making the antibodies to gluten, therefore when you get glutened you make more antibodies and they attack your system. You could have had a lot of cross contamination if there were a lot of people in your home who weren't gluten free and then again it could just be your gut healing which you will have good and bad days, but I bet on the cc at the moment. I'm sorry you're feeling bad. Take some Pepto bismol, drink a lot of water to flush your system and take some tylenol and try to wait it out. I hope you get to feeling better. Wish I could be of more help. I feel for you, been there done that.

eatmeat4good Enthusiast

Your body sort of gets used to it with the constant onslaught of gluten and it's constant antibody production. You are very sick, but it becomes your normal. Then when you eliminate it, your body breathes a sigh of relief and starts healing. After the antibodies calm down and healing is taking place, your body is really reactive when even trace gluten enters....it calls out all the reinforcements (antibodies) because it doesn't want to be invaded by gluten anymore...and you get a huge reaction from cross-contamination.

This is how I think of it. Not scientific...but a fairly good analogy for my purposes of understanding the severe reactions to trace gluten.

rdunbar Explorer

apparantly, gluten is super potent in even miniscule amounts. It's the gluten, not your sensativity to it that is the problem.

with a lot of toxic things, you get a tolerence developed, so when you remove it, and it gets reintroduced, it effects you much more this time. consider heroin, for example!

tarnalberry Community Regular

The autoimmune reaction is self-sustaining in the intestines for up to two weeks. So, even if it was a few days ago, you may still be feeling those effects.

color-me-confused Explorer

The autoimmune reaction is self-sustaining in the intestines for up to two weeks. So, even if it was a few days ago, you may still be feeling those effects.

that makes it really hard to figure out exposure!! :angry:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,112
    • Most Online (within 30 mins)
      7,748

    aasyed
    Newest Member
    aasyed
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
    • Erain
      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels are less than the standard limit of <20 ppm.    If you have allergy concerns about consuming the grasses, we recommend consulting further with your healthcare provider. I hope this information helps! Please let us know if you have other questions.   
    • Erain
      That’s great to know. Thanks Scott
    • trents
      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost all food there have gluten so I was going very hungry. They do offer a gluten free menu with a report though. So I decided I should try getting a diagnosis if I can, especially after reading how it was much harder to do gluten challenge after quitting gluten for a while. I was able to get an appointment for next week, and started eating around 150gr of bread per day to be sure.  First 24 hours I didn't feel any worse so I was starting to doubt myself, but then bloating hit hard. It wasn't anything unbearable, but the problem is I have finals soon and I'm now realizing this is a really bad time to do this. I can't begin studying from pain distracting me. I'm thinking of cancelling the appointment and eat low gluten until exams are over.  I worry about one thing. Before I went low gluten, I was eating a lot of bread already for over a month, which is what clued me into gluten, and I only went low gluten for around 10 days before going high gluten again. I wasn't that worried about a false negative. But if I eat low gluten until my exams are over, it means over a month of low gluten, and I would need a lot more time eating high gluten later to get a correct result.  I'm not sure which one should I do, bear it until my appointment or cancel it and try again when I'm free later. And If I choose the second one, how long would I need to do the gluten challenge for a blood test?
×
×
  • Create New...