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Retail Therapy - Celiac Style

Poppi

By Poppi
in Coping with Celiac Disease

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Poppi Enthusiast
Poppi
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

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Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I know the feeling. Whenever I come across a new food I cannot eat--either when I discovered I couldn't have soy and had to give away/throw out 1/3 of my food, or whenever I discover a new thing that upsets my stomach for some reason--I go grocery shopping and spend at LEAST $50 on food that I CAN have. Doesn't stop the frustration of wasting money on food it ends up I can't have anyway, but it makes me feel a little better, anyway.

adab8ca Enthusiast
adab8ca
Posted

sometimes you just have to treat yourself!!!

Poppi Enthusiast
Poppi
Posted
  • Author

But I want to go to Ottawa. A whole week without kids or laundry. :angry: No fair.

K8ling Enthusiast
K8ling
Posted

Oh man a whole week??? I'm only 3 months into a 9 month deployment and I keep wishing I had a DAY... man.. what would I do with a week by myself??

*swoon*

love2travel Mentor
love2travel
Posted

My husband gets to go to places such as London, Paris and San Francisco for meetings for about ten days at a home with his job so I truly understand! Sometimes they invite spouses, too, which is wonderful. They get SPOILED at these things. In Paris next year they have rented the entire Palace of Versailles for dinner! We've been aboard aircraft carriers, in the Justice rooms in London, etc. Absolutely amazing. Plus the spouses get to go to castles, on garden and home tours, take cooking classes, go to vineyards...thankfully all that happened before I was diagnosed! But next year in Paris will be interesting with celiac disease, going to the best restaurants. Knowing their management and travel teams I will be very well taken care of.

Anyway, somehow I justify my deserving things when I have accomplished something or when I have bad fibromyalgia/herniated disc pain days (which is pretty much 24 hours a day) or when I am alone. When that happens, my husband orders me several books from my Amazon wishlist. He does this each time he goes away. He is too sweet! I don't really splurge on gluten-free stuff but I DO splurge on great artisan cheeses, decadent truffle dishes, fabulous sea salts, exotic spices... On the other hand, it does not take much to please me! I love the small things, too. :)

So, enjoy your treats because you really do deserve it! :P You must have at least two treats per day so that is 14 treats (or batches of treats!).

bbuster Explorer
bbuster
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

You go girl!!!

It's funny, my husband took the kids and they are all visiting his family for a week. So besides my regular work schedule (9-10 hrs M-F) what do you think I am doing? Mowing the lawn, pulling weeds, mulching trees, planting flowers, organizing and cleaning the pantry, drawers, closets; house painting projects, carpet cleaning, stocking up on groceries, laundry, various other cleaning projects, and doing all of the planning for our vacation. And of course reading up on forum topics! Well, I also called my mom, coordinated a family gift for an upcoming nephew's wedding, and collected and donated gluten-free items for tornado victims in Joplin (not too far away from here). So see, it's not ALL about me (LOL).

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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