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Retail Therapy - Celiac Style

Poppi

By Poppi
in Coping with Celiac Disease

Recommended Posts

Poppi Enthusiast
Poppi
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

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Strawberry-Jam Enthusiast
Strawberry-Jam
Posted

I know the feeling. Whenever I come across a new food I cannot eat--either when I discovered I couldn't have soy and had to give away/throw out 1/3 of my food, or whenever I discover a new thing that upsets my stomach for some reason--I go grocery shopping and spend at LEAST $50 on food that I CAN have. Doesn't stop the frustration of wasting money on food it ends up I can't have anyway, but it makes me feel a little better, anyway.

adab8ca Enthusiast
adab8ca
Posted

sometimes you just have to treat yourself!!!

Poppi Enthusiast
Poppi
Posted
  • Author

But I want to go to Ottawa. A whole week without kids or laundry. :angry: No fair.

K8ling Enthusiast
K8ling
Posted

Oh man a whole week??? I'm only 3 months into a 9 month deployment and I keep wishing I had a DAY... man.. what would I do with a week by myself??

*swoon*

love2travel Mentor
love2travel
Posted

My husband gets to go to places such as London, Paris and San Francisco for meetings for about ten days at a home with his job so I truly understand! Sometimes they invite spouses, too, which is wonderful. They get SPOILED at these things. In Paris next year they have rented the entire Palace of Versailles for dinner! We've been aboard aircraft carriers, in the Justice rooms in London, etc. Absolutely amazing. Plus the spouses get to go to castles, on garden and home tours, take cooking classes, go to vineyards...thankfully all that happened before I was diagnosed! But next year in Paris will be interesting with celiac disease, going to the best restaurants. Knowing their management and travel teams I will be very well taken care of.

Anyway, somehow I justify my deserving things when I have accomplished something or when I have bad fibromyalgia/herniated disc pain days (which is pretty much 24 hours a day) or when I am alone. When that happens, my husband orders me several books from my Amazon wishlist. He does this each time he goes away. He is too sweet! I don't really splurge on gluten-free stuff but I DO splurge on great artisan cheeses, decadent truffle dishes, fabulous sea salts, exotic spices... On the other hand, it does not take much to please me! I love the small things, too. :)

So, enjoy your treats because you really do deserve it! :P You must have at least two treats per day so that is 14 treats (or batches of treats!).

bbuster Explorer
bbuster
Posted

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

You go girl!!!

It's funny, my husband took the kids and they are all visiting his family for a week. So besides my regular work schedule (9-10 hrs M-F) what do you think I am doing? Mowing the lawn, pulling weeds, mulching trees, planting flowers, organizing and cleaning the pantry, drawers, closets; house painting projects, carpet cleaning, stocking up on groceries, laundry, various other cleaning projects, and doing all of the planning for our vacation. And of course reading up on forum topics! Well, I also called my mom, coordinated a family gift for an upcoming nephew's wedding, and collected and donated gluten-free items for tornado victims in Joplin (not too far away from here). So see, it's not ALL about me (LOL).

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    • JudyLou
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      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
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      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
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