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My Story.: Step One Or Something Like That


RL2011

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sb2178 Enthusiast

Green's is good, and worth the $$. It's very much like the Belgian ales (Chimay and the like) that were my favorites. First one I've tried, as I love a good dry cider.


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RL2011 Rookie

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

notme Experienced

More rambling about my gluten-free journey:

In the past 12 days I have not consumed any gluten. I noticed the past few nights that I have not slept much and while I have problems getting out of bed I have not felt totally exhausted during the day. Hope this doesn't last too long or I will have to run across the country like Forest Gump.

I have not been eating all that much (except for the evil cookies I made in the middle of the night the night before last) and continue to feel a little bloated. Not sure what to expect next regarding my energy level and my mood.

Last night I met a few friends out at a bar/ restaurant and while they ate I just had a glass of water and a Patron on the rocks. I imagine that eating out is going to be my biggest challenge. While I know that my gluten-free diet change with still drinking a little bit of tequila or wine is probably not wise for my gut I will not change that unless I see it causes further harm. I guess we all vary slightly in how we react to certain things physically or mentally beyond the certainty of the common immunological response to gluten.

I know that I will continue to kick this gluten diet stuff in the ass and that I will have a few setbacks along the way. All in all...I have continued to feel better day by day and as of this day my brain fog is pretty much gone.

My gluten-free life moves on...

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

RL2011 Rookie

your sleep will even out :) it goes with the 'withdrawal' - try eating 'plain' - when i first started i did the same thing (not eat much)(ok. nothing lol) then i was amazed at what *didn't* make me sick. i was blaming an awful lot of foods for what turned out to be gluten. then i was like a bottomless pit - hungry, starving! - like every two hours. i pack a snack bag every time i leave the house. i was 5'8" and weighed 97 lbs. in 8 months i have put on 20+ lbs and haven't gone up a clothing size - all muscle replenishment. and butt lol now my pants stay up hahahahaaa you have an awesome attitude, btw - i don't know how the 'meek' deal with this...

Thanks for your kind words and since you are not single you are banned from describing how nice your butt is. LOL :)

color-me-confused Explorer

Hey Jersey Girl! I have tried Redbridge and do not find it refreshing and crisp. The beer I have always liked are Heineken, Corona, Coors, and Guinness. If I cannot find a gluten-free beer similar to say Heineken Lite then I will look for a partner and buy or start a small craft brewery and do it myself.

Do you still live in NJ?

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

RL2011 Rookie

I know someone who is attempting to brew a gluten free IPA. He's an experienced brewer, I am looking forward to the results!

I would be interested in the end results of his efforts. We need some very good gluten-free beer!

RL2011 Rookie

I am not the best at following my own advice but why is it that I see/ hear many people faced with changes to their diet from celiac disease or gluten intolerance that they try to duplicate the poor diet they had before by eating gluten-free junk food/ deserts.

I had some gluten-free ice cream yesterday and made myself a promise that I will only allow one dessert per week for myself. I started and will continue to only eat basic whole foods and try to stay away from processed or junk foods except for my one a week dessert.

I am not trying to be mean to anyone here i just don't think all the talk about comfort foods is a good idea. I plan to eat minimal foods to sustain my life and not eat for social or other mental reasons.

I apologize in advance if my comments were too harsh for anyone.

I was going to post this in another thread but I did not want to offend...


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    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
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