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Just Diagnosed

Boss'Wife

By Boss'Wife
in Meet Up Room

Recommended Posts

Boss'Wife Rookie
Boss'Wife
Posted

Hi all I am from SE Ks and was just diagnosed last Tuesday with Celiac....Lets just say this first week has been rather difficult. Not sure what I can or can't eat or drink. I love Dr. Pepper but According to the food list I found I can't have carmel coloring ugh and it's in everything... Any help would be greatly appreciated.

Thank you ;)

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gluten free overseas Apprentice
gluten free overseas
Posted

Dr. Pepper is gluten free. This is the info from their web site:

Q: Does Dr Pepper contain gluten?

A: All of our products are considered gluten-free. Note: All products, which contain High Fructose Corn Syrup, may contain trace amounts of corn gluten. According to the Celiac Sprue Association, corn gluten is not harmful to people with Celiac Sprue disease. We encourage consumers with specific questions about Celiac Sprue to contact the Celiac Sprue Association at www.csaceliacs.org.

So... if corn doesn't bother you, go ahead and drink Dr. Pepper.

kareng Grand Master
kareng
Posted

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

psawyer Proficient
psawyer
Posted

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

All true. I'll add maltodextrin to the list of myths--its gluten-free for sure. And wine is safe, no matter how many times you hear the myth about how the barrels are sealed.

Welcome to our community. :)

psawyer Proficient
psawyer
Posted

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html

A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link This makes shopping MUCH easier.

FDA foods are required to list wheat - it cannot be hidden.

Rule #1: Never eat anything without reading the label first.

Rule #2: Consistently check labels, even of your favorite products, as product formulations can change.

Rule #3: If you are unsure of an ingredient, or the company's policy on labeling, call the phone number on the back of the product or email the company.

Hope this helps.

kareng Grand Master
kareng
Posted

Oh, and speaking of misinformation from old lists, vinegar (except for malt vinegar which will always be so described) and modified food starch are okay. The landscape changed over five years ago when FALCPA took effect. Wheat must now be explicitly declared and cannot be hidden. As a result, many ingredients on old lists are no longer a concern. Starch, when a single-word ingredient, is corn starch.

This is an old quoted post, but Laura's information is still spot on.

This is all very well & Good but there is still a wheat stalk on my license plate!

gluten free overseas Apprentice
gluten free overseas
Posted

SERIOUSLY??!!! I've been avoiding tea from teabags for NOTHING???

This was a very good thread--the previous info I read (new to the gluten free diet) was outdated, apparently.

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Yup Apprentice
Yup
Posted

To help you with recipes google Stephanie O'Dea. She made one gluten-free recipe for 365 days while using her crockpot.

Paula

psawyer Proficient
psawyer
Posted

This is all very well & Good but there is still a wheat stalk on my license plate!

Okay, DO NOT eat your license plate. There are much better dietary sources of iron. :blink:

love2travel Mentor
love2travel
Posted

carmel coloring in the US doesn't contain gluten, It is one of those annoying myths. Envelope glue doesn't contain wheat, tea bags aren't sealed with wheat paste or any paste, etc.

I'm in the KC area/Johnson County. We have older liscense plates that have a wheat stalk on them. :angry:

If it makes you feel any better license plates in Saskatchewan still sport several stalks of wheat!

  • 2 weeks later...
Langenke Newbie
Langenke
Posted

Welcome to our community!

I have joined a few of these support groups online, and it helps you feel not so alone. I drink mostly tea, water, nut milk, and clear sodas. All sodas should be fine however. Just some advice I wish so badly someone would have told me when I was first diagnosed.....get a really good fiber supplement. I get the kind that is fruit flavored and chewable. It is actually a nice treat everyday for me. Celiacs do not get the recommended amount of fiber as a result of our diet usually (No wheat, rye, oats, barley etc). The lack of fiber landed me in the hospital with an intestinal blockage about a year ago a few months after being diagnosed.

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      Testing for celiac

      By Bebee · Posted

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
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