Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

10 Year Old's Observations


domesticactivist

Recommended Posts

domesticactivist Collaborator

Today we went to the kids' piano recital and we didn't have our act together to bring food (they had lunch before and dinner coming after). We let the kids have plain fresh blueberries at the reception and nothing else - not the cakes, not the "gluten-free" cookies, not the fruit someone else cut up. There were some grapes on the counter (it was at my mom's house) so I told my son he could have some of those if he washed them really well first. He was upset about that because other people weren't washing grapes and he didn't want to be different. I did it for him and he was fine.

So tonight he started feeling like crap - different than when he's been glutened in the past, I'm really not sure if that's what's going on. He has a tight feeling in his chest, and whenever he stood up he felt like puking. He was feeling crampy, too. It occurs to me he could have easily been glutened, though, because he played the piano after most everyone else and I'm pretty sure he didn't wash his hands before having the blueberries. :(

So we were talking tonight and he said the reason he doesn't like being the odd one out is because an older boy in one of his classes (ended this week) has been giving him a hard time. He's been in the class with this kid for about 6 months and this is the first I've heard of it. I guess the kid teases everyone with special diets (he's a 14 yo boy, and quite obnoxious). I asked him about it and while he's feeling bad about it right now it hasn't been just him singled out and he does like the kid to some extent. I'm still mad like a mama bear but rationally I don't think it's been horrible all the time, or dangerous, at least.

He started describing the kinds of things the other kid did and said (offering foods he knows my son can't have, joking about how my son couldn't have stuff, calling him weird). But then he broke into a smile and said the funniest thing was how the kid complains about problems he could probably fix with our diet (some of the same problems my son had). He's tried to tell the kid that, but the kid says oh, it would probably help but it's not worth the trouble. My son just can't believe he wouldn't want to try fixing those problems, he'd rather complain about them and bully other people.

It must be nice to see things so clearly at such a young age!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laura4669 Apprentice

Today we went to the kids' piano recital and we didn't have our act together to bring food (they had lunch before and dinner coming after). We let the kids have plain fresh blueberries at the reception and nothing else - not the cakes, not the "gluten-free" cookies, not the fruit someone else cut up. There were some grapes on the counter (it was at my mom's house) so I told my son he could have some of those if he washed them really well first. He was upset about that because other people weren't washing grapes and he didn't want to be different. I did it for him and he was fine.

So tonight he started feeling like crap - different than when he's been glutened in the past, I'm really not sure if that's what's going on. He has a tight feeling in his chest, and whenever he stood up he felt like puking. He was feeling crampy, too. It occurs to me he could have easily been glutened, though, because he played the piano after most everyone else and I'm pretty sure he didn't wash his hands before having the blueberries. :(

So we were talking tonight and he said the reason he doesn't like being the odd one out is because an older boy in one of his classes (ended this week) has been giving him a hard time. He's been in the class with this kid for about 6 months and this is the first I've heard of it. I guess the kid teases everyone with special diets (he's a 14 yo boy, and quite obnoxious). I asked him about it and while he's feeling bad about it right now it hasn't been just him singled out and he does like the kid to some extent. I'm still mad like a mama bear but rationally I don't think it's been horrible all the time, or dangerous, at least.

He started describing the kinds of things the other kid did and said (offering foods he knows my son can't have, joking about how my son couldn't have stuff, calling him weird). But then he broke into a smile and said the funniest thing was how the kid complains about problems he could probably fix with our diet (some of the same problems my son had). He's tried to tell the kid that, but the kid says oh, it would probably help but it's not worth the trouble. My son just can't believe he wouldn't want to try fixing those problems, he'd rather complain about them and bully other people.

It must be nice to see things so clearly at such a young age!

Your son sounds like a very wise young man!

Tempestkin Newbie

The number one thing that helped me when I was bullied in highschool, was knowing my mother was there. Keeping an open line of communication there is really good. That's really cool that you and your son have that! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,986
    • Most Online (within 30 mins)
      7,748

    Vickie Clancy
    Newest Member
    Vickie Clancy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...