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Husband Suspects Celiac

AlwaysHope

Recommended Posts

AlwaysHope Rookie
AlwaysHope
Posted

Hi Everyone!

My husband suspects he has celiac disease and has opted to just try the gluten-free diet and see how it goes.

I have fibromyalgia and I have just recently discovered that I am sensitive to

wheat... so we are both going to give the gluten-free diet a whirl.

My question is about medications. Are things like Tylenol or other pain relievers

a concern for Celiacs?

Also one more (I just just ONE question but the truth is I have MANY LOL)

What about shampoos, body products?

Thanks so much for your time.

Blessings,

AlwaysHope

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Carriefaith Enthusiast
Carriefaith
Posted

If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

Open Original Shared Link

Carriefaith Enthusiast
Carriefaith
Posted

Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

AlwaysHope Rookie
AlwaysHope
Posted
  • Author
If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

Open Original Shared Link

<{POST_SNAPBACK}>

Thanks so much for the info Carriefaith. My husband is not going to bother to be tested because he's well.. lol .. he's a man and he doesn't do doctors.. lol

As someone who has FM as well as Multiple Chemical Sensitivity I can't use regular shampoos. We are using something now that I don't think is gluten-free but I think that I will probably email the manufacturer and ask them directly.

I was just wondering if he had to be careful of these products too. Sounds like there is Gluten in EVERYTHING..

Thanks again,

blessings,

AlwaysHope

AlwaysHope Rookie
AlwaysHope
Posted
  • Author
Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

<{POST_SNAPBACK}>

Hmmm.. I am confused. They seem to show they have gluten in them? From what I a see.. what am I missing?

This is very confusing! LOL

AlwaysHope

KaitiUSA Enthusiast
KaitiUSA
Posted

Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

Carriefaith Enthusiast
Carriefaith
Posted
They seem to show they have gluten in them?
I know, I was confused at first as well. They all appear to have "Gluten-, lactose- and tartrazine-free." near the end of the description. So tylenol is fine :)
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AlwaysHope Rookie
AlwaysHope
Posted
  • Author
Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

<{POST_SNAPBACK}>

Thank up as well Kaiti. I have been doing a lot of reading. I was on another forum for FM and it was there I learned about Celiac from other members.

My husband is about 40 lbs under weight and he eats like a horse! From some of the other symptoms we suspect that he may have this.

I am about that much OVERWEIGHT and have had FM now for about 15 years.

I am starting to suspect this for me too. Can people be skinny AND overweight and have this illness? (sorry, I am really clueless about this)

I have given up wheat (as well as dairy, caffeine, sugar) already but only a couple months now, not nearly long enough to see a difference.

The next step was to eliminate gluten from both our diets to test this.

I realize that if we do this that if he (or I) take the test it would be a false

negative but we would sooner give this up and test it that way.

I am well on my way to it already as I have had to give up so many things already.

Anyway, thanks again

AlwaysHope

KaitiUSA Enthusiast
KaitiUSA
Posted

There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

AlwaysHope Rookie
AlwaysHope
Posted
  • Author
There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

<{POST_SNAPBACK}>

If some people have no symptoms, what drives them to investigate this disease?

AlwaysHope

Merika Contributor
Merika
Posted

Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

AlwaysHope Rookie
AlwaysHope
Posted
  • Author
Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

<{POST_SNAPBACK}>

Thanks, that makes sense Merika.

I see that it runs in familes. In our case it doesn't seem that either of my husband's or I's parents or siblings have it.. beyond that I can't say..

AlwaysHope

cdford Contributor
cdford
Posted

If your FM requires more than OTC meds, there are generic Ultram tablets out there and they work wonderfully, especially when taken with a Tylenol product. For some reason the two work better together than either separately. Ultram is also not heavily habit forming like some of the other pain meds. I can take one a day or ten a day according to my needs.

drjmarkusic Newbie
drjmarkusic
Posted

Advil is gluten-free. There are many prescription meds that are gluten-free. Most of the time your PCP will not know if they are but ask your Pharm and he/she will probably know. If not use the fone and call the pharmaceutical. Jim

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      Hidden Gluten in distilled vinegar

      By trents · Posted

      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      Hidden Gluten in distilled vinegar

      By Mynx · Posted

      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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