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Does My Daughter Have It Now?


ILOVEOMC

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ILOVEOMC Enthusiast
:D My son was diagnosed in March and his younger sister is complaining of things which make me think she is developing it. She had the blood panel done in May and nothing showed positive. She complains of her tummy hurting, feeling like she is gonna throw up, burping and saying it came up in her mouth, and head hurting occasionally. Do you think she has it too?

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KaitiUSA Enthusiast

Sounds like a possibility. How old is she? Is she over 2? Because if she is under 2 then testing can be inaccurate. She may be starting to develop a problem...I would definitely monitor it closely especially knowing there are other celiacs in the family. Do you know what testing she had done? Some tests are more specific then others.

ILOVEOMC Enthusiast

She just turned 6 and she had the complete panel like my son did. If she is feeling the pain then I think there must be damage and a scope would detect that. I made an appointment with the GI but they can't see her until end of Sept.

KaitiUSA Enthusiast

Definitely don't want to see her suffer through those symptoms. She is obviously having a problem with something.

Ever considered getting an Enterolab done for her? They test for the gene, gluten sensitivity,malabsorption, and I think other things as well.

Have her symptoms started since being tested?

ILOVEOMC Enthusiast

What is an Enterolab? Her symptoms have gotten more specific and pronounced since the testing. Before the testing when she would complian of these things I thought it was just becase her brother was getting diagnosed and there was a lot ot talk in the house of tummy aches and such. He is doing better and she is still complaining.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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