Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Achieved Remission Of A Secondary Ai Disease By Treating celiac disease?

CNV2855

By CNV2855
in Related Issues & Disorders

Recommended Posts

CNV2855 Contributor
CNV2855
Posted

I have secondary Sjogren's to Celiac and it's ruining my life, and I'm only 25. I've been gluten-free for the last four years but I've been particularly bad about cross contamination and I just recently removed several food allergies that I know were bothering me.

Has anyone here had remission of a secondary autoimmune disease such as Scleroderma, Sjogrens, RA, or Lupus after treating Celiac disease with diet?

I need hope right now and I'm just really depressed because I'm young and this s$#& has ruined my life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

im sorry you're suffering so much. im also posting here, cause i'd like to be notified everytime someone replies to you. i have a friend with RA, she's 22, and im trying to find info on gluten free diets for her.

i also have Hashimoto's & Grave's, and can totally relate to feeling like its "ruining my life". i TOO am hoping that being gluten free will also alleviate my thyroid antibodies.

i also believe it's true that additional food intolerances can also aggravate our AI diseases.

my other friend has Anklosing Spondylitis-> and his doctor told him to avoid gluten and dairy. he's noticed that he feels better when he avoids them. when he cheats with the gluten, he gets a pressure behind his eyes-

i really hope you get a lot of responses on here... i forgot- i ALSO have 2 very good friends with MS, so i hope there are some testimonies below soon

hope u feel better :)

Gemini Experienced
Gemini
Posted

I have secondary Sjogren's to Celiac and it's ruining my life, and I'm only 25. I've been gluten-free for the last four years but I've been particularly bad about cross contamination and I just recently removed several food allergies that I know were bothering me.

Has anyone here had remission of a secondary autoimmune disease such as Scleroderma, Sjogrens, RA, or Lupus after treating Celiac disease with diet?

I need hope right now and I'm just really depressed because I'm young and this s$#& has ruined my life.

I, too, have Sjogren's Syndrome and it has gotten better but, unfortunately, it's my biggest problem which hasn't gotten better to the degree I would like it to. My eyes are still dry, although better than they were initially after diagnosis of the celiac disease. My teeth are now more stable from lack of saliva but a lot of work goes into that and I am in the process of having 3 implants done to replace the teeth that were trashed. Things will improve somewhat and you are young so there is hope. I am 52 and went many years with damage before I hit the wall so it's not going to improve to the point where my eyes feel normal again.

Are you being treated with Restasis eye drops? It works really well.

laura4669 Apprentice
laura4669
Posted

I recently had a positive ANA test, but at this point I am not sure what type of autoimmune disease I have. In addition to being gluten sensitive, I also tested positive for reactions to most other grains, including corn, rice, amaranth, quinoa, as well as dairy, chocolate, potatoes and coffee. Many of the foods that we eat as substitutes for gluten can cause the same reactions that gluten does. It might be worth checking to see if you have any cross reactions with other foods. I hope you start to feel better soon!

Gemini Experienced
Gemini
Posted

I recently had a positive ANA test, but at this point I am not sure what type of autoimmune disease I have. In addition to being gluten sensitive, I also tested positive for reactions to most other grains, including corn, rice, amaranth, quinoa, as well as dairy, chocolate, potatoes and coffee. Many of the foods that we eat as substitutes for gluten can cause the same reactions that gluten does. It might be worth checking to see if you have any cross reactions with other foods. I hope you start to feel better soon!

The ANA test is just a general test for inflammation in the body...it doesn't diagnose anything in particular. Celiac can cause a positive ANA alone.

I have 4 autoimmune diseases, total, and my ANA is always elevated but is slowly coming down the longer I am gluten-free. I don't worry about it as I feel pretty good right now.

cahill Collaborator
cahill
Posted

The ANA test is just a general test for inflammation in the body...it doesn't diagnose anything in particular. Celiac can cause a positive ANA alone.

I have 4 autoimmune diseases, total, and my ANA is always elevated but is slowly coming down the longer I am gluten-free. I don't worry about it as I feel pretty good right now.

I agree,

My recent ANA came back moderately positive ( range= moderately positive 20-60 mine was 35)but showed negative for lupus. I have celiac's and hashimotos.

cahill Collaborator
cahill
Posted

I have secondary Sjogren's to Celiac and it's ruining my life, and I'm only 25. I've been gluten-free for the last four years but I've been particularly bad about cross contamination and I just recently removed several food allergies that I know were bothering me.

Has anyone here had remission of a secondary autoimmune disease such as Scleroderma, Sjogrens, RA, or Lupus after treating Celiac disease with diet?

I need hope right now and I'm just really depressed because I'm young and this s$#& has ruined my life.

for me things kept getting worse UNTIL I eliminated secondary intolerances and allgerys . Once I did that my over all health improved drastically.Not a cure but it sure makes life a whole lot more enjoyable

((HUGS)) to you :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I recently had a positive ANA test, but at this point I am not sure what type of autoimmune disease I have.

The ANA is a test for antinuclear antibodies which are associated with autoimmune diseases. It is a general test and can't tell you what autoimmune disease you have just that one is likely present. Not everyone with Celiac has a positive ANA so you may also have something else going on in addition to the celiac. Hopefully you will start feeling better soon.

Here is what the Mayo Clinic has to say about the test.

Open Original Shared Link

Definition

By Mayo Clinic staff

An ANA test detects proteins called antinuclear antibodies in your blood. Your immune system normally makes antibodies to help you fight infection. The antibodies detected in an ANA test are different. They may attack your body's own tissues.

A positive ANA test indicates that your immune system has launched a misdirected attack on your own healthy tissue

viviendoparajesus Apprentice
viviendoparajesus
Posted

i hope you feel better and get relief. one AI is one too many multiple ones are horrible. i agree with the other poster other food allergies seem to flair up the AIs. i understand what you are saying about being depressed and frustrated and having AIs ruin your life. i do not mind having a special diet, but I want to feel better. that is discouraging that you have been gluten-free for 4 years and are still so miserable. hopefully, eliminating the other allergens will help. best wishes!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jess270
      - Jess270 replied to AnnaNZ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Bitters for digestion?

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...
    2. cristiana
      - cristiana commented on Jefferson Adams's article in Origins of Celiac Disease
      7

      Why Bananas No Longer Cure Celiac Disease

      I missed this article when it was first put up. It is interesting to read, as my old neighbour who sadly passed away a few years ago was a trainee midwife during WWII. Bananas disappeared from the shops in Britain during the war, but she told me that those that did get to the UK were kept back for infants with coeliac disease. I didn't realise that...
    3. trents
      - trents replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    4. GeoPeanut
      - GeoPeanut replied to Dawn Meyers's topic in Related Issues & Disorders
      23

      Vaccines

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...
    5. trents
      - trents replied to KRipple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac or Addison's complications? Can someone share their experience?

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,054
    • Most Online (within 30 mins)
      7,748
    Carlie
    Newest Member
    Carlie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jess270
      Bitters for digestion?

      By Jess270 · Posted

      This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions you describe, flu like symptoms, joint pain, urinary tract irritation, rash, stomach upset, nausea, diarrhoea & fatigue. I had liver pain like you describe, as part of the intolerance is usually a sluggish liver that makes processing all the histamine difficult. There are multiple possible root causes of histamine intolerance, usually it’s a symptom of something else. In my case, leaky gut (damaged gut wall)caused by undiagnosed celiac, but for others it’s leaky gut caused by other things like dysbiosis. Some people also experience histamine intolerance due to mould exposure or low levels of DAO (the enzyme that breaks down histamine in the gut). I’d try a low histamine diet & if that doesn’t improve symptoms fully, try low oxalate too. As others have suggested, supplements like vitamin d, b, l-glutamine to support a healthy gut & a good liver support supplement too. If you’re in a histamine flare take vitamin c to bowel tolerance & your symptoms will calm down (avoid if you find you have oxalate intolerance though). Best of luck 
    • trents
      Vaccines

      By trents · Posted

      @GeoPeanut, milk is one of the better sources of iodine. Iodine is known to exacerbate dermatitis herpetiformis. Many people find that a low iodine diet helps them avoid dermatitis herpetiformis outbreaks. So, maybe the fact that you have limited your dairy intake of late is helping with that.
    • GeoPeanut
      Vaccines

      By GeoPeanut · Posted

      Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease,  and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and  dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with myopathy that has occurred. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Welcome to the forum, @KRipple! Sorry to hear of all your husband's health problems. I can only imagine how anxious this makes you as when our spouse suffers we hurt right along with them. Can you post the results from the Celiac blood testing for us to look at? We would need the names of the tests run, the numeric results and (this is important) the reference ranges for each test used to establish high/low/negative/positive. Different labs use different rating scales so this is why I ask for this. There aren't industry standards. Has your husband seen any improvement from eliminating gluten from his diet? If your husband had any positive results from his celiac blood antibody testing, this is likely what triggered the consult with a  GI doc for an endoscopy. During the endoscopy, the GI doc will likely biopsy the lining of the small bowel lining to check for the damage caused by celiac disease. This would be for confirmation of the results of the blood tests and is considered the gold standard of celiac disease diagnosis. But here is some difficult information I have for you. If your husband has been gluten free already for months leading up to the endoscopy/biopsy, it will likely invalidate the biopsy and result in a false negative. Starting the gluten free diet now will allow the lining of the small bowel to begin healing and if enough healing takes place before the biopsy happens, there will be no damage to see. How far out is the endoscopy scheduled for? There still may be time for your husband to go back on gluten, what we call a "gluten challenge" to ensure valid test results.
    • kate g
      Are they close to a drug that will help celiacs with cross contamination

      By kate g · Posted

      Ive read articles that there is stage 2 research being conducted for drugs that will limit damage to celiacs through cross contamination- how close are they to this will there be enough funding to create a mainstream drug? 
×
×
  • Create New...