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Ulceratice Colitis Mis-diagnosis


maddy

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maddy Newbie

My son has been diagnosed as having ulcerative colitis and has been on a heavy dose of asacol. Last weekend he went to the emergancy room because one whole side of his body had gotten numb and tingly. Wondering if there might be someone who has experienced this type of thing--hoping that he might have celiac disease instead of ulcerative colitis. At least it sounds one could take more control with this disease and not have to be on drugs. Unless I'm wrong! Please advise! Any help would be MOST appreciated. I am so worried about him--he's only 24 years old. Thanks!


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nikki-uk Enthusiast

How was your son diagnosed?Did he have a colonoscopy?

Ulcerative colitis affects the large intestine-this is usually visible as the scope goes into the large bowel.

Coeliac disease only affects the small bowel,not always visible,requiring biopsies for a defintive diagnosis.

There are of course antibody blood tests for coeliac too,so maybe you should be asking the docs for one for your son.Hope you find some answers.

lovegrov Collaborator

If you have solid reasons to believe your son might have celiac, he needs to get the blood tests. Unfortunately, it's also possible to have both. I know two people who do.

richard

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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