Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pelvic Pain


xxkristin

Recommended Posts

xxkristin Apprentice

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

anewlife Apprentice

I have pelvic pain and it was diagnosed as Interstitial cystitis - inflammation in the bladder. It is related to several autoimmune diseases including celiac disease. I was diagnosed by an Urologist but my gynecologist first did an ultrasound of the pelvic region to rule out other issues. Hope you can get to the bottom of it. I know it can be so uncomfortable! I like using a heating pad when it is most uncomfortable.

Take care

xxkristin Apprentice

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

CarolinaKip Community Regular

I went whole foods and it helped me a lot! It really helped me figure out foods that I cannot eat. Corn is one of my biggest problem foods. I ate very basic with only adding or taking away one food at a time. The longer you're gluten-free, you'll understand your body more. Well, that was so for me. I can now tell if I get CC or a food that I cannot digest well. I happen to have an overian cyst now and something wrong with my uterus(DX by ultrasound)

A year ago I probably could not have told you if it was gluten or what. Now I understand my body's reactions so much better. Hang in there!

Looking for answers Contributor

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

I completely understand...I always assume the worse too. My theory as to what was going on is that the coconut was causing inflammation in my colon. I have no idea if that at all possible, but this in my crazy self-diagnosis. :rolleyes:

JSegura226 Apprentice

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

This is interesting... I too have been experiencing pelvis pain and what feels like colon spasms on my lower left side for the last 2 weeks. My appetite has also dropped off dramatically. Coconut never even crossed my mind! I introduced coconut oil into my diet around the same time the pain started up <_< . Guess I will cut the oil out and see if my pain disappears.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cvll Apprentice

Every month at ovulation time, I have really bad pains. Everything in there tightens/spasms, and it hurts a lot. It makes me constipated until it goes away (lasts maybe around 5 days or so), and then I get very loose stools. I'm thinking of making a dr appt just to check it out. I am always thinking the worst too. I wonder if there's a huge tumor in there and at ovulation time, just gets bigger.

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

  • 1 month later...
xxkristin Apprentice

I've determined that it's probably just constipation due to not enough fibre. I started taking Metamucil and after a few, when the Metamucil started working, the pelvic pain went. I stopped taking the Metamucil for a few weeks and the pain and constipation came back. So I started taking Metamucil again, and once again, after a few days, it all went away. I guess I'm just going to have to take Metamucil everyday from now on. Oh well, at least I'm pretty sure I've figured it out.

  • 3 weeks later...
CR5442 Contributor

I've been gluten free now for four weeks and am experiencing the most horrendous ovulation pain. I usually only get it for a few hours on the right hand side, but this time i have had it on the left hand side and it has lasted for nearly two days with no sign of abating. In addition I feel quite constipated, like the swelling there is stopping everything from moving! Luckily I have a doctor's appoint at the end of the week to see if he will allow me to take the Genova diagnostics Celiac panel as the IgA TTG showed up negative.

mommyto2kids Collaborator

My uterine problems started at the same time as the celiac. Who knows why. I'm 5 weeks out of a hysterectomy. For me it was good. Hystersisters is a very good forum if you need help with pelvic issues, not just hysterectomys.

livelifelarge24 Enthusiast

I get the same thing and that's usually a sure sign I've veen glutened. However I get ovarian cysts from time to tine too and those cause a similar pain. Whichever the cause a heating pad works wonders!

livelifelarge24 Enthusiast

And don't feel bad about being "a bit of a hypochondriac" I think all of us that battled celiac for a long time before diagnosis were almost forced into that. For me it was a desperate search for what the heck was making me sick all the time. Celiac is the great mimicker and there are literally hundreds of symptoms it can have.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    2. - trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    3. - Nikki03 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Confused about test results.

    4. - trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question

    5. - fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff
      13

      Question


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,769
    • Most Online (within 30 mins)
      7,748

    S4M
    Newest Member
    S4M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • fritz2
      So what relieves the joint pain?
    • trents
      Welcome to the forum, @Nikki03! What was the other result from the other physician's lab work? The test result you report in your post is not a celiac disease diagnostic test. It is a test for IGA deficiency. It is also known as "total IGA". There are other IGA antibody tests that are used to diagnose celiac disease but if you are IGA deficient, their scores will be artificially low. Obviously, you are not IGA deficient so if there were other IGA antibody tests run they should be trusted as accurate unless you had been on a gluten free or reduced gluten diet before the blood sample was taken. So, if you have other test results, please post them along with (this is important) their reference ranges. Raw test scores without reference ranges are not necessarily helpful as different labs used different reference ranges. Here is an article that describes the various antibody tests that can be ordered when checking for celiac disease: As you can see, there are IGA tests and there are IGG tests. What are your symptoms? There is another gluten disorder known as Non Celiac Gluten Sensitivity (NCGS) that shares many GI symptoms with celiac disease and is 10x more common than celiac disease. There are no tests for NCGS so celiac disease must first be ruled out by formal testing.
    • Nikki03
      I had celiac labs done and got two different result from two physicians. I have tons of celiac symptoms and suspected it for a while now but this has me so confused can you help?    my labs results read as follows  immunoglobulin A QN =419 which was off the chart high but everything but that was in normal range.               Thanks sincerely confused!   
    • trents
      As I mentioned above, NCGS stands for Non Celiac Gluten Sensitivity. Celiac disease and NCGS share many of the same GI distress symptoms but NCGS does not damage the lining of the small bowel as does celiac disease and is not an autoimmune condition, as is celiac disease. NCGS is 10x more common than celiac disease but there are no tests for it. Celiac disease must first be ruled out. We actually know much more about celiac disease than we do about NCGS. Some experts believe NCGS can be a precursor to celiac disease. The only known antidote for either is total abstinence from gluten. Joint pain is a well-established symptom of celiac disease, one of the more than 200 symptoms on a growing list. And many of them present as non-GI related.
    • fritz2
      Well, as much pain as gluten has caused in the past, there's no way in hell I'm taking gluten on purpose.  What is NCGS?  And are there any remedies to quickly get over the swollen joints? My joints are swollen and hot to the touch and hurt.  For about two weeks they were too painful to even think about using them.  Six weeks later, I still can barely use my hands.  I struggle to get a bottle cap unscrewed they hurt so badly.  Edema in my legs and the knees hurt to walk.  And that was probably a minor exposure as the wheat was listed towards the end of the "contains" list in very fine print we couldn't read without a magnifying glass.
×
×
  • Create New...