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Has Anyone Had This?

mbland

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mbland Rookie
mbland
Posted

Hello everyone.

I had a positive celiac disease blood test about 3 months ago. I talked to the nurse at my Gastro (the doctor was away) and she said I should just try the gluten-free diet. So, I did. The symptoms went away almost immediately! It was like a miracle! The only problem, is that when I finally did get to talk to the doctor, he wanted to do the biopsy. I told him that I had been gluten-free for about 3 mon. and he said that we would either have to do the gluten challenge or we could do the biopsy and just see if there was any damage. So, I opted for the biopsy. He found nothing. He thinks that I have Celiac, but he wants to be 100% sure. UGH! So, my mother just had the Celiac Panel and we should get the results for that soon. If she tests positive, the doctor said we will do an HLA test. Has anyone had this or know anything about it? Apparently it is an expensive genetic test. Great. lol. But, what if her test isn't positive? (which would be prefferable- I wouldn't want my mom to go through all this) and I have to do the gluten challenge? I'm sure some people on here have done that. How was it? I'm just confused as to what to do now.

Also, does anyone know how to make bread that doesn't crumble immediately? I love bread so much... I may just have to go without. Maybe I'll lose that 10 lbs. I gained from going gluten-free! lol.

Thanks for listening everyone.

Mari

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KaitiUSA Enthusiast
KaitiUSA
Posted

HLA is the gene testing. I have the HLA-DQ2 gene which is a main gene in causing celiac. If you do not have the gene then 99.99% chance you won't get celiac. You could however have gluten intolerance then which means you still need to follow the diet.

If your doctor did a biopsy while you have been gluten free 3 months then no wonder it turned out negative...the damage was healed. The gluten free diet heals the damage that's why we have to stay on it...well that plus so we don't get sick. That doctor should get a celiac lesson.

If you had positive blood results and dietary change then it all points to gluten being the culprit.

Biopsies can't rule out celiac. If there is no damage yet or if there is sporadic damage that the doctor misses, or if you have not been on gluten for about 3 months prior to testing then it can come back negative.

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    • trents
      Hidden Gluten in distilled vinegar

      By trents · Posted

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      Hidden Gluten in distilled vinegar

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      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
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      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
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