Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Reading Results Please

N100A

Recommended Posts

N100A Newbie
N100A
Posted

I was hoping someone could help me read these results. Had a biopsy Friday but the wait is killing me. And if one more person says they think its in my head ....

Celiac endomysial iga value negative

Celiac gliadin set iga value 3.9 ref range <2.9

celiac gliadin ser igg value 2.2 ref range <1.3

celiac ttg serum qn value .9 ref range <10.3

celiac total serum iga value 184 ref range >13 yes to adult: 44-441

Summary interpretation: results may support a diagnosis of celiac disease.

Serological markers for celiac disease detected.

Positive DGP"s may also occur in normal individuals as well as in other GI conditions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


psawyer Proficient
psawyer
Posted

Two tests are positive for celiac antibody detection. Total serum iga is normal, but with positive results that is not relevant--that test is done to unsure that a negative on the other tests is not due to an overall immune deficiency.

Be aware that false negatives on the biopsy are not unusual. Damage to the villi can be spotty, and if a small number of samples are taken it is possible to miss the damage, especially in the early stages of the disease.

N100A Newbie
N100A
Posted
  • Author

Thanks for the help bin hoping something shows on the biopsy. The doctor took 7. 1 more than the 6 he initially planned to take. I feel good about that as I've read some only take 2-3.

It's just really hard when everyone around u thinks ur not sick and just make yourself nervous. Especially when u know you dont feel right.

kareng Grand Master
kareng
Posted

Perhaps you can be diagnosed based on the blood results being positive and a good response to the diet. That is, if the biopsies are negative.

ravenwoodglass Mentor
ravenwoodglass
Posted

With positive blood work you need the diet no matter what the test results are from the biopsy. You can start the diet the day they do the biopsy you don't have to wait for the results. I hope you're feeling better soon.

N100A Newbie
N100A
Posted
  • Author

I tried starting today by watching what I eat. Do you know of any good lists of what ingredients to avoid?

Skylark Collaborator
Skylark
Posted

Forbidden list:

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Safe List:

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

There are lots of other articles on Open Original Shared Link right off the first page. Good luck with the diet. I really hope it helps you feel better.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


N100A Newbie
N100A
Posted
  • Author

So, its been 11 days since the biopsy and no call from the doctor. I called and left a message for the medical assistant and she returned my call. She said the Dr. Was out until Thursday and would get back to me then. She said, "I took a look at the results, and there's no cancer or anything showuing, so no need to worry." We weren't looking for cancer! We were looking for signs of celiacs. I thought to proble futher but was just so saddened by the response that I just couldn't. She asked if I was stll having an upset stomach, then asked if I was taking any meds. Then we hung up.

Part of me was hoping for an easy "Yes you have celiacs." Now I'm wondering, if the biospy is clean, what my next steps should be...

Skylark Collaborator
Skylark
Posted

Those nurses can be so annoying. They can't interpret the tests.

If the biopsy is clean, you try the diet anyway. The biopsy is not 100% reliable by any stretch, so you may still be celiac (no "s" at the end of the word) or gluten intolerant. Chances are good with the positive blood test that you will feel much better gluten-free. Besides, positive blood work and a positive response to the diet is plenty of common sense evidence for celiac.

N100A Newbie
N100A
Posted
  • Author

So results are in - biopsies are negative. I was told to take Bentyl, Metamucil, and Immodium as needed. Do it for two weeks, and if your not better then we will do a colonoscopy....by the Medical Assistant - the doctor didnt even call. I'm so very frustrated. I dont want to live my life on a regiment of drugs that are just working against one another until I strike a balance. How do we even call that medicine.

I've been gluten free now since the 24th of June. Ive felt good. My anxiety has gone away a great deal, and while I'm still learning what to eat, I dont think Ive glutened myself much. July 4th weekend was bad (high stress at job too though - and traveling so I ate out a lot ). So was the other day. I couldnt identify any gluten the day before though the second time.

I'm feeling at a loss of what to do. I dont know why, but I really needed that confirmation of diagnosis to make me feel better. It's been 10 years of not knowing and I've just had enough.

Should I be staying gluten free? Part of me wants to go down a pizza/sandwich and just see what happens!

Skylark Collaborator
Skylark
Posted

I completely agree about the drugs. It's not a way to live and it's not good medicine.

I think all of us undiagnosed folks downed a pizza/sandwich at some point and regretted it. :lol: That's part of convincing yourself that gluten-free works.

The next step in seeking a convincing diagnosis is to go gluten-free for a few months, enjoy the lower anxiety, and then repeat the celiac panel. If the antibodies go away you know they were caused by eating gluten. That's pretty good evidence even with the negative biopsy.

Hang around here a while and you'll realize you are lucky to have a positive test of any sort. ;) I'm undiagnosed (couldn't stand to poison myself for testing) and a lot of folks who were very sick from non-celiac gluten intolerance never did get positive bloodwork. You have to trust yourself and listen to your body.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,203
    • Most Online (within 30 mins)
      7,748
    Barbara 1981
    Newest Member
    Barbara 1981
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Endoscopy

      By Scott Adams · Posted

      Given your history of a high TTG (167) that decreased to 16 on a gluten-free diet, along with genetic confirmation of celiac disease, it’s likely the negative biopsy is a false negative due to not eating gluten before the endoscopy. Gluten is necessary to trigger the intestinal damage seen in celiac disease, and avoiding it can lead to healing and a normal biopsy despite ongoing immune activity (reflected in your still-elevated TTG). The inflammation observed during the endoscopy (“diffuse moderately erythematous mucosa”) could be residual damage, mild ongoing inflammation, or another condition like peptic duodenitis, but it’s consistent with celiac disease in context. Continued positive blood markers suggest ongoing gluten exposure, possibly from cross-contamination or hidden sources. Strict adherence to a gluten-free diet and follow-up testing are key to managing symptoms and reducing inflammation. Discuss these findings with your doctor to confirm the diagnosis and refine your dietary approach. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Biopsy results after 1,5 gfd

      By Scott Adams · Posted

      Yes, it sounds like great progress, but what was the time frame between the two endoscopies? 
    • Scott Adams
      Help with results

      By Scott Adams · Posted

      Your symptoms—headaches, dizziness, nausea, irregular bowel movements, anemia, and menstrual changes—along with a family history of celiac disease, strongly suggest celiac disease could be the cause. The mild duodenal changes seen in your biopsy are consistent with early or mild celiac disease, though they could also be due to other factors. The improvement in bowel movements after cutting out gluten is a positive sign, but other symptoms like headaches and dizziness may take longer to resolve as your body heals. It’s important to continue a strict gluten-free diet and discuss further testing, such as celiac antibody blood tests or a follow-up biopsy, with your doctor to confirm the diagnosis. Many people experience a gradual improvement in symptoms over weeks to months, so patience and strict adherence to the diet are key. You’re not alone in this process, and support from celiac communities can be very helpful. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Scott Adams · Posted

      For people with celiac disease and corn intolerance, most salts, including table salt with dextrose, are generally safe in small amounts, as the dextrose is typically highly processed and unlikely to contain problematic corn proteins. However, if you’re highly sensitive, you might consider switching to pure kosher or Himalayan salt, which don’t contain additives. While bringing your own salt to restaurants or avoiding seasoned foods can feel overwhelming, it’s a practical step if you’re concerned. Many people with corn intolerance tolerate trace amounts of dextrose in salt without issues, but individual sensitivity varies. If your current salt isn’t causing symptoms, it’s likely fine to continue using it, especially given your financial constraints and the challenges of managing dietary restrictions. Focus on what works for you and prioritize avoiding larger sources of corn, like cornstarch.
    • Scott Adams
      Stomach pains etc 2 weeks after start of gluten-free diet

      By Scott Adams · Posted

      Your daughter’s ongoing stomach pains two weeks into a gluten-free diet could be due to her body still healing after months of gluten exposure, as recovery from celiac disease can take time. Her inconsistent eating habits and possible eating disorder behaviors may also delay healing. While she’s now eating gluten-free snacks, her limited intake and emotional withdrawal complicate the process. It’s positive that she’s trying, but recovery may take weeks to months. Addressing her depression and mental health is crucial, as celiac disease can impact mood, and proper nutrition may help. Patience and support are key, but if symptoms persist, consult her doctor to rule out accidental gluten exposure or other issues. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  
×
×
  • Create New...