Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss?

swimmer

Recommended Posts

swimmer Newbie
swimmer
Posted

I haven't been diagnosed by my Doctor, my blood test was negative and I'm the test was also negative for anaemia, so he's diagnosed IBS.

I've had stomach/bowel problems for as long as I can remember (I'm now 30), particularly bad since I was 17. At the same time, my hair thinned considerably on the top of my head and has never come back.

After telling me I wasn't anaemic according to the blood tests, my doctor said I could be mildly anaemic and an iron supplement may help with my hair thinning?!?

I've recently started a gluten-free diet and am feeling SIGNIFICANTLY better. I once in the past (unintentionally) did a gluten-free diet for about 6 weeks and this was the only time in my life I've ever been symptom free. Oats upset me too.

Any advice about the hair thing??

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elainegl Newbie
elainegl
Posted

Have you been tested for thryoid function? I'd not only have the regular thyroid panel done, but the antithryoid antibodies run as well. My TSH is in normal range (1.2), but I have antithyroid antibodies and my hair still falls out. When I became technically hypothryoid (TSH 13), I was put on Synthroid and my hair finally stopped falling out. I've since had a baby, gone hyperthyroid, quit my medicine, and am now back in that gray zone where I'd rather be on meds but can't b/c my TSH is normal.

Good luck,

Elaine

Guest aramgard
Guest aramgard
Posted

Also, my hair did not start to grow back until I had been on the diet for 2 years. If you haven't been on the diet very long, you might just try being patient for a while. My hair has now thickened up a great deal. Shirley

swimmer Newbie
swimmer
Posted
  • Author

Oh, thanks - just be patient, OK - here's hoping my hair grows back nicely. I suppose hair growing is a slow process.

Btw, I've been tested for just about everything possible, all blood tests have been clear - thyroid, celiac disease, diabetes, hormones, everything!

:D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hmkr
      - hmkr replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Celiac Test Results - Thoughts?

      The IGA tests 5 years ago were: Transglutaminase IGA (EMY IGA) (CENT-tTG), <2 Immunoglobulin A (CENT-IGA), 246 IgA Quantitative was done last month, that was 261. Is that the one you mean?
    2. trents
      - trents replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Celiac Test Results - Thoughts?

      When you say a GI doc did an IGA five years ago and it was negative, which IGA measure do you speak of. There are several possibilities. Do you refer to the tTG-IGA? Have you had a total IGA test done? It isn't a test for celiac per se but can establish whether or not you are IGA deficient. If you are IGA deficient, it will drive individual IGA test...
    3. Scott Adams
      - Scott Adams replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Celiac Test Results - Thoughts?

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
    4. hmkr
      - hmkr posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Celiac Test Results - Thoughts?

      I had several celiac blood tests done at a rheumatologist last month. I've had many possible symptoms over the last 23 years, including GERD/LPR, constipation, and recently joint stiffness and pain in my hands. It all started during my first pregnancy. 1/160 ANA back then as well as now with no autoimmune diagnosis. I've had undiagnosed high fevers, swollen...
    5. John Scott
      - John Scott commented on dixonpete's blog entry in Pete Dixon
      5

      A video with researcher William Parker about Helminthic Therapy

      Anti-inflammatory drugs can present a raft of issues, and, unlike helminths, they are often not appropriate for long-term use. "Treatment of moderate to severe IBD involves the use of immune modulators and/or biologics, which have several toxicities and side effects, such as predisposition to infections, cancer, and demyelinating diseases in addition...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,812
    • Most Online (within 30 mins)
      7,748
    hmkr
    Newest Member
    hmkr
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      The IGA tests 5 years ago were: Transglutaminase IGA (EMY IGA) (CENT-tTG), <2 Immunoglobulin A (CENT-IGA), 246 IgA Quantitative was done last month, that was 261. Is that the one you mean?  
    • trents
      Celiac Test Results - Thoughts?

      By trents · Posted

      When you say a GI doc did an IGA five years ago and it was negative, which IGA measure do you speak of. There are several possibilities. Do you refer to the tTG-IGA? Have you had a total IGA test done? It isn't a test for celiac per se but can establish whether or not you are IGA deficient. If you are IGA deficient, it will drive individual IGA test scores down and can result in false positives. The tTG-IGA should always be accompanied by a total IGA test. When people are IGA deficient and actually do have celiac disease we often see it detected by the IGG tests. The same can be said if they have been skimping on gluten previous to the blood draw and, IMO, negatives in the IGA test spectrum with positives in the IGG spectrum can also point to NCGS or NCGS transitioning to celiac.
    • Scott Adams
      Celiac Test Results - Thoughts?

      By Scott Adams · Posted

      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. I agree that if your biopsy ends up negative, that you still may need to be gluten-free, as you could be in the non-celiac gluten sensitivity area. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Be sure to eat lots of gluten daily until your endoscopy, otherwise you could get false negative results.    
    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      I had several celiac blood tests done at a rheumatologist last month. I've had many possible symptoms over the last 23 years, including GERD/LPR, constipation, and recently joint stiffness and pain in my hands. It all started during my first pregnancy. 1/160 ANA back then as well as now with no autoimmune diagnosis. I've had undiagnosed high fevers, swollen lymphs nodes, ear pain, miscarriages, to name just a few more symptoms. I can't help but be upset at the many doctors I've been to that have missed this. A GI doctor only did the IgA 5 years ago, which was negative then too, and didn't do a biopsy as a result during an endoscopy shortly after. Deaminated Gliadin IgG Antibody test was 90, >15 being abnormal.   Deaminated Gliadin IgA Antibody, negative Tissue Transglutaminase IgG Antibody, negative Tissue Transglutaminase IgA Antibody, negative I'm scheduled for a biopsy at the end of January. The new GI doctor thinks if not celiac, I will still need to be gluten free the rest of my life due to the antibodies my body is producing. I feel like it's got to be celiac. I've been consuming gluten every day to prepare for this test. It can't come soon enough.  Thoughts on that IgG being positive and the others negative? I haven't gotten a clear explanation for that yet. Thanks in advance for any input!! 
    • Kiwifruit
      Years of testing - no real answers

      By Kiwifruit · Posted

      That’s good to know. Might be time to head back to my gastrointestinal doctor then.
×
×
  • Create New...