Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Testing


kallie

Recommended Posts

kallie Rookie

Hi everyone! I am new here. I have figured out that I have some kind of gluten and milk sensitivities. I have bad digestive problems, water retention, headaches, hair loss that all disappear as soon as i stop eating gluten and dairy. I was recently diagnosed with iron deficiecy. Does anyone have any experience with the enterolab tests? Are they easy to do? Will my insurance cover them? I have stopped all gluten and most dairy so should I resume eating gluten before the test?

Any resposes would be very much appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest barbara3675

You don't have to go back to eating dairy or gluten to do the Enterolab tests. They are not difficult if you follow the instructions very carefully. I did the complete panel with the gene testing too and feel it was so worth it. My results came back in a little less than two weeks via email. I had tested negative on a blood test from the doctor's office, but positive for dairy and gluten through Enterolab. Now that I have been gluten-free for nearly a year, the dairy thing has gotten a lot better. I can do most all processed dairy, but still use rice milk on my cereal. I never drink milk so that isn't an issue. I have a granddaughter who has celiac disease and I feel much better now that I don't eat gluten. I no longer have pains in my stomach and before I either had diarreah or consitpation and now that is completely resolved.

Hope you do the Enterolab thing....I think those tests will be the gold standard in the years to come. Barbara

Rachel--24 Collaborator

Can Enterolab dx Celiac Disease or do they just all come back as gluten intolerant? With the gene test does this identify whether a person has celiac disease or not? I know if you dont have the gene then you cant have celiac disease but if you DO have the gene how do you know whether you actually have Celiac or not? I'm confused about this. I'll be getting results from Enterolab in a few weeks.

-Rachel

KaitiUSA Enthusiast

An Enterolab tests for gluten sensitivity but also for malabsorption and tTG and those would indicate celiac. If you have the gene you have the predisposition for it and can have it activated at any time but it won't say whether it is activated at that time. If you don't have the gene you are 99.99% likely not to get celiac and it that case you could be gluten intolerant though. There are also genes for gluten intolerance.

kallie Rookie

Thanks for your responses. Has anyone had any luck getting insurance to cover this? I am a student and very poor right now. Thanks!

bmorrow Rookie

My insurance covered everything except the genetic testing. My daughter and I have both tested with EnteroLab, and are very pleased with them. The tests are very easy. Good Luck!

Bune Newbie

Beverly

How did you get your insurance to cover it? did you work directly with Enterolab and then submit a claim.?

Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bmorrow Rookie

EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

  • 3 months later...
DianeByrd Apprentice
EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

<{POST_SNAPBACK}>

Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval.

Diane

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    2. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    3. - Scott Adams replied to Sicilygirl's topic in Coping with Celiac Disease
      2

      fed up italian

    4. - trents replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    5. - trents replied to Art Maltman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      My 5 months of Struggle


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,508
    • Most Online (within 30 mins)
      7,748

    Mafiaprincess
    Newest Member
    Mafiaprincess
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results.  When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests.  Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and a false negative biopsy may result.  As uncomfortable as it is, finish all testing before going gluten free.  
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
×
×
  • Create New...