Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Testing

kallie

Recommended Posts

kallie Rookie
kallie
Posted

Hi everyone! I am new here. I have figured out that I have some kind of gluten and milk sensitivities. I have bad digestive problems, water retention, headaches, hair loss that all disappear as soon as i stop eating gluten and dairy. I was recently diagnosed with iron deficiecy. Does anyone have any experience with the enterolab tests? Are they easy to do? Will my insurance cover them? I have stopped all gluten and most dairy so should I resume eating gluten before the test?

Any resposes would be very much appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest barbara3675
Guest barbara3675
Posted

You don't have to go back to eating dairy or gluten to do the Enterolab tests. They are not difficult if you follow the instructions very carefully. I did the complete panel with the gene testing too and feel it was so worth it. My results came back in a little less than two weeks via email. I had tested negative on a blood test from the doctor's office, but positive for dairy and gluten through Enterolab. Now that I have been gluten-free for nearly a year, the dairy thing has gotten a lot better. I can do most all processed dairy, but still use rice milk on my cereal. I never drink milk so that isn't an issue. I have a granddaughter who has celiac disease and I feel much better now that I don't eat gluten. I no longer have pains in my stomach and before I either had diarreah or consitpation and now that is completely resolved.

Hope you do the Enterolab thing....I think those tests will be the gold standard in the years to come. Barbara

Rachel--24 Collaborator
Rachel--24
Posted

Can Enterolab dx Celiac Disease or do they just all come back as gluten intolerant? With the gene test does this identify whether a person has celiac disease or not? I know if you dont have the gene then you cant have celiac disease but if you DO have the gene how do you know whether you actually have Celiac or not? I'm confused about this. I'll be getting results from Enterolab in a few weeks.

-Rachel

KaitiUSA Enthusiast
KaitiUSA
Posted

An Enterolab tests for gluten sensitivity but also for malabsorption and tTG and those would indicate celiac. If you have the gene you have the predisposition for it and can have it activated at any time but it won't say whether it is activated at that time. If you don't have the gene you are 99.99% likely not to get celiac and it that case you could be gluten intolerant though. There are also genes for gluten intolerance.

kallie Rookie
kallie
Posted
  • Author

Thanks for your responses. Has anyone had any luck getting insurance to cover this? I am a student and very poor right now. Thanks!

bmorrow Rookie
bmorrow
Posted

My insurance covered everything except the genetic testing. My daughter and I have both tested with EnteroLab, and are very pleased with them. The tests are very easy. Good Luck!

Bune Newbie
Bune
Posted

Beverly

How did you get your insurance to cover it? did you work directly with Enterolab and then submit a claim.?

Brenda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bmorrow Rookie
bmorrow
Posted

EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

  • 3 months later...
DianeByrd Apprentice
DianeByrd
Posted
EnteroLab sent me a coded invoice and I then filed the claim with my insurance company. I am in a HMO, so it would only play 60%, but that is better than nothing.

<{POST_SNAPBACK}>

Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval.

Diane

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,705
    • Most Online (within 30 mins)
      7,748
    SammyS
    Newest Member
    SammyS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation.  I am only 42 so haven't had a bone density test yet.  My calcium was normal, but my D was a little low.  They haven't checked for any other vitamin deficiencies yet.  My blood test for an autoimmue disorder was quite high but my Thyroid was all normal.
    • TexasCeliacNewbie
      High blood test numbers - with scales. Any advice?

      By TexasCeliacNewbie · Posted

      Hi, I have been having a lot of back pain and gut issues for 8 weeks or so.  I saw the GI on Monday and my results just came in from the lab.  Some of these number are high and off the little chart from the lab.  I am reading this correctly that I most likely have Celiac, right???  It would explain a lot of things for me.  She does have me scheduled for a colonoscopy and endoscopy in  2 weeks to do the biopsy.  I posted this prior, but forgot to put the range assuming they were all the same.  Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
    • trents
      Colonoscopy with large area of inflammation

      By trents · Posted

      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Royal Caribbean Only, Please

      By AuntieAutoimmune · Posted

      Thanks,Scott. Yes, I had already seen those 
×
×
  • Create New...