Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice From People Who Have Experience With Enterolab.


MsCurious

Recommended Posts

MsCurious Enthusiast

everybody,

I'm looking for help from those of you with experience with Enterolab. Never thought I'd be looking at possibly using their services, since I am covered for just about anything that could possibly come up. But my son isn't so fortunate with his insurance. I have been tested positive with HLA-DQ2.5 genetic marker, and I have come to realize that I just will not be worry free until my son has been tested, to know whether or not he needs to monitor things in the future. So, I'm considering paying for Enterolab to do the genetic test on him. I just wanted to know if any of you have had experience with them, and if those experiences were good or bad.

I guess I would love to hear from someone who tested more than one person in the family and had some positive and some negative test results. Silly as it sounds, I just want to hear from someone that they don't just tell everyone they have tons of allergies/intolerances and genes etc. Call me paranoid, but there's so much incompetence out there... I just need to hear from people who have used Enterolab, so that I know its an okay place to do this. I understand that they send the sample to Red Cross for processing, so I guess it should be valid. Thanks in advance for your responses. It will ease my mind. I'm considering calling them Tuesday morning to order his kit.

Have a wonderful Independence Day everybody! Enjoy your gluten free BBQs! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.

Open Original Shared Link

Open Original Shared Link

MsCurious Enthusiast

[fonft=Comic Sans MS]

Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.

Open Original Shared Link

Open Original Shared Link

Thanks for your comments, Skylark. I'm really not so concerned about the genetic testing from Enterolab, since they get it done through the Red Cross, and even though they only test the DQB chain... in our case that doesn't matter since I'm DQ2.5 positive and the alpha and beta chains are always connected. If he has the DQB positive, the A will also be positive in his case. I was more concerned with their "other" tests... for food intolerances, etc. I don't want to pay for them to test if they just tell everybody they're intolerant to what ever they request a test for. ;) I will check with the other two labs that you suggested though... and see how the pricing is for the genetic test. Thanks again for taking the time to respond... I really appreciate it, Skylark. :) Happy Independence Day!

Skylark Collaborator

That makes sense. If you just want to know yes or no for DQB1 *0201 from you, Enterolab may be the cheapest option. :)

Happy Independence Day!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,210
    • Most Online (within 30 mins)
      7,748

    Sharon Camden
    Newest Member
    Sharon Camden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Liquid lunch
      I don’t think it matters much if you trust the supplier, I get them from a Welsh company maesyffin mushrooms but I think the guy there has retired from growing now and just resells eu imports so it’s probably the same mushrooms he uses to make the tinctures as the company you posted. It’d probably be cheaper to buy dried and make your own tincture. 
    • Chissers
      Thank you for your prompt reply. Have others experienced LUQ and L sided back pain when on gluten? Could gluten be irritating the pancreas to cause the slight rise in lipase?
    • Rogol72
      Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form. 
    • trents
    • trents
      Jason, I have a bone to pick with your terminology. There is "gluten intolerance" which I believe is synonymous with celiac disease and then there is "gluten sensitivity" which comes from Non Celiac Gluten Sensitivity or NCGS for short. It is true, however, that there is still a lot of inconsistency in the use of these terms.
×
×
  • Create New...