Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Anxiety


nik95670

Recommended Posts

nik95670 Rookie

I have been gluten free for four weeks & while the diet & diagnosis has it's challenges, I can honestly say I've never felt so good in my whole life. Increased energy, focus, mood stabilized & improved, and the god awful pain and stomach aches are GONE. I'm finding a major increase in anxiety though. I'm SO terrified that I'm just all of a sudden going to be sick again like before I went Gluten-Free. I don't know how to explain it but I feel like I SHOULD feel more confident eating, going out to social events, etc. but I think it just hasn't been long enough & I don't have the confidence. I'm still scares most days that I'm going to end up in the fetal position in pain & it prevents me from being totally happy. It almost seems too good to be true, that all I have to do is eat right & I can have such improved quality of life. After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?

Oh yeah, I've been there!

I first dealt with it by staying paranoid for months, LOL. Time was really the only cure for it, and for my fears that involved screwing up my good health again.

But looking back, I kind of see it as a lifestyle change rather like having a new baby. At first, you are scared to death about raising a child, screwing up, dropping the baby on its head, missing something that will hurt her, forgetting the baby in the car when you're exhausted, whatever.

But slowly, you get used to thinking of your child 24/7, and it becomes part of your daily life to listen for your kids, wonder what they're doing, think about what to say to them to keep 'em safe. The constant fear fades. But at the same time, it's not that the hyper-awareness goes away, it's just that you get used to it being a part of your normal life and the FEAR goes away.

That's pretty much what's happened to me, anyway. You won't be able to stop thinking of gluten all the time, not if you want to stay safe. But it becomes second nature after a few months.

As an example, I used to be a very oral person - I chewed on my nails all the time, popped things in my mouth to hold on to them when I was thinking(like pens and pencils), and so on. Now, the second I go out my front door, I don't do that. It took me weeks and weeks to get over that behavior, but getting sick from it was very motivating.

In other words: it'll happen. It'll become normal. Not normal for everyone else, maybe, but normal for you, so it's not so overwhelming all the time. You WILL get sick every once in a while. It's almost impossible to avoid. But you'll get over it this time, unlike all the times before in the past couple of decades.

And until it does become normal....lots of deep breaths, whatever relaxes you, lots of hugs from friends, and music, and enjoying the ever-loving heck out of your good health right now. :-)

pondy Contributor

I'm finding a major increase in anxiety though. I'm SO terrified that I'm just all of a sudden going to be sick again like before I went Gluten-Free. I don't know how to explain it but I feel like I SHOULD feel more confident eating, going out to social events, etc. but I think it just hasn't been long enough & I don't have the confidence. I'm still scares most days that I'm going to end up in the fetal position in pain & it prevents me from being totally happy. It almost seems too good to be true, that all I have to do is eat right & I can have such improved quality of life. After 20 years of "diagnosis" and "cures" that were short lived, I'm just feeling a lot of anxiety that this won't last. Has anyone else experienced this? How do you deal with it?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,118
    • Most Online (within 30 mins)
      7,748

    Momoosa
    Newest Member
    Momoosa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      You may be reacting to some of the ingredients used to imitate gluten products. I eat Amy's Chilli quite often with no problems. When I eat Bush's chilli beans or Hormel Chilli with the same ingredient list, I get heartburn.  Break out the alka seltzer.   Barillo spaghetti has CORN FLOUR, RICE FLOUR, MONO AND DIGLYCERIDES. Udi's White bread Ingredients - water, tapioca starch, brown rice flour, canola oil, dried egg whites, sugar, tapioca maltodextrin, tapioca syrup, sorghum flour, less than 2% of: rice starch, sorghum grain, flaxseed meal,  gum blend (xanthan gum, sodium alginate, guar gum), apple cider vinegar, apple fiber, molasses, salt, amaranth flour, teff flour, yeast, cultured brown rice, locust bean gum, enzymes Chobani Greek Yogurt Cultured nonfat milk, cane sugar, water, natural flavors, fruit pectin, guar gum, locust bean gum, vanilla extract, lemon juice concentrate.
    • Soleihey
      My TTG was 167 one year ago. Recently had it retested one month ago and it went down to 16. I only recently had an endoscopy done as I was pregnant within the last year. I did not eat gluten prior to this endoscopy as I get very sick. Prior to obtaining the biopsies, the endoscopy said “ diffuse moderately erythematous mucosa to the second part of the duodenum without bleeding.” However, the biopsy came back negative. I assume it’s a false negative as I have also had genetic testing to confirm celiac. However, what would cause the inflammation to the second part of the duodenum and continued positive blood markers if the intestines have healed?
    • TerryinCO
      Thank you for direction.  Eating out is a concern though we rarely do, but I'm prepared now.
    • trents
      This might be helpful to you at this point:   
    • cristiana
      Thank you for the update.  So interesting to know how things are changing, when I was diagnosed I had very similar blood results but still had to have the endoscopy.  Glad you know where you stand.  As your father has celiac disease you probably already know a lot about it, but do contact us if we can help further.
×
×
  • Create New...