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Just Wanted To Say Hello


elephantofsuprise

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elephantofsuprise Newbie

I just wanted to say hello, and let you all know that I have been lurking here for a while. I just got tested yesterday and I am 'hoping' that I am a celiac and it's not just because you all seem so awesome ;) I having been struggling with the many symptoms of Celiac Disease for as long as I can remember and have gone to various doctors,(colonoscopy :blink: , eye doctors for night blindness, eating has been painful because of my tongue (my doctor got a chuckle out of diagnosing me with "Scrotal Tongue" but said there was nothing he could do for me), etc. etc. Go figure!! . Finally about 2 months ago I read an article in "Fitness" magazine that described me to a 'T', it was about Celiac. A light at the end of the tunnel? I am so happy at the thought that I might have a way out of the pain and misery of feeling horrible all the time by regulating what I eat. I will be so disappointed if my tests come back negative because I will still be stuck with the symptoms, the unbelieving doctors, and no hope of feeling normal. I will probably continue to just lurk until I get the results back and if they come back positive, watch out!! I wanted to let you know that reading your posts have been very encouraging.

Melissa


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Rachel--24 Collaborator

Hi,

I'm just like you...waiting for the results. I can't just "lurk" though! Lol...thats just not me....I gotta know everything right now! Well...I know exactly how you feel and I hope your tests come back positive so that you can move on :)

Good luck!!!

-Rachel

cgd Newbie

Hi and welcome. Even your results come back negative, you can try a dietary challenge. If you feel better, then you know at least you have a sensitivity. Good luck on your results!

KaitiUSA Enthusiast

Welcome :D

I hope you get the answers you are looking for. Let us know how the results come back.

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      Hidden Gluten in distilled vinegar

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      Hidden Gluten in distilled vinegar

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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