Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy Wrong?

mamaathome

Recommended Posts

mamaathome Explorer
mamaathome
Posted

My daughter was diagnosed with celiac in early Dec. My husband and I both had our bloodwork done and mine was normal and my husband's was elevated. He then had a biopsy and it came back negative for celiac. He went on the gluten-free diet anyway, and noticed that he was less bloated, had more normal bathroom visits, and in general felt better. So the question is, has anyone else had a false negative biopsy? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Of course it could come back false. The problem with biopsies are they can rule celiac in with a positive one but they can't rule it out with a negative one. If it is negative then there could be sporadic damage that they missed or no damage yet if it's in beginning stages.

Which blood tests did he have done?

Also, his body will know more then any test, if he feels better then gluten was obviously an issue.

cgd Newbie
cgd
Posted

I agree with Kaiti. If the diet works, that's the real proof. Since your daughter has it, chances are he has it since your bloodwork was normal (there's a genetic component). Staying gluten-free agrees with him, and it's good for your daughter to have a gluten-free buddy :D

Guest nini
Guest nini
Posted

I agree 100% with Kaiti.

  • 2 weeks later...
mamaathome Explorer
mamaathome
Posted
  • Author

Thanks for all of your input!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,575
    • Most Online (within 30 mins)
      7,748
    Wendy SM
    Newest Member
    Wendy SM
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Is it gluten?

      By Wheatwacked · Posted

      Hello @A Wilson, Glad you found us.   There is your answer.  The results from the tests are just more data to the puzzle.
    • Wheatwacked
      Is it gluten?

      By Wheatwacked · Posted

      Hi @Woodster991, You do need to see a health professional to make sure it is not appendicitis.  Rebound tenderness, fever.   Is it gluten?  Yes.  It is also serious vitamin and mineral deficiency.  Either by Celiac Disease malabsortion, food avoidance or just not getting enough.  Consider significantly increasing your intake of vitamin D, B1, Choline, Iodine, B2, B3, B5, B12.  The vitamin D test, (25(OH)D, is simple and accurate. Whole Milk yogurt and berries to populate your gut with benificial bacteria.  I drink Red Bull for energy.  Eat food low in omega 6 fatty acids. The ideal ratio is less than 3 omega 6 to 1 omega 3.  For some, the Modern American Diet is estimated to be more than 14:1.  Very inflammatory.  Wheat flour is 22:1.  Grass fed milk is 1:1. Whether Celiac Disease (1% of the population) or Non Celiac Gluten Sensitivity (10% of the population) would take blood tests and endoscopy. It is either that, or you have managed to contract 6 or 7 different diseases at the same time. You don't need a doctor's permission to not eat gluten anymore than you would to eat Chinese food.
    • trents
      Is it gluten?

      By trents · Posted

      Being gluten free for two weeks prior to testing can make a difference in the test results if the score is borderline.
    • A Wilson
      Is it gluten?

      By A Wilson · Posted

      Hello, New to Celiac.com, glad I found this site. I have had a lot of GI issues most of my life. Recently my GI issues got so bad I tried a gluten free diet and made a appointment with my GI doctor. I  got the Celiac disease blood test but I  had been gluten free for two weeks before the test. My doctor told me being gluten free for two weeks would not make a difference in the test results. I am not sure I believe that.  I have been reading a lot of articles about Celiac disease and they all give the same information. My GI issues are all gone since my gluten free life started around October 16th 2024, and I  don't want to go back to eating gluten. I am nervous about going back to the doctor for my test results.   
    • nanny marley
      Is it gluten?

      By nanny marley · Posted

      I was also told I had IBS years ago like literally it's just IBS the docter said I've had lots of  the symptoms you say there plus much more but I'm convinced it's not just IBS although I feel very sorry for people who get told this too because IBS is a real problem for people too it's awfull how much ignorance is around in the world these days from docters try the elimination diet like I did gluten free I also did lactose because it was still bothering me I found a real big change I've read some members here say  it can be quite hard to get a diagnosis and help but there is plenty of self help here it's not wrong to self diagnose if you find that it truly is a Life changer be true to your own needs and ask people already suffering for advise it's about your quality of life now and for future this us were I'm heading if I have no luck with docters I will have luck helping myself 🤗
×
×
  • Create New...