Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened ?

tennisman

Recommended Posts

tennisman Contributor
tennisman
Posted

On thursday I think I accidentally had some gluten, a very tiny amount from cc . Since thursday night I have had bad stomach pain in the middle and left side of my stomach , I have always thought this type of pain is a gluten pain . It's completely different from the other stomach pain I have been getting the last few years . But I always thought if I have eaten gluten I get D , tiredness and stomach pain . Yet this time I just get stomach pain :S Could it be possible my symptoms have changed ? I really don't understand if it's a gluten pain or something else . It's been going on for 5 days and not improving , normally if I get this pain it lasts 3 or 4 days . I wish I could eat some gluten just to see what symptoms I get from being Glutened .

Also has anyone had a small bowel Mri scan ? I have to have one and on the letter it says I have to drink something but i'm not sure if it's gluten free .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Ask your doctor to write on the MRI request that the contrast needs to be gluten free. Usually the gluten free forms will be a thin liquid not the thick chalky stuff.

For the stomach pain have you tried Pepto Bismal liquid? That usually helps if it is something you can take.

It is possible for the D to take some time to show up. For myself it is 3 to 5 days after I injest the offending food. If I only have stomach pain and get C instead of D it is usually soy that is the offender but that may not apply for you.

tennisman Contributor
tennisman
Posted
  • Author

Ask your doctor to write on the MRI request that the contrast needs to be gluten free. Usually the gluten free forms will be a thin liquid not the thick chalky stuff.

For the stomach pain have you tried Pepto Bismal liquid? That usually helps if it is something you can take.

It is possible for the D to take some time to show up. For myself it is 3 to 5 days after I injest the offending food. If I only have stomach pain and get C instead of D it is usually soy that is the offender but that may not apply for you.

Thanks I will ring my doctor :) Cool , I hope it's nothing like barium lol. I have never heard of Pepto Bismal liquid I will have to get some . My doctor gives me Mebeverine but it doesn't really do anything . When I was 1st diagnosed I got Mebeverine medicine which helped a little , but now they tell me i'm too old for the medicine and have to take the tablets which don't help. I'm usually the opposite D starts after a few hours or the next day. I haven't had a problem with D or C . I also have some chest pain . I'm going to stop alcohol for a few days , I drink alcohol almost everyday because it helps the pain . My mum told me my great grandfather used to drink a shot of alcohol to stop his stomach pain .

ravenwoodglass Mentor
ravenwoodglass
Posted

Alcohol is one of the worst things you can do for stomach pain. It may stop you from feeling the pain for a short time but it is a big stomach irritant. You are doing the right thing by dropping the alcohol for a while.

tennisman Contributor
tennisman
Posted
  • Author

Alcohol is one of the worst things you can do for stomach pain. It may stop you from feeling the pain for a short time but it is a big stomach irritant. You are doing the right thing by dropping the alcohol for a while.

If I have my normal stomach pain I drink alcohol and it helps 9/10 times . But for this gluten pain it doesn't work as well. I think I see alcohol as a pain killer. I used to use it to help my back pain a few years ago drinking alcohol was the only thing that helped my back . Is all alcohol bad for stomach or is fizzy alcohol like cider worse than a still drink like wine ? I haven't had any alcohol today and my stomach has been worse :(

ravenwoodglass Mentor
ravenwoodglass
Posted

Can you try eating something that is soothing to your stomach? Maybe Cream of Buckwheat or Cream of Rice or perhaps some applesauce or even gluten-free crackers? That might help a bit. Do you eat soy or consume dairy? If you do have you tried cutting those out for a bit to see if it helps? Are you in the UK? I ask because I am aware that in some places in Europe Codex Wheat Starch is considered safe. If you consume products with that in them it might be a good idea to drop them for a bit and see if that helps.

Since you have been gluten free for a pretty long time it is good that you are checking things out with your doctor. Hopefully you will figure out what is going on soon and be feeling better.

tennisman Contributor
tennisman
Posted
  • Author

Can you try eating something that is soothing to your stomach? Maybe Cream of Buckwheat or Cream of Rice or perhaps some applesauce or even gluten-free crackers? That might help a bit. Do you eat soy or consume dairy? If you do have you tried cutting those out for a bit to see if it helps? Are you in the UK? I ask because I am aware that in some places in Europe Codex Wheat Starch is considered safe. If you consume products with that in them it might be a good idea to drop them for a bit and see if that helps.

Since you have been gluten free for a pretty long time it is good that you are checking things out with your doctor. Hopefully you will figure out what is going on soon and be feeling better.

I have never heard of Cream of Buckwheat , I will have to try and find some . My stomach improved from thursday - saturday I had very little pain . It's strange I think I accidentally eat gluten and than my stomach pain improves. I eat dairy , dairy has always been a ? Because I came off dairy for 2 months and my stomach pain didn't improve but my flaky hair dandruff was completely gone and as soon as I went back on dairy the dandruff was back seems connected. I'm in the uk , I very rarely eat wheat starch products. I remember in 2008 my stomach became bad again and also many of the gluten free prescription products changed recipes at the same time , so i'm going to change my prescription products and see if that helps . Thanks , I hope my new doctor figures out what's wrong soon .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,175
    • Most Online (within 30 mins)
      7,748
    Janice Emmendorfer
    Newest Member
    Janice Emmendorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing

      By Wheatwacked · Posted

      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...