Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Problem?


Googles

Recommended Posts

Googles Community Regular

So I'm worried that I am/have developed another digestive problem. Six months ago I got glutened (CC) and then had three months of D, nausea, and vomiting. It slowly disappeared over time. Now last week I started getting D again and nausea. I took Imodium because I had to go to class. That stopped me up for two days and then I had normal BMs for three days. Now the D is back. I don't think this is a glutening as I don't have any of the other symptoms that I get with glutening (not even cramping). I have been gluten free for two years. Could I be developing soy intolerance or lactose intolerance after this amount of time? Any advice/ insight is very much appreciated. Everything has been going well so far.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

So I'm worried that I am/have developed another digestive problem. Six months ago I got glutened (CC) and then had three months of D, nausea, and vomiting. It slowly disappeared over time. Now last week I started getting D again and nausea. I took Imodium because I had to go to class. That stopped me up for two days and then I had normal BMs for three days. Now the D is back. I don't think this is a glutening as I don't have any of the other symptoms that I get with glutening (not even cramping). I have been gluten free for two years. Could I be developing soy intolerance or lactose intolerance after this amount of time? Any advice/ insight is very much appreciated. Everything has been going well so far.

If you are abstaining from gluten, you may now notice sensitivities (intolerances) to other foods. You may have had those reactions all along, but your gluten intolerance reaction was more noticeable. You could actually have a casein (dairy protein) allergy, rather than mere lactose (milk sugar) reactions. After I abstained from gluten, I still had reaction symptoms. So I got allergy (ELISA blood) tests, which showed I had 5 more allergies (besides dairy and gluten, which Enterolab diagnosed).

Even after eliminating my allergens, I still had symptoms. So my doc gave me a stool test for bacteria, parasites and candida. Over a 4 year period I treated 8 different gut bugs. Only after I identified and abstained from all my allergies and identified and treated all my gut bugs did my symptoms finally disappear. I read so many posts on this board from people who think they are being 'glutened' even when they conscientiously abstain from gluten. Unfortunately they don't consider (or get tested for) other allergies or gut bugs. If you know you're not consuming gluten, consider getting reliable allergy tests and/or stool tests for gut bugs from a reputable naturopath

Roda Rising Star

Another thing to consider is that your "glutened" symptoms may have changed. Mine sure did. For about the first year after I went gluten free if I accidently got glutened I would start off with reflux then be constipated for about 4-5 days. After that I spent the next 8 months of 2010 chasing down other reasons for new symptoms: belching, reflux, pinching sensation in my RUQ, relentless D and steatorrhea. What I discovered during that time was that my gallbladder is slightly underfunctioning and I developed a peptic ulcer. Watched my fat intake and any other food that might aggrivate the ulcer and took zantac for two months and improved healing the ulcer. The D and steatorrhea persisted and doc wanted to put me on steriods and I refused. I did a further elimination of even gluten free items and found out that I was reacting to the gluten free oat contamination in products. With the aid of taking creon for a few months I finally healed. Now if I eat anything gluten free that has oat contamination or I get glutened I get the D and steatorrhea. I have to start taking the creon again to help me through for about 1-2 weeks until I'm back to normal. Of course all of that didn't help the gallbladder and now I think I am having issues from that again as I know I wasn't glutened. My symptoms from that I believe are severe reflux/burping and the pinching sensation in my RUQ and sometimes pain.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,836
    • Most Online (within 30 mins)
      7,748

    Art Glassman
    Newest Member
    Art Glassman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @ABP2025, Here's some studies and articles that will help you learn more about thiamin and all... I will write more later. It's possible that your antibiotic for giardiasis has caused thiamine deficiency.   https://hormonesmatter.com/metronidazole-toxicity-thiamine-deficiency-wernickes-encephalopathy/ And... https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ And... Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ and... Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/      
    • DayaInTheSun
      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
×
×
  • Create New...