Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questiion About Fructose Malabsorbtion


chrissygirlca

Recommended Posts

chrissygirlca Apprentice

I've been diagnosed with Celiac in October and cheating on and off since. Most with Dairy and caesin which is why I haven't been feeling better. I started this month to go completely dairy and gluten free but sometimes fruit and sugary stuff bother me. Almost everything vinegar even if it is gluten free citrus. - was advised by a previous question to stay away from Fructose untiLl I figure out if my pains are from the cheating on and off or actuaLly from the fruit and veggies. Does this mean I should stay away from corn too? Is one who suffers from this automatically sensitive to corn or just the sugar? I'm so confused as to what to eat people keep telling me what to stay away from so far its soy nuts eggs dairy caesin wheat now fructose? I'm hoping it was just the fact that I was cheating on and off grrr getting so bored of rice meat and certain veggies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Fructose is in honey, high-fructose corn syrup, corn syrup solids, fruits, and fruit juices. Plain old corn is OK. Regular sugar is a molecule that's half glucose and half fructose, so it can also make you sick if you eat a lot of it. There are fructans that might also make you feel ill in artichokes, asparagus, onions, and brown rice. (Wheat too, but you won't be eating that.)

Soy, eggs, nuts, and dairy tend to cause allergies, which is different from fructose malabsorption. FM will make you gassy, maybe reflux, stomach aches, burping. Allergies can do all sorts of things but not usually the gas.

Casein is special and some celias react to it as if it were gluten. If I were you I'd go strict gluten-free/CF first and maybe keep a food diary to sort out other reactions.

chrissygirlca Apprentice

Fructose is in honey, high-fructose corn syrup, corn syrup solids, fruits, and fruit juices. Plain old corn is OK. Regular sugar is a molecule that's half glucose and half fructose, so it can also make you sick if you eat a lot of it. There are fructans that might also make you feel ill in artichokes, asparagus, onions, and brown rice. (Wheat too, but you won't be eating that.)

Soy, eggs, nuts, and dairy tend to cause allergies, which is different from fructose malabsorption. FM will make you gassy, maybe reflux, stomach aches, burping. Allergies can do all sorts of things but not usually the gas.

Casein is special and some celias react to it as if it were gluten. If I were you I'd go strict gluten-free/CF first and maybe keep a food diary to sort out other reactions.

I get alot of gas every day since ive been better i was okay for like the first two weeks then was getting worse so i gave up and started cheating like once evry two weeks even when i wasnt it would be bad i would try rice meat veggies. Fruit orage juice i will never drink again in my life that was horrible. im afraid of even the texture of food anything that looks mushy or just looking at like avacados im scared to try it cause im scared of the D/gas. I was very malabsorbed when i went for my endo test already. I know i made it worse by cheating but i was so depressed from not knowing what to eat and trying everything and being dissapointed. SOy milk instead of regular milk..nuts...any fruit especially citurus fruit sometimes banannas are okay. Im verybad though at trying one new thing a day so sometimes ill have two things in one day and not know what its from and avoid both. The doc finally gave me the caesin list of how things can say lactose and have dairy. So i tried that diet. I tried a few molly b's dairy free soy free nut free what not they were tart things and i had crazy pain and bad D. A few times i tried berries and i felt pain/cramping too right away but then again at one point i was taking a million lactaid and enzymes before and after i ate to eat dairy. So im not sure if it was the dairy or the sugar. Im pretty sure its the sugar because anytine i start getting better i try honey or brown sugar on my food and start getting sick again and then im like what the hell im already sick might as well eat the dairy cause i say at least its not gluten but its proabaly just as bad for me cause it gives me bad d and cramps and muscle/joint pains. Im also deathly afraid of almond milk after trying it and gettin sick so im done with alternatives. At least untill i figure out if it was the dairy causing me to be sensitive to those foods. I know i shouldnt be cheating but i was going through alot and depressed. Now im just tired of being sick and people giving me funny looks from gas its not fun. I know everything about caesin now i have to learn about this frutose malabsorbtion thanks for that info. Sometimes if the meat has too much natural oil or like the salmon steaks skin that gets oily makes my stomach bubbly too. Someone told me it can take like 5 months to actualy know and start feeling better id rather just eat ric meat and veggies for the rest of my life than have to worry about gettin those episodes and going out its really not fun. I seem to be somewhat okay when i stick to that diet. Im not sure if im getting enough nutrients but im also sfared of the ingredients in the vitamins cause i know they can have acid and other things in them that would affect my testing.

Skylark Collaborator

You won't hurt yourself nutrition-wise with white rice, potatoes, meat, low-fructose veggies for a while. Eat what settles your stomach and get well! Besides, how can you be nourished when you are malabsorbing everything? You have to heal to even get good nutrition from your food in the first place. Right now, you just need to feel a little better, right?

I bet you can tolerate a Tums for calcium (the tablets are gluten-free), a vitamin D pill, and some sublingual B12, which are the three things we celiacs seem to need the most.

Stay strong, stick to a diet that keeps you feeling decent for a while and come here if you need encouragement to keep from cheating, OK?

sreese68 Enthusiast

I also malabsorb fructose. The embarrassing gas and the stomach pain was not fun!! I also found that it's one of the things behind the fatigue and lethargy I was having (gluten also does this to me).

It's a pain figuring out what fruits and veggies you can eat because the amount of fructose in them varies by season, where they're grown, and variety of fruit. I can eat strawberries, blueberries, and things in the orange family. HOWEVER, only one serving at a time AND separated by a couple of hours. If I eat too many in one day (even safe fruits), I also get symptoms.

You really, really need to only introduce one food at a time. Eat it for 3 days and write down any symptoms before you try another food. Honestly, waiting a week is much better. My symptoms don't show up until 2 days after I eat an offending food.

Brown rice doesn't have fructose or fructans in it. It's been tested recently by Sue Shepherd who's one of the authorities in this area. Saying that, I can't tolerate it. Gives me terrible stomach pains 2 days after I eat it and messes with me for a week after that. But many with fructose mal can eat it. I would avoid it until you get your symptoms under control just in case.

I found IBS Free At Last to be a helpful book and a good starting point: Open Original Shared Link And this Yahoo group is helpful: Open Original Shared Link Both talk about the FODMAP diet, which has you eliminating the most likely irritants for your stomach until your symptoms are mostly gone and then adding things back one at a time. In my opinion, it's a good place to start and is less extreme than some elimination diets out there. (Not that I discount other diets... I think different things work for different people.)

You should find a diet that keeps your stomach calm. But it may take a 2 or 3 weeks for things to calm down, so be persistent! My main diet is meat, baked potato with olive oil, small amount of carrots, fruits I mentioned above, and corn products like tortilla. White rice is good, too.

Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,112
    • Most Online (within 30 mins)
      7,748

    aasyed
    Newest Member
    aasyed
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Soleihey
      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
    • Erain
      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels are less than the standard limit of <20 ppm.    If you have allergy concerns about consuming the grasses, we recommend consulting further with your healthcare provider. I hope this information helps! Please let us know if you have other questions.   
    • Erain
      That’s great to know. Thanks Scott
    • trents
      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost all food there have gluten so I was going very hungry. They do offer a gluten free menu with a report though. So I decided I should try getting a diagnosis if I can, especially after reading how it was much harder to do gluten challenge after quitting gluten for a while. I was able to get an appointment for next week, and started eating around 150gr of bread per day to be sure.  First 24 hours I didn't feel any worse so I was starting to doubt myself, but then bloating hit hard. It wasn't anything unbearable, but the problem is I have finals soon and I'm now realizing this is a really bad time to do this. I can't begin studying from pain distracting me. I'm thinking of cancelling the appointment and eat low gluten until exams are over.  I worry about one thing. Before I went low gluten, I was eating a lot of bread already for over a month, which is what clued me into gluten, and I only went low gluten for around 10 days before going high gluten again. I wasn't that worried about a false negative. But if I eat low gluten until my exams are over, it means over a month of low gluten, and I would need a lot more time eating high gluten later to get a correct result.  I'm not sure which one should I do, bear it until my appointment or cancel it and try again when I'm free later. And If I choose the second one, how long would I need to do the gluten challenge for a blood test?
×
×
  • Create New...