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Lump On Neck

Hennessey

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Hennessey Rookie
Hennessey
Posted

Has anyone had a celiac symptom that consists of a small dime size lump on side of neck??

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jenvan Collaborator
jenvan
Posted

where is the lump at in your neck?

lovegrov Collaborator
lovegrov
Posted

Doesn't sound like a celiac symtpom to me.

richard

Canadian Karen Community Regular
Canadian Karen
Posted

Possibly thyroid related, do you have thyroid disease?

Still, definitely worth going to your doctor about.....

Karen

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

YES, I had a lump on my neck. It was a hot nodule on my thyroid.

If you would like I will take you back to what lead up to it for me.

About 5 years ago I didn't know what it was. A family member a nurse (not blood related) told me about C D. I believe it was Celiac attacks, they were unbearable I would passout and etc. The thyroid doc said I had borderling HYPER-thyroid. I went on a Dairy Free & GLUTEN FREE diet and got better for 4 years. Or I thought. I still ate night shade veggies and legums and lots of soy and fish. MAJOR STRESS HIT. 2 major hurricanes (barametic pressure dropping wasn't good for my stressed out system) MORE MAJOR STRESS and bam everytime I got upset the thing in my neck grew. No kidding! It felt like I had a lump in my throat and people would say why is that happening -- calm down.

I had a UptakeIn Scan. Ratioactive Iodine to see for sure and confirm it [was a hot nodule]. The doc said they could burn off the nodule (with radioactive iodine treatment) and leave the thyriod gland in tack. But they burned up my entire thyroid, and now instead of being HYPER - I'm now HYPO. I am on thyroid med's I'm sure for life. But the night shade and legems and many other food have since become toxic to me. And the thyroid med has corn in it and I can't tollerate corn. I had a compounding RX make it up for me pure, but with so many power outages the med had to be refrigerated. I take LEVOXYL now.

Go see a thyroid doc (hope you find one that understand C D.)

DON'T mess around and not go, it can kill ya. Thyroid is very important...

RiceGuy Collaborator
RiceGuy
Posted

I agree that it sounds like a thyroid problem. As I understand it, one of the more noticable problems from the damage to the small intestine is not absorbing magnesium. That is very important for a whole lot of things, including the thyroid. Iodine is also important of course.

While I'd recommend getting it checked, I wouldn't let them talk me into radiation/surgury/drugs/etc. I'd suggest making sure you are totally gluten-free of course, get plenty of magnesium (which is in green veggies like spinach), and get proper amounts of iodine. Kelp is a good source of iodine. Just be careful not to overdo it. There's nothing better you can do for your body than proper nutrition.

I'm not an expert on the thyroid, but that's where I'd start if it were me. I would Google for valid info on this too, but be very careful not to get taken by all the misinformation and drug studies.

To me, there is enough evidence linking Celiac disease and thyroid problems, that I think solving the damage from gluten can reverse/prevent many other problems and diseases, including those of the thyroid.

kevsmom Contributor
kevsmom
Posted

When I first read the subject, I thought about the Humpback of Notre Dame :D . It's early, I guess I'm not totally awake yet...(or glutened).

I didn't mean to make fun of you...I hope you have a good sense of humor. The comment was meant to be funny.

It could be related to your thyroid. I would get it checked out if I were you.

Good luck!

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Rusla Enthusiast
Rusla
Posted

I have to concur that this sounds like thyroid to me. I have had thyroid nodules, get an ultra sound because many times the thyroid blood test will show normal when things aren't that normal.

darkangel Rookie
darkangel
Posted

Could also be swollen lymph glands. Whenever I'm sick or having a flareup of other symptoms, I can feel sore, swollen glands on both sides of the back of my neck. Occasionally, the ones under the edge of my jaw in front will get swollen and sore, too. Have you ever had mono? Or Epstein-Barr?

jenvan Collaborator
jenvan
Posted

dark angel has a good idea...i agree it could just be swollen lymph nodes. my understanding is that a thyroid nodule is straight on--in the front of your neck, not on the side.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Hi again it's me.

I've learned a lot about thyroid and food...

If your thyroid is HYPER you need to eat [less of food with iodine] (fish), and etc...

If your throid is HYPO you need to eat food that will stimulate it.

The material on the net is VERY CONFUSING! It was for me. Don't mess around with this. I went to several doctors. I went to one alternative doc that told me to have the lump cut off my thyroid. OUCH! I am a major DIVA, a girly-girl hair make up, highheels, you know the type. It makes me feel better when I wear something to lift my spirits. I couldn't bear having a scar across my throat like my neck was cut side to side. On my blogg there is a pic of Aunti & I, I have a scarf around my neck only because it went with the outfit. Not to cover up anything, although my thyroid was bothering me at the time.

But if you look at where the thyroid is and where your lump is. It is not under your chin, or where your limp nodes are. Perhpas it could be swollen a doc would know better. It is at the base of your neck and the gland is a butterfly shape. It can expand from side to side if everything is swollen. I'm not a doctor, and I dislike them following the experiece with my Auntie on a feeding tube. But I will say the radio active iodine treatment kicked my skinny-butt. Open Original Shared Link

Here are a few links to show you where it is. I haven't read the information listed on these sites.

Open Original Shared Link

This one has lots of pix Open Original Shared Link here it what it looks like http://www.yourdictionary.com/images/ahd/jpg/A4thyroi.webp

  • 3 months later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Hennessey -- It's been a while... did you find out what the lump was?

Rusla -- knows a good deal about thyroid problems too I remember reading she had a problem also.

Guest cassidy
Guest cassidy
Posted

My mom had a lump on her neck. Then she got one on the other side and they got very itchy. She finally told me about 6 months later when we was sure she was on her death bed. We did some research and figured out she couldn't have gluten. She has been gluten free for 8 months now and the lumps went away shortly after starting the diet. Now, if she mistakenly eats gluten, her first symtpoms are her voice going hoarse, and her throat feeling like it is closing. She also gets hives and intestinal symptoms.

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

Watch out for SOY!!!

It's also poison for us with thyroid problems.

LEGUMES are in the SOY family too.

Open Original Shared Link on the right side I list some links about soy... I'll add them here. Open Original Shared Link and one more Open Original Shared Link or this one is great it's not on my blogg yet. Open Original Shared Link

Take care and be well.

  • 2 months later...
DBRIDGEVEGAS Rookie
DBRIDGEVEGAS
Posted

I also have a lot of celiac symptoms. One thing I noticed is that when I eat any gluten I have a lymph node on the back of my neck that gets really swollen...which pushes on a nerve that gives me headaches. Does anyone ever experience any burning sensations in their stomachs after being glutened? How about bloating so bad at night that their stomach seems to go numb in some places. I have not officially been dx'd as a celiac...but I am sure that I am. Every doctor I have seen doesn't even know what it is. They just tell me I am a hypochondriac and write me a prescription for whatever they think will help. I have pretty much given up on doctors and will fight this thing on my own.

jessyjames13 Newbie
jessyjames13
Posted

I just found this website tonight while browsing webmd. I have not been diagnosed with celiac disease but have researched enough about it to wonder if some of my past health problems may be due to celiac disease

I have a hot nodule on my thyroid. It was found almost 10 years ago during a routine physical, since then i have had numerous biopsies, rai uptake and scans, ultra-sounds, and blood test after blood test after blood test. I have been told I am borderline hyper-thyroid, but my TSH levels are not low enough for my doctor to diagnose me with anything. I have had problems with my intestines or as the doctors say "the stomach flu" for my entire life, as well as weight gain for the past 10 years. I often have debilitaing symptoms such as severe cramping,gas, diarrhea, vomiting, dizziness, etc sometimes up to five - six times a year, and generally over the rest of the year I just don't feel "right" As with a post from above...my nodule changes in size for no apparent reason. it is frustrating when you are not able to figure out what is going on. i am not willing to have the doctors burn off the nodule using radioactive iodine. but i am willing to try just about anything to figure out what the heck is going on. I would just like you all to know, it is nice to hear similar symptoms in people and feed back as I have never heard soy can affect people with thyroid problems as well as the statement from riceguy "To me, there is enough evidence linking Celiac disease and thyroid problems, that I think solving the damage from gluten can reverse/prevent many other problems and diseases, including those of the thyroid." I will be contacting my doctor to further inquire about this information. if anyone has any suggestions of where to start and what questions can be asked I would welcome the feed back. thanks

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    • trents
      Worsening oral health with celiac

      By trents · Posted

      The form of the magnesium is important. Go for one that has high absorbability. Most of us opt for magnesium glycinate. Mag citrate is also good. Don't settle for the oxide forms. They aren't absorbed well and tend to have a laxative effect 'cause they just draw water into the colon a' la Milk of Magnesia. Costco is a good place to shop for things like that. Also, good bone and dental health involves vitamin D. Are you taking a dedicated D3 supplement? Have you had your D levels checked? In many ways, vitamin D is turning out to be a master vitamin of human metabolism and celiacs are often low on this one. What was the numerical score on your IGA along with the reference range? I can probably tell you whether it was TTG-IGA by the magnitude of the score. The only other likely option besides TTG-IGA would be Total IGA which usually has scores that range in the hundreds.  I do think it important for you to get a follow-up endoscopy/biopsy to check for healing of the villi. If that isn't happening like it should, you still are not absorbing nutrients well and that could easily explain your dental issues.
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      It doesn’t specify if it’s TTG I’m not sure how to tell for that. That would be so sad. We never eat out I try to be so strict. Yes many dental products have gluten! I only use ones that don’t on myself.    No follow up procedure has been done for healing. That is something I will ask about. Thank you for the suggestion.    I don’t take any Magnesium. What would be a good supplement? 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Is that TTG-IGA that is slightly elevated? That could indicate you are still getting some gluten in your diet. That should be within normal range I would think if you were truly gluten free. As a dental professional have you looked into the issue of gluten in the products they use in your profession? There are threads on this forum and also articles I think dealing with that issue. Have you had a follow-up endoscopy to check for healing of the small bowel villi? Also, are you taking any magnesium supplements for bone and dental health? Very important. It works together with calcium.    
    • Jodi Lee K
      Worsening oral health with celiac

      By Jodi Lee K · Posted

      I’ve had GI issues since I was a baby! They never did any testing and always said diet issues and constipation. Things got a lot worse when I hit 25, eventually got a diagnosis and I am currently 29. Yes, just recently saw my GI doctor in January and things looked pretty good. Very slightly elevated IgA but IgG was good. My ionized calcium is elevated too. I also have hashimotos but my TSH was good. 
    • trents
      Worsening oral health with celiac

      By trents · Posted

      Do you have any sense of how long before your diagnosis the onset of your celiac disease may have been? For most of us, there are years that pass between the onset and finally getting a diagnosis and by that time damage has already been done to body systems. May we ask your age? Also, have you had any follow-up testing since diagnosis to check for celiac antibody levels or healing of the villi?
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