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Talked To My Doctor Finally :-/

JH85

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JH85 Rookie
JH85
Posted

So I went to my doctor today (finally) about my symptoms he said it sounds just like Celiac. He did a blood test and should be getting back to me shortly. Kind of nervous about this :unsure: I also discussed with him my in ability to always walk in a straight line and my balance issues which I read something on here about Ataxia that could cause this. He did some tests in his office, which I did not exactly pass with flying colors :( Waiting now for the neurologist to call me or my doctor with an appointment. Gotta have an MRI done. I hate those things, only had one other done before when I had torn my meniscus in my left knee. Those things are sooooo loud and intimidating lol... Oh well, I will let you guys know my results soon as I get them myself. That is if anyone cares :( Wish me luck everyone!! :)

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pain*in*my*gut Apprentice
pain*in*my*gut
Posted

So I went to my doctor today (finally) about my symptoms he said it sounds just like Celiac. He did a blood test and should be getting back to me shortly. Kind of nervous about this :unsure: I also discussed with him my in ability to always walk in a straight line and my balance issues which I read something on here about Ataxia that could cause this. He did some tests in his office, which I did not exactly pass with flying colors :( Waiting now for the neurologist to call me or my doctor with an appointment. Gotta have an MRI done. I hate those things, only had one other done before when I had torn my meniscus in my left knee. Those things are sooooo loud and intimidating lol... Oh well, I will let you guys know my results soon as I get them myself. That is if anyone cares :( Wish me luck everyone!! :)

I care! :) Glad you are on the track to getting some answers. It sounds like your doc might be a good one, which is so refreshing to hear these days!

I have balance issues, too. :unsure: I cannot turn around too fast (like in the kitchen, from the stove to the sink) without loosing my balance. If it happens in public, like the grocery store, I always look around to see if anybody saw me....they might think I was drunk. :blink:

Good luck, and keep us posted for sure! :)

MissKris2 Newbie
MissKris2
Posted

Definitely let us know! Take Care :)

JH85 Rookie
JH85
Posted
  • Author

So 2 days later and no news from neurologist with an appt. And of course both doc's offices are closed tomorrow. I live in Central NY and everyone is waiting to see what Irene has in store for the east coast. One more unforeseen occurrence to dampen the mood around here..... Better keep the rum and tequila coming!! :P:D:lol:

pain*in*my*gut Apprentice
pain*in*my*gut
Posted

So 2 days later and no news from neurologist with an appt. And of course both doc's offices are closed tomorrow. I live in Central NY and everyone is waiting to see what Irene has in store for the east coast. One more unforeseen occurrence to dampen the mood around here..... Better keep the rum and tequila coming!! :P:D:lol:

Sorry you haven't heard back yet...grrr! :angry:

At least rum and tequila are gluten free! :P

Stay safe!

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    • trents
      False blood test positive?

      By trents · Posted

      Since your mother has celiac disease, I would still keep an eye on this as there is a genetic component. Study results vary wildly, but the numbers are that anywhere from 10% to almost 50% of the first degree relatives of those with active celiac disease will themselves develop celiac disease.
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      Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case the skin ... The Coeliac rash that won't go away without a strict gluten free diet and Dapsone treatment (a toxic antibiotic). I'd also look at @glutenhatesmyguts on youtube  ... a funny educational take on Coeliac Disease ... the clips titled as follows may help ... "Celiac Disease Explained | Why Gluten REALLY Hates My Guts!" and "Story time: I almost ..." This person is on Tiktok also and has a category "Coeliac & gluten-free Info ". There's plenty of Coeliacs on Tiktok and IG posting frequently and advocating for themselves about the need to be strict and what happens when they get glutened.    Celiac Canada also has good resources on YT, both long and short educational clips  ... @CCACeliac . Do you know any Coeliacs in your area who could help you explain the need to be so strict? Some Coeliacs have mild symptoms while others have awful reactions to just a few crumbs. Or maybe the nurse could put you in contact with some other Coeliacs or a support group to help you with your family. Hope this helps you. And keep advocating for yourself no matter what.
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