Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

What If Medication Helps?


desperate

Recommended Posts

desperate Rookie

If an antidepressant med gets rid of all my neurological symptoms that I thought were being caused by gluten, could I still be gluten intolerant or have Celiac?

I don't get any GI issues except nausea but only after lunch along with my neurological symptoms: dizziness, fatigue, eye pressure, headache, dry mouth, difficulty concentrating, lack of coordination. These things only occur after lunch and last either til dinner or the rest of the day.

My doctor thinks it is my depression and anxiety caused by a brain chemical imbalance that is causing all of this. My Celiac blood tests and biopsies were normal.

So I took the antidepressant today that he prescibed and it pretty much prevented all my after lunch symptoms.

Could this mean I am not gluten intolerant/sensitive or Celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pain*in*my*gut Apprentice

If an antidepressant med gets rid of all my neurological symptoms that I thought were being caused by gluten, could I still be gluten intolerant or have Celiac?

I don't get any GI issues except nausea but only after lunch along with my neurological symptoms: dizziness, fatigue, eye pressure, headache, dry mouth, difficulty concentrating, lack of coordination. These things only occur after lunch and last either til dinner or the rest of the day.

My doctor thinks it is my depression and anxiety caused by a brain chemical imbalance that is causing all of this. My Celiac blood tests and biopsies were normal.

So I took the antidepressant today that he prescibed and it pretty much prevented all my after lunch symptoms.

Could this mean I am not gluten intolerant/sensitive or Celiac?

It is very unlikely that the antidepressant that you have just started had anything to do with the fact that you felt better today. It generally takes at the very least 2 weeks (usually closer to 4-6 weeks) for them to kick in.

Do you keep a food journal? It might help you pinpoint what you eat and when you have the symptoms. Try it for a few weeks and see if you notice a pattern.

lucia Enthusiast

It's scary to me that your doctor is saying that. That's what I was told for years about my fibromyalgia. (It's "psychosomatic".) Then, one day I ran into a young intern who was actually up on the latest research. He told me that I had fibromyalgia and that it was a real condition. I researched what to do about it, and got better.

Maybe you should see a different doctor. Seriously.

It's unclear to me whether or not you are eating gluten. If you are not, and are still having symptoms, it's possible that you have fibromyalgia or a host of autoimmune conditions. A good doctor could help you look into that. But first, make sure that you are off of the gluten and know how you respond.

love2travel Mentor

It's scary to me that your doctor is saying that. That's what I was told for years about my fibromyalgia. (It's "psychosomatic".) Then, one day I ran into a young intern who was actually up on the latest research. He told me that I had fibromyalgia and that it was a real condition. I researched what to do about it, and got better.

Maybe you should see a different doctor. Seriously.

It's unclear to me whether or not you are eating gluten. If you are not, and are still having symptoms, it's possible that you have fibromyalgia or a host of autoimmune conditions. A good doctor could help you look into that. But first, make sure that you are off of the gluten and know how you respond.

Would you mind telling me what helped your FMS? My fibro is constantly severe - it even hurts to wear clothes. If I lie on a wrinkled sheet I must get up and flatten it. Ouch! I have seen chronic pain docs and so on but nothing has even remotely helped yet...

lucia Enthusiast

lovetotravel, I'm so sorry to hear you're in so much pain. I'll PM you since your question veers away from the topic. Anyone else should always feel free to PM me about this. I know how difficult fibro is.

love2travel Mentor

lovetotravel, I'm so sorry to hear you're in so much pain. I'll PM you since your question veers away from the topic. Anyone else should always feel free to PM me about this. I know how difficult fibro is.

I just returned to post the same suggestion. Sorry to hijack the thread, everyone!

desperate Rookie

It's scary to me that your doctor is saying that. That's what I was told for years about my fibromyalgia. (It's "psychosomatic".) Then, one day I ran into a young intern who was actually up on the latest research. He told me that I had fibromyalgia and that it was a real condition. I researched what to do about it, and got better.

Maybe you should see a different doctor. Seriously.

It's unclear to me whether or not you are eating gluten. If you are not, and are still having symptoms, it's possible that you have fibromyalgia or a host of autoimmune conditions. A good doctor could help you look into that. But first, make sure that you are off of the gluten and know how you respond.

Lucia- i am not eating gluten. I was told by several doctors after I had a very serious car accident that I had fibromyalgia. I too am interested in what helped yours. I do also have Sjogren's and Raynauds. I will try to contact you privately.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

It turns out my neurological symptoms were being caused by brain and nerve damage from being an undiagnosed gluten intolerant, plus damage to my c- spine from bone loss, and there is no anti depressant on the planet that can fix having to walk with a cane to stay upright because of malnutrition.

This was your post 8/21

I have GERD, gastritis, esophagitis, hiatal hernia all discovered during an upper endoscopy. GI doc said there was some flattening of villi but biopsies came back negative. She said it was inflammation. Blood tests for Celiac came back negative. She told me to go gluten free and see if I felt better. I did that 4 days ago but am not seeing any improvement in my symptoms which are mostly neurological and only occur every day after I eat lunch, no matter what I eat and they happen sometimes while I am eating lunch.

My symptoms are: dizzy, headache, eye pressure, brain fog, hard to concentrate, slurred speech, dry mouth, dry eyes, blurred vision, flushing, weakness, fatigue, nausea, bloating, gas.

This is not the symptom set for "anxiety."

A week is too soon to see if you will respond to a gluten free diet, especially if you haven't ironed out all the cross contamination kinks yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      New Study Reveals Hidden Gut Damage in Celiac Disease—Even Without Gluten (+Video)

    2. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    3. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,196
    • Most Online (within 30 mins)
      10,442

    Spider2026
    Newest Member
    Spider2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...