Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Good Results From A Super Gluten Free Diet


T.H.

Recommended Posts

T.H. Community Regular

I was very happy to find out a while back that on this whole 'avoid every last particle of gluten that I can' diet, my gut has entirely healed. However, anyone could argue that my gluten free diet could have done just as well, without my restricting gluten so severely, and honestly? I couldn't show any proof to the contrary. Maybe I was just someone who took longer to heal. Maybe my allergens were impeding the healing process. It could happen.

However, now I have another moment of success that actually has a distinct difference between gluten free vs. super gluten free levels: my thyroid and vitamin levels.

5 years before I was diagnosed, my hair started falling out and my thyroid levels started going up. The numbers more than doubled. Before diagnosis, my vitamin levels were so-so, but not terrible. By 1 year gluten free (diet was no processed foods, just salt and barely contaminated fresh veggies/meat/fruit), my vitamin levels were steadily going downward and my thyroid numbers were still steadily climbing to bad places.

Since then, I haven't found any vitamins I can take except for iodine, so with this last round of blood tests, I was expecting bad numbers.

I got the complete opposite! In the year since going super gluten free, my thyroid levels have dropped back to what they were before I lost my hair! My vitamin levels are all back up to good levels, too! I'm SO happy. And I want to once again thank all the folks here and other places that made it possible. Because seriously: who would look at a veggie/fruit/meat diet and think: oh yeah, that's still too much gluten.

Nobody who hasn't gone through that.

But still, going that extra, crazy-seeming step of interviewing all the farmers and ranchers and food suppliers so that gluten almost never, ever touches my food has eliminated a problem that I was SURE I was stuck with forever.

So, just...anyone who is trying out a super gluten free diet and isn't sure what kind of difference it can make, I can at least raise my hand to give one good example. :-D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Congratulations! You deserve your good health!

Thanks for sharing...

dilettantesteph Collaborator

Since then, I haven't found any vitamins I can take except for iodine, so with this last round of blood tests, I was expecting bad numbers.

I got the complete opposite! My vitamin levels are all back up to good levels, too! I'm SO happy.

Congratulations! This part about the vitamins was interesting. I found that to be true for me as well.

Bubba's Mom Enthusiast

Congtatulations! It's good to know your detective work and diligence have paid off. :D

dilettantesteph Collaborator

By 1 year gluten free (diet was no processed foods, just salt and barely contaminated fresh veggies/meat/fruit), my vitamin levels were steadily going downward and my thyroid numbers were still steadily climbing to bad places.

But still, going that extra, crazy-seeming step of interviewing all the farmers and ranchers and food suppliers so that gluten almost never, ever touches my food has eliminated a problem that I was SURE I was stuck with forever.

So, just...anyone who is trying out a super gluten free diet and isn't sure what kind of difference it can make, I can at least raise my hand to give one good example. :-D

I was thinking about this last night and this part really hit me. The diet of no processed foods wasn't enough. You had to do the seemingly crazy things that we do to make the difference.

I like having my craziness validated. It is validated by my lack of symptoms, but that could of course just be more craziness. It is nice to have it validated with real test results.

GlutenFreeManna Rising Star

Thanks for sharing, especially about the vitamins! I am also having trouble finding vitamins I can take and I have just stopped taking any vitamins right now because every type I take makes me sick or tired somehow. It's been around 6 months since I took any vitamins and my hair is not falling out anymore and I'm not struggling with major fatigue. I go to have my thyroid and vitamin levels retested in September. The main concerns for me were anemia and borderline hypothyroid. I really notice when I eat lots of beef, spinach and chickpeas I feel great. When I cut back on those foods I feel tired and weak. Whenever I eat hummus especially I feel a burst of energy. So I take that as a sign that my body is absorbing those iron and B vitamins.

Skylark Collaborator

That's great. It's so nice to hear when someone's hard work pays off.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Deanne jones replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      28

      Can food allergies like milk and soy flatten villi?

    2. - knitty kitty replied to DayaInTheSun's topic in Coping with Celiac Disease
      12

      Being a burden to family/friends

    3. - Celiacandme replied to Kwinkle's topic in Coping with Celiac Disease
      4

      I’m so confused…

    4. - lmemsm replied to jasoncrest's topic in Gluten-Free Recipes & Cooking Tips
      4

      Recipe Apps?

    5. - lmemsm posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      food app


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,278
    • Most Online (within 30 mins)
      7,748

    Trevor Allen
    Newest Member
    Trevor Allen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Deanne jones
      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
    • knitty kitty
      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
    • lmemsm
      Open Food Facts is a free food database: https://world.openfoodfacts.org/discover  There's an app to access it which is also free (with no in app commercials).   You can use it to look up information about foods such as ingredients, Nova score (to help avoid ultra processed foods), environmental impact and nutritional scores, allergy related information and more.  It can scan a product's barcodes and bring up relevant information about that product.  The project relies on volunteers to share information about products.  We can add information on our favorite gluten free products to share with each other.  It has several gluten free items in the database already:  https://world.openfoodfacts.org/cgi/search.pl?search_terms=gluten+free&search_simple=1&action=process  I think it could make a great tool for people with celiac. 
×
×
  • Create New...