Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Too Many Things Asociated With Celiac Disease

allergyprone

Recommended Posts

allergyprone Contributor
allergyprone
Posted

Ok so I'm 18 and I've had celiac disease for about 2.5 years now. For about the 1st year I just followed a gluten free diet and felt better, I couldn't care less how I got it or what else could be wrong with me or even if my family had it or not. Well at about the 1.5 year mark I had a bad case of Hives it covered my feet, side, wrists, and it lasted forever (about 5 months) and my dr said it was no big deal, finally the hives subsided.

About 2 months ago I started feeling strange not like I had been glutened but just a bunch of unusual symptoms like a rash on my ears and foot (i do have dyshidrotic eczema, but it wasn't the same), being really tired, and a bunch of other things. When they first started I was working for a camp so I attributed it to that and now I just started college so it could all be stress but I don't know for sure.

I have been doing a lot of reading about the different things you can have/develope/are at risk for when you have celiac disease and started to realize that I haven't been tested for any of that and was wondering if anyone could tell me what we should be tested for so I can bring a list to my pediatrition (currently looking for an adult dr)or at least know what to keep an eye out for myself.

much appreciated

nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

Ok so I'm 18 and I've had celiac disease for about 2.5 years now. For about the 1st year I just followed a gluten free diet and felt better, I couldn't care less how I got it or what else could be wrong with me or even if my family had it or not. Well at about the 1.5 year mark I had a bad case of Hives it covered my feet, side, wrists, and it lasted forever (about 5 months) and my dr said it was no big deal, finally the hives subsided.

About 2 months ago I started feeling strange not like I had been glutened but just a bunch of unusual symptoms like a rash on my ears and foot (i do have dyshidrotic eczema, but it wasn't the same), being really tired, and a bunch of other things. When they first started I was working for a camp so I attributed it to that and now I just started college so it could all be stress but I don't know for sure.

I have been doing a lot of reading about the different things you can have/develope/are at risk for when you have celiac disease and started to realize that I haven't been tested for any of that and was wondering if anyone could tell me what we should be tested for so I can bring a list to my pediatrition (currently looking for an adult dr)or at least know what to keep an eye out for myself.

much appreciated

nicole

Hi Nicole, and welcome to the forum!

An Allergist can run a "Hive Panel" on you and do skin prick testing for other food allergies. I had the food skin prick testing but not the hive panel because I know what makes me break out in hives. (For me, it's OTC cold medications and decongestants, most antihistimines. I seem to be able to tolerate Zyrtec.

Are you careful with your selection of H&B products? Like lip balm, sun screen, lotions? The other usual culprits for feeling fatigued after being gluten-free for awhile are cross-contamination or the onset for new food intolerances like corn, soy, dairy, nightshades or glucose. And as you noted, stress doesn't add anything pretty to the picture. Good luck, hope you figure out what's getting to you.

allergyprone Contributor
allergyprone
Posted
  • Author

I haven't seen an allergist because my dr doesn't think its necessary, I had a food allergy blood test and they said I didn't have any food allergies at all, although I do know most of the foods and other things that bother me

petroleum, prednisone, pinicillin, dust, wasp venom, spider venom, smoke, bananas, peanuts, beans, broccolli, cabage, coliflower, brussel sprouts, corn, some types of soy, eggs, and sometimes tapioca

i do my best to avoid these things

I have a very low chance of cc because I am living by my self and buying/cooking all my own foods, and I tend to keep towards fresh or canned and stay away from prepaired food

I have my doubts that it is stress related because I tend to react differently to stress (trouble sitting still and lack of focus) but I'm keeping my mind open to anything, I have been looking into type 1 diabetes because my grandmother on my dad side had it and so do all of her sibblings and the last time I was tested was before I had celiacs and prior to any symptoms (I don't want to seem like "I'm looking for something to be wrong with me" as my dr says but I am worring a bit

nicole

pricklypear1971 Community Regular
pricklypear1971
Posted

Your rash may be the "celiac rash" Dermatitis Herpetiformis. You may be reacting to trace gluten, or getting gluten from somewhere you think is safe. Or, your body may just be tossing the DH out there.

Dermatitis and eczema is common in autoimmune patients. Try using mild cleansers, etc. Keep a diary and calendar about when and what sets the rash off. Maybe that will help clue you in.

sreese68 Enthusiast
sreese68
Posted

I would find a new doctor. I bet if he were the one to live with hives for 5 months, he wouldn't call it no big deal! And if you're feeling off, you should definitely get checked out. I would keep a record of what you eat (just in case it's food related) and any symptoms you have: fatigue, rash, even just not feeling right. Hard data like this helps a doctor figure out what's going on.

Then ask people if they have a doctor they like. You want one who'll listen to what you have to say and think about it. And one who'll be open to your questions even if you're saying "I don't think I have (insert his suggestion) because

pricklypear1971 Community Regular
pricklypear1971
Posted

You may try a Naturapath who specializes on endocrinology. That's what mine does , and she really takes time to listen and to review your history. Made all the difference for me.

And here's how the good diary helps. Today I figured out I may be sensitive to salicylites. That's what happens when you cross notes on Little Debbie Swiss Rolls with Riceworks Sweet Chili chips and Barq's Red Cream Soda and Red Velvet Cake and strawberry Kool-Aid.

Salicylites sensitivity falls under DH. Duh. Dang.

Marilyn R Community Regular
Marilyn R
Posted

"I have my doubts that it is stress related because I tend to react differently to stress (trouble sitting still and lack of focus) but I'm keeping my mind open to anything, I have been looking into type 1 diabetes because my grandmother on my dad side had it and so do all of her sibblings and the last time I was tested was before I had celiacs and prior to any symptoms (I don't want to seem like "I'm looking for something to be wrong with me" as my dr says but I am worring a bit

nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,115
    • Most Online (within 30 mins)
      7,748
    Jacqueline12
    Newest Member
    Jacqueline12
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StaciField
      My bone structure is disintegrating and I’m having to have my teeth removed

      By StaciField · Posted

      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...